If anybody has any advice for me it would be greatly appreciated. I am going to a great doctor and he is referring me to the Mayo Clinic...but I don't know when I will get into Mayo and am trying to do my own research as well.
Since I was a child I haven't felt well. I remeber nothing really being wrong with me, but feeling like I couldn't go to school. No anxiety about it. I loved school and my friends, but I was just too tired and felt bad, regardless of sleep. Then I could sleep and had a relatively stress free life, but now my body is completely shutting down and rest is not helping.
Here is the rundown of symptoms:
major fatigue...holding my head up wears me out
headaches that last for weeks
muscle fluttering in legs all the time
can't keep my balance
can't walk more than about 30 feet at a time
constant brain fog
tingly sensation on head
I've had a lot of these for a long time, but just recently they have all hit at once and nothing is helping. I have missed 3 weeks of work. I can barely interact with my family and sometimes can't hold my daughter (19 months)
I have always been physically active and fit when not having one of these spells, I have irregular heavy periods, have had issues conceiving (but did eventually have a daughter). I've tried anti depressents with very little relief. My psych sent me to another doctor because he doesn't think this is in my head, as I had thought since my blood work always comes back normal. Of course this time it is so bad and obvious that I have no doubt that something physical is going on.
I no longer have the ability to get extra rest that used to keep me from crashing this bad. It's always been manageable. Not this time. I'm scared and worried, because I can't even think enough to sort it all out and figure out how to salvage my life. Luckily my husband, doctors, and friends are supportive and helping.
Today I've pushed myself a little harder and am feeling worse than ever. I feel fatigue everywhere in my body. The pressure in my head is horrible. I hurt so bad right now and feel so much discomfort from fatigue that I can't fall asleep.
I'm scared and have considered being admitted to the hospital tomorrow or Monday because I don't know how I am ever going to get enough rest for the exhaustion to subside. I'm not depressed or worried about hurting myself, but my body doesn't feel like it can function for much longer. I barely can find the energy to eat.
This has been my whole life and now my body can't fight back anymore and it has escaladed drastically.
Does anybody have a clue?
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