Discussions By Condition: I cannot get a diagnosis.

Fainting, headaches, vision changes in 12 yr old girl

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: tknbychance
  • May 5, 2009
  • 05:25 PM

A week ago my daughter fainted at school. She had not been sick or anything. She felt nauseated and went to the nurse's room and fainted. She noted a metallic taste in her mouth, visual changes and headache prior to fainting. In the next 48 hours she fainted two more times. On the third time I took her to the ER. CT, EEG, EKG and blood work all came back normal. Since then she has more symptoms. A headache that will not go away, she is mixing up her words and is just not herself.
I don't know which direction to go.......:confused:

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11 Replies:

  • If I were you, I would phone your daughter's primary care provider (PCP) or General Practitioner (GP) ... the doctor that handles her overall care; explain the situation and request a referral to a/the proper specialist(s) and have all of this "phenomena" examined thoroughly. Sounds neurological with the speech problems, vision changes (new/recent, I'm guessing) and as for the metallic taste (also neurological, I suspect, via my personal history) ... I've experienced that following seizures a few times, and understand that can be common with seizures. There are many, many types of seizures ... some convulsive, most non-convulsive ... some very mild and undetectable at all. In my case, the convulsive seizures have stopped ... but I go to "la-la-land" and just stare off into space, I look at something and my eyes just "get stuck" and everything stops, I give no attention to my surroundings. As for your daughter, her medical history may provide her PCP/GP the best direction to go first; I'd make that call, that's the one that has all her records, so I'd think that one would also be the best person to know where to begin. Try not to worry much; it could be curable and very treatable. p.s. You say they did a CT scan; did they do the CT of the head/brain, only, I'm assuming? Since she is only 12, personally, I would inquire about doing an MRI on the entire central nervous system (CNS) ... all-inclusively, the entire brain and the entire spine.
    neurotransmissing 145 Replies Flag this Response
  • They just did a CT of her brain....I will inquire about a CNS CT or possibly an MRI.Her GP saw her before the ER visit. He told us that it is not uncommon for preteen girls to have fainting episodes. If it were just fainting I wouldn't be so concerned. The neurological symptoms are what is worrying me.No cell phone towers that are newly installed, she uses a cordless phone at times but is not a phone person and we don't have wifi here, as we are out in the country.
    tknbychance 3 Replies Flag this Response
  • quote=tknbychance;170259: "They just did a CT of her brain....I will inquire about a CNS CT or possibly an MRI.""The neurological symptoms are what is worrying me." My concern as well, possible/additional neurological; a "tad" more appears to be happening than that of a pre-teen fainting ... and I'm concerned that the fainting wasn't just once or twice ... separate and apart in episode, but one following another with three like that; may be nothing, but no sense in chancing it ... not the conclusive the diagnosis that I could rest on, being a mother myself. One thing that may be of consolation to you, when I was in 6th grade (back in the stone age), a classmate of mine fainted ... not once ... but then again a few months later. There were no other problems though, not to my knowledge; she graduated on the Honor Roll ... and all those years was a straight-A student with a couple B+'s at worst! ((( HUG ))) for you and daughter; best of luck and keep us posted.
    neurotransmissing 145 Replies Flag this Response
  • Maybe it's a genius thing... LOL:D She is a straight A student apart from a B here and there every now and then. She has not passed out again, the headache seems to be consistent with no relief from Advil or anything like it. The sense of pressure in her head, especially near her temples is still there as well. I'm still waiting on a call from her GP to find out where we go from here...Thanks everyone :p
    tknbychance 3 Replies Flag this Response
  • I agree, we've found part of the diagnosis. The girl is a genious!! :rolleyes: Glad you'll be hearing from her GP!! I strongly suspect you'll find the reassurances and/or applicable information and further direction. And ... you will then have two opinions; if you're still uncomfortable, you know where to inquire next ... after all, the genius ... we know ... must've been passed on from maternal side as is typically the case. :D (((((( JUST KIDDING GUYS!!! ))))))
    neurotransmissing 145 Replies Flag this Response
  • Strange things can happen around puberty. This sounds like it could be hormonal and her estrogen is fluctuating which can give that metallic taste.Ask her doctor about whether this could be related to puberty. Or have her see an endocrinologist to test her levels.I think migraine's can cause all these symptoms.Please come back and let us know how she is doing. :)
    Beth56 272 Replies Flag this Response
  • UPDATEWell, we've been through the tests with no answers thus far. She is still having episodes of the metallic taste in her mouth followed by altered behavior and personality changes, nausea, feeling like she is going to pass out and headaches. We will be seeing a neurologist in the next two months. I am going crazy worrying about her because I know something is going on but can find no answers.........I am not new to the medical community, I have a very medically complex 5 yr old son. ( www.chancesvision.com ) but this stuff with my daughter is giving me a run for my money!!!
    tknbychance 3 Replies Flag this Response
  • If I were you, I would insist on an MRI and seeing the neurologist quickly. Neuro symptoms are nothing to take lightly. I'm sure you know and are very concerned with your daughter by now. I was recently diagnosed with ADEM. I had CT scan of my head that was normal, but an MRI showed a couple lesions on my brain. I don't say this to frighten you. It is rare, and I'm sure not what is going on with your daughter, but for peace of mind it's good to get the tests done right away. Once nuero things start they progress quickly, so it's better to rule things out early. I'm sure it will make you feel better. Good luck and God bless!!
    Anonymous 42789 Replies Flag this Response
  • I would highly highly highly urge you to get a Lyme Disease evaluation for her. Unfortunately, a regular MD cannot make the call. IT is largely a clinical evaluation, and a hugely misdiagnosed disease. IT is also progressive, so you do not want to miss the diagnosis if at all possible. go to www.ilads.org to find a list of Lyme Literate Medical Doctors in your area.Additionally, I would google Lyme support groups in your area, and call the organizers to get their feedback on the best LLMD around. Even if you have to travel several hours to a doc, this is urgently critical not to miss. for more information on why Lyme is so widespread and misdiagnosed (in fact, the CDC is under investigation by the Attorney General of Connecticut's office for collusion issues with pharmaceutical companies/insurance companies to hide the extent of Lyme's existence/necessary treatment), go to underourskinmovie.com, and get the book "Cure Unknown".I personally lead 20 years of ***l life due to misdiagnosis and having my sumptoms racked up to being "hormonal teenagey stuff". Pretty much begging you to follow up on this!And I want to deeply highlight and underscore that your doctor, local neurologists, or epidemiologists will be vastly unqualified to evaluate her. Read "Cure Unknown" and you will understand fully why--too much to go into in this post.Final piece of info: unfortuantely, Lyme is expensive to diagnose and treat, but if your family has means, do not less this detere you. If you do not have means, feel free to email me at e_mars1133@yahoo.com and I will inform you about other methods of diagnosis/treatment that I know about.Wishing your daughter speedy healing, whatever the cause!elizabeth
    Anonymous 42789 Replies Flag this Response
  • i know this may sound strange, what is her wight? dose she or others in family have food allergys? try to see if thay can do an ultrasound around her tempels? has her colesteral been checked? i have a hunch their looking in the wrong direction. try to remeber back to each episode is there anything that she ate, meds she had taken, activitys she was involved in prior to each episode. you are looking for a patten even certain smells can trigger on set of an episode, thats if it nurilogic. but i am looking at the symptoms not at here age somtimes when girls begin to become laidesit triggers something in the body, i work around elderly paitents and thats what is so strange to me because if she was over forty they would be looking in cardiovascular as well, very mild strokes can cause a similar reaction,and often there is not any lasting damage, many paitents report a metalic taste eather prior to or after they have had a mild stroke, as well as the pressure around the temples, some exsperience dizzyness or faint, and become temprarily confued, and have temporary speech problems directly after and usually begins go away as the swelling comes down. this is very rare but it has happend to children who have a family history of such conditions in older family members. for those few it usualy happens around the age of pubertly. there is one other did they check her for type 1 or type 2 diabeates. sever hypoglycemia? i am not a doctor, but being around as an aid i have seen a lot, and i have had many residents of many diffrent ages from toddlers to 101 year olds, and sometimes doctors rule out posible causes with age. then adittional symptoms. as a mother i hope this helps some
    Anonymous 42789 Replies Flag this Response
  • i don't want to scare/worry you but the test they have done so far would they have detected a brain tumor (if there was one)? I also have a 12yr. old daughter who has almost fainted 3 times now then gets a headache after the episode. I am not that worried yet. She does not have the speech situation.Good Luck!
    Anonymous 42789 Replies Flag this Response
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