Discussions By Condition: I cannot get a diagnosis.

Fatigue and leg weakness

Posted In: I cannot get a diagnosis. 21 Replies
  • Posted By: Anonymous
  • April 8, 2007
  • 08:13 AM

Apologies beforehand for my English, I live in Greece. I am wondering whether somebody could relate with me or have a different perspective on what I have been going through for the last month and a half.
I used to smoke a lot and drink a lot of coffee on a daily basis (around 6 cups of nescafe), mainly due to my work which is very demanding and stressful. Two months ago, after having a coffee in the morning, I developed tachycardia and went to the hospital because of a feeling that resembled a panic attack. The cardiologist who examined me told me to quit immediately smoking and drinking coffee and put me on a beta blocker pill (Inderal) for 2 weeks. After a week or so, I started feeling really tired, to the extent that I could not walk for 10 minutes. I went to the hospital again and was told that it was either the pill which can have such side effects, or I was experiencing withdrawal symptoms from nicotine and caffeine. The doctor switched my medication but the symptoms remained and got even worse. There were days that I was so weak, that I could not get out of bed or go to the bathroom. As this thing would not go away, I was admitted to the hospital for a thorough check up. As I am 32 and up to now quite healthy with no medical conditions or problems, my physician was quite alarmed that the fatique would not go away.
In the hospital I had all sorts of tests (half of them I cannot even translate!!!), including all sorts of blood tests (they revealed no anemias, no problems with the thyroid, no diabetes, no deficiencies in nutrients, no HIV and other related diseases), on the whole, my exams were so good I could not believe it. I had also a a chest x-ray, chest and abdomen cat scans, a thoracic puncture and a myelogram, a stomach examination and a biopsy, a heart ultrasound, I wore a Holter devie for a day- they were all clean. My virological tests revealed that I had a type of a gland virus (something like mono) and while I was in the hospital, I was also diagnosed with a subclinical form of the Marfam syndrome, due to the fact that I have long fingers (a minor form of arachnodachtylia) and a high palate-my heart ultrasound revealed no problems and I was told by the doctors that I have nothing to worry about, that it is a very minor form of the syndrome. The only advice I got re. the Marfan syndrome is to have a heart ultrasound every year, to follow up the condition of my aorta. I researched the syndrome a little bit on the Internet and found it quite alarming, but this contradicts what my doctors told me about the form (subclinical) of the syndrome that I have. I don't know whether I should leave it at this or start looking into it into more depth.
Anyways, almost a month and a half after my first symptoms, I am still on a sick leave and find it quite difficult to function on an everyday basis. I rarely get out of the house (still get tired very easily) and I find this whole thing very disturbing, as I am a very active and social person, nothing like this has ever happenned to me before. I have become very moody and irritable, but I associate that with the overall feeling of weakness and being at home, which makes me feel completely incompetent. So far, the doctors have come up with the following:

1. Potential chronic fatique syndrome
2. Fatigue due to the gland virus that I have, that needs to do its "cycle"-apparently there is no cure
3. Psychosomatic causes due to the extreme stress that I usually go through at work
4. Withdrawal symptoms (caffeine and nicotine)

I feel better on the whole, but I feel weak at the knees and I feel the same weakness in my leg muscles. I occasionally have an upset stomach, too and I also get leathargic-it feels like my brain runs on the 1/10 of its usual speed. I can't walk long distances and I am really frustrated because nobody seems to be giving me a concrete answer re. what's wrong, people are treating me a little bit in the sense "hey, get a grip, there's nothing wrong with you, your mind is just playing tricks on you". To be honest, I highly doubt that. One typical symptom of the Marfan syndrome is also leg weakness, so I am really perplexed that not a single doctor of mine seems to be making that association. They probably know better than I do. What the hospital neurologist told me is to come back after a month or so if the symptoms persist in order to have some more neurological and brain/sleep tests. What do you think I should do from now on? I just want a normal life back, I can't be on a sick leave forever!
Any ideas, anybody? Should I listen to what the doctors say or should I go with my gut feeling??? Thank you for listening & Happy Easter!

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21 Replies:

  • request a MRI or CT scan to eliminate any brain or spinal tumoursl
    Anonymous 42789 Replies Flag this Response
  • Hi I felt the same way 1999 was diagnosed with fibromyalgia it makes you tired(chronic fatigue syndrome)weak, stiff and hurtingyou have good days and bad daysmy legs are really effectedhope this helps
    Anonymous 42789 Replies Flag this Response
  • First let me say how jealous I am that you are in Greece. I lived there for 2 years and loved it. I miss the food and the specatcular scenery regularly (especially yesterday--we talked about the easter parades, lamb, and the egg bread--yummm)Chronic Fatigue syndrome is directly linked to mono. This is probably what you are fighting, but I would ask for the sleep study as poor sleep can make you VERY tired and can cause tacycardia and fatigue.The Marfan's can be very dangerous, but if you follow your docs advice and get the regular check ups you should be ok. I would recomed that you get an alert bracelet or neclace so that should you start to have an aortic tear or a lung colapses then the emergency service knows immemdiately where to look and doesn't underestimate the possible seriousness of chest pain, back pain, or shortness of breath. Otherwise, just keep living the best you can and don't let it frighten you. Your docs seem to be telling you that your case is very mild and while you still must be aware, don't let it scare you out of life.Caffine withdrawl usually only lasts about 2 weeks (I went off it for a breast lump they suspected was cancer--it is tough to get off of). And as you know ciggaretts are even harder to quit, but research says the symptoms of nicotine withdrawl last only about a month. You are way past that so I would not equate your symptoms with withdrawl at this point. Yasoo (excuse my spelling I was 5 when we got to Athens)
    emsbabydoll 73 Replies Flag this Response
  • I have had the same problem for the last month and a half and it has worsen since. Although there are some days (one in seven) that I feel perfectly fine. I got a check up because I had symptoms of Anemia (tiredness, joint pains, lack of energy, shortness of breathe...) My WBC were very high in my blood test results. The doctors initial thought that it could be a parasatic problem because I had recently travelled to India but all my test came back negative. They have tested me for tyroid, muscle tiredness, tuberculouseis, blood sugar, HIV Anemia and have also done an EKG and CT Chest scan. Everything has come back negative. Today I came across this disease through a search of my symptoms and it matches pretty closely. Although just like you Lenna, it looks like the docotrs are not going to have an answer to my suffering. I am only 23 and just started my career. It is a struggle for me to get up everyday and go about my daily activities. It is hard for me to take days off from work. My friends and family tell me to eat right and the tiredness will go away. But I have been doing so and see no changes. Are there any posibilities as to what might be wrong with me? I have lost trust in the doctors and need to figure the situation myself.Thank you
    Anonymous 42789 Replies Flag this Response
  • Hello there and thank you for dedicating time to get back to me!Dear Miama, I don't feel any pain in my legs, just weakness, more or less, it depends. It is usually worse in the morning and improves as the day goes by. This whole thing has been such a mix up that I don't really know what is the cause and what the effect of my symptoms. My doctor even mentioned that I might feel week because I haven't been walking that much. Anyway, I guess that I will have to just wait and see how this develops. In the meantime, you have my warmest sympathy and all the best!!!Dear Emsbabydoll, thank you very much for the info. Indeed, yesterday there was a big celebration here in Greece, with the lambs and stuff, but unfortunately for the first time I could not enjoy it in the way that I would like to. The weather is lovely (some people started wearing t-shirts already) and that makes me even more frustrated. Despite the fact that I try to have a positive outlook on things, I think that I might be getting slightly depressed. You can't really avoid nasty thoughts going through your head when you are in a situation that does not improve that much. What I have is not exactly mono but a different virus, but from the same family. My doctor has told me to start going back to my regular activities, but I find that impossible to do and he considers that strange. I just get weak both physically and mentally so fast. Re. the Marfan's, when I asked whether I should be doing any changes to my lifestyle, I was given the answer that it is nothing, but what I saw on the net got me really scared. Is there a way I could see what kind of damage has that done to me or whether I am likely to develop some condition related to it? I'm really at a loss here, all of a sudden facing the possibility of organs collapsing and my doctors being so cool about it. On the other hand, there is a saying here in Greece that if you are admitted in a hospital for one thing, you will probably get out with five medical conditions that you didn't know you have, but still, didn't stop you from having a normal and healthy life. :) I know, withdrawal symptoms are not on the agenda anymore. I have one weak filter coffee/day and smoke 3-4 cigarettes, but that has nothing to do with the one and a half pack and the 6 coffees i used to have, so no tachycardias since then. The cigs just help coping with all this frustration, in the silly way that cigarettes can do that.Thank you all once again for your time. This is an enormous help.
    Anonymous 42789 Replies Flag this Response
  • I agree that you are probably still fighting the virus, which is causing the extreme fatigue. Do you take any nutritional supplements? You might want to take a high dose of vitamin C and see if this helps you. I like Emergen-C as it is easy to take, gives you good natural energy, and is easily assimilated in the body. Hi vitamin C is very important for smokers as smoking leaches C out of the body. Also, Eleuthero (Siberian) Ginseng is very helpful as it is an adaptagenic herb and helps boost the immune system. Do not take other forms of ginseng(Korean Red), as they may be too strong for you. Do you have a lot of dizziness with your fatigue? Any numbness/tingling in your hands/feet? How is your digestion? Are you still taking any medications? Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Dear AcuannThanx for getting back to me. I don't take any supplements cause when I asked my doctor whether I should do that he told me that he doesn't see how this would do any good to me, as all my levels of nutrients and vitamins are ok. I might try that, however. Guess at this point I have nothing to lose. With respect to all the other symptoms that you describe I have none, no diziness, no numbness, normal digestion, I'm just tired all the time. I'm not on pills anymore. I can cope with being physically tired (well in a sense!), but what really frustrates me is the lethargic feeling that comes with that-sometimes even talking to people seems like an effort. I feel depression knocking on my door and I try really hard not to let it in, cause it will make things even worse. Oh, and I usually have a funny stomach and I belch a lot (I know I am extremely charming here...ha ha ha) Dear unregistered, I sympathize with you and hope that things will get better for you soon. I wouldn't lose my faith to the doctors so soon, I know it's difficult not to sometimes, I would tell you to be positive, but I know that this is difficult too. What about your virological tests? From what I hear a virus like mono or Epstein Barr can really make you feel like you do (well, like I do!).I'm not an expert really and in no position to give advice (I rather seek advice), but judging from my situation, what you need to do is try to remain positive and don't listen to people who enjoy being the bearers of bad news (many people I know, in an effort to "help", started telling me that I might have a tumour in every possible part of my body, HIV, sclerosis, myopathies etc-which really makes you feel positive!). If you are on the "alternative" medicine side of things, a friend of mine suggested that I might try the Cytolysa blood test (I don't know if I have the spelling right), a blood test that shows you the foods that you are allergic to without knowing. Apparently if you consume these foods, they slowly poison your body causing fatigue symptoms (for most people its sugar, white flour and its by-products, dairy products etc) and you can feel better by eliminating them from your diet. I know people who have tried this for other medical conditions (psoriasis, apnea, digestion problems) and saw remarkable improvements.Did any of your doctors suggested that they monitor your sleep? Apparently not sleeping well or having apnea can make you feel really tired. I am having one of these tests soon. Last but not least, I know that it might sound a little bit-well, naive-but work and stress over it should be your last concern right now. I have been on a sick leave for one month and 8 days and my job is honestly something I couldn't care less at this point. You have to focus on yourself only cause when you get healthy there will be thousands of jobs waiting for somebody as young as 23. If a good thing can come out of these situations, I guess it's that they function as a wake up call and make you realize what's really important and what not. All the best, let ne know how it goes-even talking can make you feel better.
    Anonymous 42789 Replies Flag this Response
  • Hello again--Try not to worry too much about the Marfan's. I am assuming that your ambulance crews and emergency room docs are equivelent or better than the ones here in Texas, if so then the problems you might have will be caught and fixed. If you are worried about your lungs you can see a pulmonologist that can check out your lung function. Just let him/her know you have Marfan's and you are concearned. They will probably do a number of tests and then ask that you come back every 6-12 months. You are already seeing a cardiologist, I assume from the first message. Keep your appointments and make sure to tell him/her about ANY symptoms you are worried about.See your dentist regularly and make sure before any cleanings or dental work that you get antibiotics.And see your eye doctor. Again, let him/her know that you have Marfan's and that will help them to look for the things they need to in order to help keep your eyes healthy.The first thing you need to do is just to take a deep breath. Remember that your docs said you have a mild case and I imagine that if it was severe then you would have known sooner. Be aware, but don't be afraid. Anxiety can create all sorts of medical problems and can worsen those already present. Good luck, Hun and I hope all goes well for you
    emsbabydoll 73 Replies Flag this Response
  • Apologies beforehand for my English, I live in Greece. I am wondering whether somebody could relate with me or have a different perspective on what I have been going through for the last month and a half. I used to smoke a lot and drink a lot of coffee on a daily basis (around 6 cups of nescafe), mainly due to my work which is very demanding and stressful. Two months ago, after having a coffee in the morning, I developed tachycardia and went to the hospital because of a feeling that resembled a panic attack. The cardiologist who examined me told me to quit immediately smoking and drinking coffee and put me on a beta blocker pill (Inderal) for 2 weeks. After a week or so, I started feeling really tired, to the extent that I could not walk for 10 minutes. I went to the hospital again and was told that it was either the pill which can have such side effects, or I was experiencing withdrawal symptoms from nicotine and caffeine. The doctor switched my medication but the symptoms remained and got even worse. There were days that I was so weak, that I could not get out of bed or go to the bathroom. As this thing would not go away, I was admitted to the hospital for a thorough check up. As I am 32 and up to now quite healthy with no medical conditions or problems, my physician was quite alarmed that the fatique would not go away.In the hospital I had all sorts of tests (half of them I cannot even translate!!!), including all sorts of blood tests (they revealed no anemias, no problems with the thyroid, no diabetes, no deficiencies in nutrients, no HIV and other related diseases), on the whole, my exams were so good I could not believe it. I had also a a chest x-ray, chest and abdomen cat scans, a thoracic puncture and a myelogram, a stomach examination and a biopsy, a heart ultrasound, I wore a Holter devie for a day- they were all clean. My virological tests revealed that I had a type of a gland virus (something like mono) and while I was in the hospital, I was also diagnosed with a subclinical form of the Marfam syndrome, due to the fact that I have long fingers (a minor form of arachnodachtylia) and a high palate-my heart ultrasound revealed no problems and I was told by the doctors that I have nothing to worry about, that it is a very minor form of the syndrome. The only advice I got re. the Marfan syndrome is to have a heart ultrasound every year, to follow up the condition of my aorta. I researched the syndrome a little bit on the Internet and found it quite alarming, but this contradicts what my doctors told me about the form (subclinical) of the syndrome that I have. I don't know whether I should leave it at this or start looking into it into more depth.Anyways, almost a month and a half after my first symptoms, I am still on a sick leave and find it quite difficult to function on an everyday basis. I rarely get out of the house (still get tired very easily) and I find this whole thing very disturbing, as I am a very active and social person, nothing like this has ever happenned to me before. I have become very moody and irritable, but I associate that with the overall feeling of weakness and being at home, which makes me feel completely incompetent. So far, the doctors have come up with the following: 1. Potential chronic fatique syndrome2. Fatigue due to the gland virus that I have, that needs to do its "cycle"-apparently there is no cure3. Psychosomatic causes due to the extreme stress that I usually go through at work4. Withdrawal symptoms (caffeine and nicotine) I feel better on the whole, but I feel weak at the knees and I feel the same weakness in my leg muscles. I occasionally have an upset stomach, too and I also get leathargic-it feels like my brain runs on the 1/10 of its usual speed. I can't walk long distances and I am really frustrated because nobody seems to be giving me a concrete answer re. what's wrong, people are treating me a little bit in the sense "hey, get a grip, there's nothing wrong with you, your mind is just playing tricks on you". To be honest, I highly doubt that. One typical symptom of the Marfan syndrome is also leg weakness, so I am really perplexed that not a single doctor of mine seems to be making that association. They probably know better than I do. What the hospital neurologist told me is to come back after a month or so if the symptoms persist in order to have some more neurological and brain/sleep tests. What do you think I should do from now on? I just want a normal life back, I can't be on a sick leave forever!Any ideas, anybody? Should I listen to what the doctors say or should I go with my gut feeling??? Thank you for listening & Happy Easter!Hello, I have been battling Chronique Fatigue and other symptoms and a year and half latter I found out I had Lyme Disease this disease has a lot of different symptoms depending on what type of infection you have you may want to look into it www.ocean-beach.com/_tick/tick_lymesymp.htmThis maybe a start?
    Anonymous 42789 Replies Flag this Response
  • Lenna, I've had what I call fatiguability....meaning I'll become fatigued doing little. Examples would be legs fell very tired from walking or standing for 15 minutes. Climbing stairs, I'll get jello legs. I'll get periodic waves of fatigue where I feel limp and weak. Like you much worse in the am.Have your parathyroid gland checked! Also have your phosphate0s and serum calcium checked. That's what doctors are looking into for me.Look at parathyroid.com with Dr .J Norman.Greg
    Anonymous 42789 Replies Flag this Response
  • Glandular Fever/Mono can unfortunately cause CFS. Did your doctors run a full panel of EBV antibodies? Is the infection determined to be active, or was it a past infection? If it's active then you are either infected with the Epstein Barr Virus or have been in the last 6 or so months. If it's not active (but you have antibodies) then you were infected in the past. Was it EBV however? Cytomeglovirus (CMV) can also cause glandular fever/mono, but it's a less common virus.
    Anonymous 42789 Replies Flag this Response
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  • HI all!Let me tell you my story and see if anyone can explain this. Before I begin let me just say that its nice to see that im not alone in this. Im only 22 years old. Ever since I was 17 I have been suffering from anxiety, and its not uncommon for me to have a pain attack. Sometimes due to stress and sometimes for no apparent reason at all. About a month ago, after work I had a friend of mine drive me home. When I started to feel like I was getting car sick. Cold sweats, nausea, dizziness. We stopped for a second and it seemed to subside, then came back full force. We quickly made it to our place and by this time Im shaking and its taking all of my strenght to get inside. My chest started to hurt so I just assumed that I was having another anxiety attack. The next morning I was extremely lethargic, yet I still went to work. I immediately went to occupational health seeing as how my chest pain started up again, along with intensely sharp pains in my lower right side that spread to my lower back and sides. I was rushed to the ER and they did there normal tests, CT scan and the only thing that they could come up with is that i had an infection. I went to go see my gyno and he found blood in my urine and said that my uterus was tender. ( I had the LEEP procedure done to remove pre-cancerious cells caused by the HPV virus back in December) But as far as the pain in my abnomin he said that it seemed muscle-related. He treated me for an infection (of what I still dont know!). I finished the anti-boitics with no improving results. I have an upcoming appointment with a general surgeon. Im so afraid that they are going to send me home saying nothing is wrong. Im not a hypocondriac. In the meantime my condition has worsened. I still have abdominal pain, and extreme weakness in my arms and legs which severly limit my activites. Im always feeling as if I have to urinate, headaches, joint pain, loss of appitite. And here recently my neck has stiffened. This is the worst I have ever felt. I've had people say that it was stress related but im on medication for that. Its not improving my symptoms. My sleep is unrestfull. The worst part of it all is my weakening memory and concentration. I can start and sentence and forget what i was even talking about. I just want my life back. Im engaged to a wonderful guy and we wish to start our own family, but seeing as how I can't even work now, our dreams are far off from now.I sympathize with everone suffering with no answers. DO NOT GIVE UP!!!!Best wishes to all!Jessica
    Anonymous 42789 Replies Flag this Response
  • See a neurologist to get checked for multiple sclerosis. It is rare in warmer climates but it happens. I was in Saudi Arabia and the same thing happened to me and they said I had a stroke - because they just dont see it that often. If you cant find a doctor that knows about multiple sclerosis, can you go to Norway or Germany to see one? It is more common there.
    crabbycosmo 21 Replies Flag this Response
  • Dear all, At this time I would like to thank you for dedicating time to get back to me with your opinions. I have returned to work this Monday and I am trying to make an effort to return to a normal life. The official diagnosis that I have so far is the gland virus (actually, this is exactly the name in Greek-it's definitely not EBV) and according to my doctor, it will take me 3-6 months to completely recover. I am having some more blood tests to see whether the levels of the virus have dropped, something that would possibly mean that I am getting better. My doctor also advised a high calorie diet, a lot of fluids and relative rest. The pathologist I went to for a second opinion told me more or less the same thing and gave me some natural chlorella pills to boost my immune system. So far, I am feeling much better. Ok, it depends on the day and the time of the day, but at least I can go out for short walks without having other people with me and I can last for 8 hours at the office. I am really proud of my everyday achievements - like going to work on foot, people who haven't been through something like this cannot relate. Most of the time I am confident that things will be ok, other times I just need to work harder with myself.Re. the "atypical" Marfan's, I had a heart ultrasound which revealed no anomalies related to the syndrome (thank God) and I was also examined by an ofthalmologist to see whether I have any eye condition related to it. Luckily, the answer was again negative. I am thinking about having a genetic test, but then again all the doctors who have seen me so far keep on telling me that I shouldn't worry at all, just have a heart ultrasound once a year and that's it. Apparently I have some mild skeletal characteristicts which could be related to the syndrome and that is all. At this point I am trying to get it out of my head completely cause the anxiety caused by the diagnosis made me a nervous wreck, to the point I could not sleep at night and aggravated the fatigue I felt. Just a question crabbycosmo-wouldn't a myelogram (examination of bone marrow) reveal the possibility of MS? I had the exam and it was normal.We are quite familiar with it here too. As I am quite young, I had all sorts of tests when I was hospitalized-I think that if my doctors thought there were indications of MS, they would test me for it. I am completely satisfied with the treatment I got from all the staff, actually grateful to all the doctors and nurses who took care of me when I was at the hospital.Finally, I went to a neurologist to have my hands and feet muscles tested through electrical stimulation (don't really know the name of this exam) and it was normal too. We wanted to rule out the possibility of muscular diseases. However, when I talked to the neurologist about the way I felt during these two months-tired, lethargic, frustraded over being diagnosed with Marfan's, afraid to go out alone due to the weakness, irritable due to the fact that I spent almost two months at home in bed, she termed all this a "neurosis" and decided to have a second consultation with me, in order to put me on anti-depressants. I am one of those people that avoid pills if they can and I think that all the above are normal reactions to a quite frustrating health situation that I went through. I told her that she would feel like s**t too if she lost two months from her life , so I don't think that this is such a big deal. I am sure that my mood will improve together with my health, isn't this logical? All the pathologists who have examined me told me to be patient and positive and that eventually things will improve. I have decided not to take the pills and work on this in my head. I can tell that going out for coffee with friends and socializing with people at work makes me feel good, and so do my tiny everyday achievements. Do you think that my point of view is wrong? Do you think that I can benefit from anti-depressants at this point? I really believe that our own inner strength cannot be equaled to pills!
    Anonymous 42789 Replies Flag this Response
  • Hello there,First of all thank you all for dedicating time to get back to me and helping with my condition. It has been 3 days since I have returned to work and I manage to last through 8 hours of relatively mild mental work-that’s quite an achievement! My official diagnosis remains the gland virus (actually, this is the exact translation from Greek, it has no other name, it is definitely not EBV). The pathologist who was seeing me when I was hospitalized told me that it will take from 3-6 months for me to recover and suggested a balanced and rich diet, lots of fluids, no alcohol and relative rest when I get tired. The second pathologist I went to for a second opinion told me exactly the same and gave me some chlorella pills to boost my immune system. I feel much better, meaning that I walk for a while every day, have coffees with friends, play with my nephew and so on. I am still taking it easy and hope that eventually, this whole thing will go away. I had some blood tests to see whether the levels of the virus are lower to see if I’m recovering, but it feels like it. Crabbycosmo, we get MS here a lot too, so the doctors are aware of it. I am pretty much sure that if they suspected that I have it, they would test for it. I had a myelogram (bone marrow extraction) and that came back clean, so I really don’t know whether that would exclude MS. I had all sorts of exams and I am really grateful to all the doctors and nurses that took care of me, cause they did everything they could in a hugely understaffed public University hospital. Re. the atypical Marfan’s, I had the heart ultrasound and it revealed no abnormalities whatsoever related to the syndrome. Eye exam was normal too. Apparently, I have a very minor form of arachnodachtyly and a high palate and that’s it, I have nothing else related to the syndrome. Doctors have discouraged me from having a genetic test and the only thing they have told me is to have the ultrasound every 6 months or 1 year, no other changes in lifestyle. My cardiologist had a go at my pathologist who diagnosed me with Marfan’s, cause apparently what he told me was that if I had it and went untreated for it for the last 32 years, being a party animal, heavy smoker, former aerobic addict and coffee junkie, I would probably be dead by now. Ummmm….ok. My pathologist also confronted me with the fact that I researched the syndrome on the Internet, telling me that I am not a doctor and therefore got frustrated for nothing. Being diagnosed with it affected my psychology to the point of a nervous breakdown, cause I was already fighting the fatigue and fogginess caused by the virus and had to deal at the same time with the potential of a life threatening medical condition. I am pretty much sure that my recovery was delayed as a result. I mean before the ultrasound, there were nights I couldn’t sleep, I would wake up in the middle of the night going God, I can’t deal with this. You can hardly relax under the circumstances or focus on getting better. I am much calmer now and decided not to think about it and trust my doctors instead of my amateur curiosity. Recently I also went to a neurologist to rule out myopathy and had some extra exams done. They were ok too. However, after talking to the doctor and telling her about the fact that I felt really bad and was afraid to go out alone, she termed this a “neurosis” and suggested that I come back to discuss the potential of antidepressants. I told her that if she spent 2 months in bed, struggling to keep her eyes open and her mind clear, while being diagnosed with a genetic condition, she would probably feel like s**t herself, depressed or not depressed, I mean I assume that feeling like that is quite natural. I am better now and I already feel better too, so I don’t really think that antidepressants are needed here. Hopefully I will recover 100% and will feel like I did before this whole thing happened. I would rather use my mind and think positive, rather than messing with my body’s biochemistry. I mean, what do you think? Am I too prejudiced against antidepressants or do you think that there is no need to take such pills if you feel confident in overcoming a situation on your own inner strength? I mean summer is slowly approaching and I can think of the Greek sun and sea and friends as the best antidepressants ever!!!
    Anonymous 42789 Replies Flag this Response
  • check out this site www.ahummingbirdsguide.com hope it helps...look at sx page...mommy cat
    mommy cat 1654 Replies Flag this Response
  • I agree with CrabbyCosmos... it sounds like MS...
    Anonymous 42789 Replies
    • August 13, 2007
    • 02:27 PM
    • 0
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  • Lenna, I found this thread - I have symptoms very similar to yours. Overall fatigue, leg weakness. It started after some episodes which seem to have been like panic attacks. I've never had them before or since, but it was pain in head, rapid heart beat, shallow breathing, disorientation and dizzyness. All hospital tests were negative, including CT and MRI, except they found a sinus infection. But since then I've had the fatigue and leg weakness. Most doctors believe it's either anxiety or a virus. It has been over a year since this thread. You said drs felt you had a virus which would get better in 3 to 6 months. Have you gotten better?
    Anonymous 42789 Replies
    • October 1, 2008
    • 11:06 PM
    • 0
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  • Hi am from India and currently in USA for work. I have the same kinda of problem like Fatigue and leg weakness.if i walk fast my legs kinda criss cross..Am sturggling w/ this for the past four days and doctors are diagonising my blood. I traveled to india 7 mnths back and was shifting my homea day before i started feelng this. Doctors sya that cud be one of the reason and am not comprosmised. Awaiting my test results and scared a Fatigue is one of the HIV intitial symptoms..Please helps if someone has any answers
    Anonymous 42789 Replies
    • September 1, 2009
    • 02:57 PM
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  • Apologies beforehand for my English, I live in Greece. I am wondering whether somebody could relate with me or have a different perspective on what I have been going through for the last month and a half. I used to smoke a lot and drink a lot of coffee on a daily basis (around 6 cups of nescafe), mainly due to my work which is very demanding and stressful. Two months ago, after having a coffee in the morning, I developed tachycardia and went to the hospital because of a feeling that resembled a panic attack. The cardiologist who examined me told me to quit immediately smoking and drinking coffee and put me on a beta blocker pill (Inderal) for 2 weeks. After a week or so, I started feeling really tired, to the extent that I could not walk for 10 minutes. I went to the hospital again and was told that it was either the pill which can have such side effects, or I was experiencing withdrawal symptoms from nicotine and caffeine. The doctor switched my medication but the symptoms remained and got even worse. There were days that I was so weak, that I could not get out of bed or go to the bathroom. As this thing would not go away, I was admitted to the hospital for a thorough check up. As I am 32 and up to now quite healthy with no medical conditions or problems, my physician was quite alarmed that the fatique would not go away.In the hospital I had all sorts of tests (half of them I cannot even translate!!!), including all sorts of blood tests (they revealed no anemias, no problems with the thyroid, no diabetes, no deficiencies in nutrients, no HIV and other related diseases), on the whole, my exams were so good I could not believe it. I had also a a chest x-ray, chest and abdomen cat scans, a thoracic puncture and a myelogram, a stomach examination and a biopsy, a heart ultrasound, I wore a Holter devie for a day- they were all clean. My virological tests revealed that I had a type of a gland virus (something like mono) and while I was in the hospital, I was also diagnosed with a subclinical form of the Marfam syndrome, due to the fact that I have long fingers (a minor form of arachnodachtylia) and a high palate-my heart ultrasound revealed no problems and I was told by the doctors that I have nothing to worry about, that it is a very minor form of the syndrome. The only advice I got re. the Marfan syndrome is to have a heart ultrasound every year, to follow up the condition of my aorta. I researched the syndrome a little bit on the Internet and found it quite alarming, but this contradicts what my doctors told me about the form (subclinical) of the syndrome that I have. I don't know whether I should leave it at this or start looking into it into more depth.Anyways, almost a month and a half after my first symptoms, I am still on a sick leave and find it quite difficult to function on an everyday basis. I rarely get out of the house (still get tired very easily) and I find this whole thing very disturbing, as I am a very active and social person, nothing like this has ever happenned to me before. I have become very moody and irritable, but I associate that with the overall feeling of weakness and being at home, which makes me feel completely incompetent. So far, the doctors have come up with the following: 1. Potential chronic fatique syndrome2. Fatigue due to the gland virus that I have, that needs to do its "cycle"-apparently there is no cure3. Psychosomatic causes due to the extreme stress that I usually go through at work4. Withdrawal symptoms (caffeine and nicotine) I feel better on the whole, but I feel weak at the knees and I feel the same weakness in my leg muscles. I occasionally have an upset stomach, too and I also get leathargic-it feels like my brain runs on the 1/10 of its usual speed. I can't walk long distances and I am really frustrated because nobody seems to be giving me a concrete answer re. what's wrong, people are treating me a little bit in the sense "hey, get a grip, there's nothing wrong with you, your mind is just playing tricks on you". To be honest, I highly doubt that. One typical symptom of the Marfan syndrome is also leg weakness, so I am really perplexed that not a single doctor of mine seems to be making that association. They probably know better than I do. What the hospital neurologist told me is to come back after a month or so if the symptoms persist in order to have some more neurological and brain/sleep tests. What do you think I should do from now on? I just want a normal life back, I can't be on a sick leave forever!Any ideas, anybody? Should I listen to what the doctors say or should I go with my gut feeling??? Thank you for listening & Happy Easter!Hi Lenna:I feel for you. I have had similar symptoms for over a year and I am exhausted. Last December I had strep throat for two weeks and dehydrated and had to go in for IVtwice. After antibiotics shot because the pills didn't work I finally recovered, but never felt all the way better. During the strep throat I started to bleed and I just thought I started my period. The bleeding would not stop and I had huge clots and had to go to ER. Now they put me on birthcontrol (Norethindrone Acetate) to stop the bleeding. I have been on it for a year now. Of course they wanted to do a hysterectomy, because I felt so bad I was afraid to have surgery at that point. After a few months my feet and legs swelled and I was getting shortness of breath. They did the heart tests and on the ultrasound found that My heart was enlarged. They said I didn't have to do anything that it won't go away. I started to have heart attack symptoms and they found out that my blood pressure was 181/104. since I had always had low blood pressure my whole life (I am 49) they were concerned. I was placed on High BP meds and it was still high. I was having trouble walking or standing for more than a few minutes because of the back pain from the fibroid which was growing to the size of a large orange. I also was having trouble sleeping. I would wake up several times through the night. All through this I felt like I couldn't even lift my arms or legs. I was still working at this point and since I have a sit down job, I was able to, but co-workers were starting to get concerned because of how bad I looked. Since I had an EKG, Heart Ultra sound, Heart Stress Test and I pass them except for the enlarged heart they said lose weight and exercise. I was tested for sleep apnea and it came back positive and severe. I stop breathing 15 times an hour. I could barely drive home from work I was so tired at 5:30PM. The machine is helping for the sleep, but I do get shortness of breath if I walk to the car and am talking on the phone or walking. I am so tired of it all. They never offered to put me in the hospital at anytime. I have to just keep on going because I am a single mom with three kids and a grandchild. Thyroid keeps coming back in the normal range of Kaiser. Now my ankles and feet are not swelling but my calves are huge and she is saying I might have lymphedema and ashma. Never had any before. HElp
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