I posted the below a few days ago and now that it's a few days later, his symptoms are worsening. He's having small convulsion=like movements and the formula he puts down his feeding tube keeps backing up, like the muscles in his abdomen are contracting and rejecting it. His facial movements are diminishing..he can't seem to open his mouth as far and when he tries to move he's having more difficulting moving, as if he's stiffening up. He's having more frequent "attacks". Help! If you know of any excellent neurologists anywhere in the country, please email me!!
My father in law has been suffering from some bizarre disorder no doctor at Mayo or any other hospital he's been to can diagnose. Here are his symptoms in a nutshell and a little background.
It all started years and years ago with difficulty swallowing. That turned into these "attacks". About 3 years ago, the worsening of symptoms started... he collapsed at work, not breathing. They did an emergency trache. He still has the trache. He has these attacks where his vocal cords paralyze and his neck spasms...his neck quadruples in size..yes...4 times its normal size during these attacks. He has difficulty breathing during these attacks and his face turns red. He's had to be resuscitated 3 times...suffocated to death and brought back to life 3 times from these attacks because they come on suddently. Stimulation seems to bring them on in the form of eating soft foods as that's all he can eat what with the difficulty swallowing. However, they do come on in his sleep and that's very dangerous because he's unaware that the velcro strap on his trache collar comes undone and the trache comes out and he starts to suffocate. Luckily, he's woken up and been able to get his wife to help and call 9-1-1. WE NEED HELP. HE'S SUFFERING AND CURRENTLY IN THE HOSPITAL AFTER HIS 3RD RESUSCITATION. If you can help us...email me at email@example.com THANKS!