I have been going through doctors for about a year now and had seemingly everything checked out they could think of so far (blood work, main allergies, EEG, MRI, polysomnography etc), but no real answer has come up yet.
These problems have been persistent since around I was 13 but until one year ago nobody seemed to take it seriously so we only got into diagnosing it since last autumn. I'll try to make an as clear as possible summary of symptoms, if anyone can come up with new ideas and opinions it would be greatly appreciated!
-(mental) fatigue and concentration problems
These are the main ones, but since they can mean about anything that's wrong with your body, that's the reason the diagnostic process seems to have gone astray that much.
They create pretty much ADD-like effects, like I can never remember appointments, at work or uni I'm just looking around since I can't focus on people talking, especially when in social groups bigger than 3, and eventho I don't fall asleep sometimes it feels like it, as there are many episodes of low brain arousal so it feels all the time like I have 5-10 minute "holes" in my experience of time, that I can't remember what's been going on eventho I have kept talking or doing stuff (on auto-pilot?).
This also creates confusion in time, and often I feel detached from stuff that only just happened the same morning etc, as if anything that's more than 5 minutes ago has been ages ago, and anything in the future I can't even focus at all about.
So while I emotionally only exist in the very present (5-10 min before and after the current moment); I still feel like I am actually not present ever even at that very moment.
I can super-concentrate on things that completely suck me in, for hours and days but it still feels like a dream somehow. It's either this or I can't focus on the other stuff at all. Same with talking, once I start talking it feels like I can keep talking or writing for hours non-stop, or other moments I just cant have a normal conversation with people cuz no words pop into my brain.
I know I have generally low blood pressure, but the doctors never connected this to my concentration problems. Otherwise, this might also be a problem with sugar/energy delivery to the brain?
The more physically active I am, the less my brain seems to function properly; I am most mentally absent during the day from about 20-30 minutes in the gym, and once I finish my workout I usually have to walk home in a delirious state and either pass out on my bed or at least feel like I have to. When I was still in high school, after PE class I would be delirious and have blurred vision for about a half hour, but the vision blurredness seems to have gone mostly.
Other energy dips usually occur after eating, especially in the morning. If I shower and breakfast too soon after I wake up, I have to go to bed again cuz I just feel like passing out or sleeping again.
I have had other stuff that are not the main problem, but since they might be related to the cause of this I should mention them shortly anyway; I haven't connected them to this before so I never told my docs, but maybe adding them in might give a better overview even if maybe only 1 or 2 are related.
-excessive thirst eventho I drink at least about a 1.5 l bottle of water/day (apart from getting water from juice, soup, fruits, food etc), I am usually thirsty all the time. I could just keep drinking non stop the whole day if I wouldnt know that's really bad for you
-pee a lot my flatmate even jokes that I spend my whole life on the toilet lol. but I usually go to the toilet about 10 times a day, and 2-3 times at night (at least Wiki says average would be 5 during the day and 1 at night)
-itchy I have always been very itchy everywhere, always have to scratch a bit here or there on random places. And my right upper eyelid always feels like it's sticking to my eye a bit and I can never fully upen it without having to lift it with my finger all the time.
-hot, like I feel always very warm so I never wear jackets or Im sweating to ***l, walk around in Tshirt in winter etc. Warm summer days make my dizziness/concentration problems even worse than usual.
-dry eyes, even if I don't wear my contacts for a week, doesn't make a difference anyway.
That's all I could think of now, hope any of this makes sense, and any ideas would be helpful even if I need to see a doc to confirm these, at least I know which docs I should be making appointments with next cuz I can't just keep looking around randomly anymore!