Discussions By Condition: I cannot get a diagnosis.

Falling through the cracks with the Docs

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Benelux
  • July 2, 2008
  • 08:08 PM

We are a military family stationed in the UK; we have access to the U.S. military medical care system (which isn't working at all). Even private sector care in the UK is nonexistent (it is many months even to book an allergy appointment).
For two weeks now my son has been breaking out in a severe rash on his chest, stomach, back and upper arms. He breaks out with elevated temps, such as hot bath or sunshine, but sometimes for no apparent reason. The rash is precipitated by severe shooting or burning pains, and the rash disappears within ten minutes of onset. This is happening a minimum of three times a day.
Antihistimes really aren't effective, we've tried Zyrtec and Tagamet. I give him Benadryl with an onset but I really don't know if this is even effective (there doesn't seem to be anything to PREVENT the outbreaks).
We tried the elimination diet for 5 days with no change. Initial blood culture came back fine (no bacteria). They are now running several more tests.
Any info greatly appreciated. Anyone here know of parasitic causes? With the reading I've done, I wonder...He's been at school in Scotland eating haggis and sushi (yuck).
Many thanks.:o

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4 Replies:

  • Eating sushi can most definitely cause this symptom. Rash is called urticaria. Try here: http://www.cmaj.ca/cgi/content/full/172/3/329%20
    aquila 1263 Replies Flag this Response
  • raw fish carries worms, among other critters..it's not a shell fish allergy? How about poison ivy...tick bites or other bug bites...next, chicken pox or measles; test for a multitude of viral diseases...sounds like it comes and goes and with the bone pains, I would suspect a virus or ticks.
    Monsterlove 2921 Replies Flag this Response
  • i would have him tested for lupus....rashes from heat/sun are common along with bone/muscle/joint aches and pains - it's simply a blood test. ask your doctor to order a cbc, sedrate, ana with lupus titer, and a rheumatoid factor.
    Anonymous 42789 Replies Flag this Response
  • My little brother had the same problem. Doctor told mom it was "an allergic reaction to heat" although over time he would break out to any change in temp. He got a lot worse, hives all over his chest neck, face....arms, trunk. Allergies run in the family. Started in his early teens. Benadryl helped some. Good news--he outgrew the problem. Bad news--he had some close calls, hot showers nearly killed him.
    Anonymous 42789 Replies Flag this Response
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