Discussions By Condition: I cannot get a diagnosis.

Fatigue, confusion, headache, fogginess....might lose job

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: bcb1222
  • April 18, 2010
  • 03:57 AM

If anybody has any advice for me it would be greatly appreciated. I am going to a great doctor and he is referring me to the Mayo Clinic...but I don't know when I will get into Mayo and am trying to do my own research as well.

Since I was a child I haven't felt well. I remeber nothing really being wrong with me, but feeling like I couldn't go to school. No anxiety about it. I loved school and my friends, but I was just too tired and felt bad, regardless of sleep. Then I could sleep and had a relatively stress free life, but now my body is completely shutting down and rest is not helping.

Here is the rundown of symptoms:

major fatigue...holding my head up wears me out
headaches that last for weeks
muscle fluttering in legs all the time
shaking frequently
can't keep my balance
joint pain
muscle pain
muscle fatigue
can't walk more than about 30 feet at a time
very dizzy
borderline blackouts
constant brain fog
tingly sensation on head
I've had a lot of these for a long time, but just recently they have all hit at once and nothing is helping. I have missed 3 weeks of work. I can barely interact with my family and sometimes can't hold my daughter (19 months)

I have always been physically active and fit when not having one of these spells, I have irregular heavy periods, have had issues conceiving (but did eventually have a daughter). I've tried anti depressents with very little relief. My psych sent me to another doctor because he doesn't think this is in my head, as I had thought since my blood work always comes back normal. Of course this time it is so bad and obvious that I have no doubt that something physical is going on.

I no longer have the ability to get extra rest that used to keep me from crashing this bad. It's always been manageable. Not this time. I'm scared and worried, because I can't even think enough to sort it all out and figure out how to salvage my life. Luckily my husband, doctors, and friends are supportive and helping.

Today I've pushed myself a little harder and am feeling worse than ever. I feel fatigue everywhere in my body. The pressure in my head is horrible. I hurt so bad right now and feel so much discomfort from fatigue that I can't fall asleep.

I'm scared and have considered being admitted to the hospital tomorrow or Monday because I don't know how I am ever going to get enough rest for the exhaustion to subside. I'm not depressed or worried about hurting myself, but my body doesn't feel like it can function for much longer. I barely can find the energy to eat.

This has been my whole life and now my body can't fight back anymore and it has escaladed drastically.

Does anybody have a clue?

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6 Replies:

  • Some of the symptoms such as headaches and dizzyness may be from the anxiety and frustration of the primary symptoms and weakness.Has anyone mentioned Myastenia Gravis.Your key words that make me think of this is your muscle weakness of holding your head up, the inability to walk short distances.However, the only sypmtom that is pretty consistant with Myastenia Gravis is drooping eyelids. If you do not have these, then it is probably not.
    Anonymous 42789 Replies Flag this Response
  • If anybody has any advice for me it would be greatly appreciated. I am going to a great doctor and he is referring me to the Mayo Clinic...but I don't know when I will get into Mayo and am trying to do my own research as well. Since I was a child I haven't felt well. I remeber nothing really being wrong with me, but feeling like I couldn't go to school. No anxiety about it. I loved school and my friends, but I was just too tired and felt bad, regardless of sleep. Then I could sleep and had a relatively stress free life, but now my body is completely shutting down and rest is not helping. Here is the rundown of symptoms:major fatigue...holding my head up wears me outheadaches that last for weeksmuscle fluttering in legs all the timeshaking frequentlycan't keep my balancejoint painmuscle painmuscle fatiguecan't walk more than about 30 feet at a timevery dizzyborderline blackoutsconstant brain fogtingly sensation on headI've had a lot of these for a long time, but just recently they have all hit at once and nothing is helping. I have missed 3 weeks of work. I can barely interact with my family and sometimes can't hold my daughter (19 months) I have always been physically active and fit when not having one of these spells, I have irregular heavy periods, have had issues conceiving (but did eventually have a daughter). I've tried anti depressents with very little relief. My psych sent me to another doctor because he doesn't think this is in my head, as I had thought since my blood work always comes back normal. Of course this time it is so bad and obvious that I have no doubt that something physical is going on. I no longer have the ability to get extra rest that used to keep me from crashing this bad. It's always been manageable. Not this time. I'm scared and worried, because I can't even think enough to sort it all out and figure out how to salvage my life. Luckily my husband, doctors, and friends are supportive and helping. Today I've pushed myself a little harder and am feeling worse than ever. I feel fatigue everywhere in my body. The pressure in my head is horrible. I hurt so bad right now and feel so much discomfort from fatigue that I can't fall asleep. I'm scared and have considered being admitted to the hospital tomorrow or Monday because I don't know how I am ever going to get enough rest for the exhaustion to subside. I'm not depressed or worried about hurting myself, but my body doesn't feel like it can function for much longer. I barely can find the energy to eat. This has been my whole life and now my body can't fight back anymore and it has escaladed drastically. Does anybody have a clue?Check out M.E association on the internet. Another name for that is Chronic fatigue syndrome. I think that you will find that that is what you are suffering from. Good luck Julie x
    Anonymous 42789 Replies Flag this Response
  • Have you researched Chronic Esptein-Barr Virus? EBV is Mono and some people get it and appear to never really get rid of it. Even if you don't remember ever having mono, you might have had a small case of it at a younger age. Once you have had the virus, it is always in your body. In most people it won't be active more than once, but some research has shown that it does stay active in people and have flare ups. I know that there is a blood test that they can do, but I'm not sure what it is. You might want to mention it to your doctor. Btw, some doctors don't "believe in" CEBV and want to call it Chronic Fatigue Syndrome - but with the blood test, I'm not sure why they don't. I am a believer because I've been living with it for about 15 years.
    Anonymous 42789 Replies Flag this Response
  • All your symptoms sort match THYROID problems. Sound like you may have adrenal problems now too. Take a look at hypothyroid and see if you match. I have this myself and am now switching from synthroid(T4 only med) to a natural thyroid replacement. Do a search on google for thyroid stop the madness and read on the site. I bet you will find a lot in common. Good luck
    Anonymous 42789 Replies Flag this Response
  • Hi, Have you had your Thyroid levels tested? Low thyroid can cause fatigue, depression, muscle pain, heavy periods, difficulty in conceving etc.Usually doctors only test TSH levels (thyroid stimulating hormone). This test alone is not sufficient.You need to test the following;TSH Total T3Free T4Thyroid antibodiesThe general view is that a TSH level of less than 4.5 is normal. This is not true for some people. An endocrinologist will tell you that TSH needs to be less than 2.0.Hope this helps.If anybody has any advice for me it would be greatly appreciated. I am going to a great doctor and he is referring me to the Mayo Clinic...but I don't know when I will get into Mayo and am trying to do my own research as well. Since I was a child I haven't felt well. I remeber nothing really being wrong with me, but feeling like I couldn't go to school. No anxiety about it. I loved school and my friends, but I was just too tired and felt bad, regardless of sleep. Then I could sleep and had a relatively stress free life, but now my body is completely shutting down and rest is not helping. Here is the rundown of symptoms:major fatigue...holding my head up wears me outheadaches that last for weeksmuscle fluttering in legs all the timeshaking frequentlycan't keep my balancejoint painmuscle painmuscle fatiguecan't walk more than about 30 feet at a timevery dizzyborderline blackoutsconstant brain fogtingly sensation on headI've had a lot of these for a long time, but just recently they have all hit at once and nothing is helping. I have missed 3 weeks of work. I can barely interact with my family and sometimes can't hold my daughter (19 months) I have always been physically active and fit when not having one of these spells, I have irregular heavy periods, have had issues conceiving (but did eventually have a daughter). I've tried anti depressents with very little relief. My psych sent me to another doctor because he doesn't think this is in my head, as I had thought since my blood work always comes back normal. Of course this time it is so bad and obvious that I have no doubt that something physical is going on. I no longer have the ability to get extra rest that used to keep me from crashing this bad. It's always been manageable. Not this time. I'm scared and worried, because I can't even think enough to sort it all out and figure out how to salvage my life. Luckily my husband, doctors, and friends are supportive and helping. Today I've pushed myself a little harder and am feeling worse than ever. I feel fatigue everywhere in my body. The pressure in my head is horrible. I hurt so bad right now and feel so much discomfort from fatigue that I can't fall asleep. I'm scared and have considered being admitted to the hospital tomorrow or Monday because I don't know how I am ever going to get enough rest for the exhaustion to subside. I'm not depressed or worried about hurting myself, but my body doesn't feel like it can function for much longer. I barely can find the energy to eat. This has been my whole life and now my body can't fight back anymore and it has escaladed drastically. Does anybody have a clue?
    Anonymous 42789 Replies Flag this Response
  • Very likely an autoimune disease but differencial diagnosis should be done with a neurological disorder.Hypothyroidism should also be ruled out
    Anonymous 42789 Replies Flag this Response
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