Discussions By Condition: I cannot get a diagnosis.

Factor v Leiden and all else?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • September 16, 2010
  • 04:09 AM

I'm 21 years old and a few months ago (we've been doing all the crazy tests for
About a year now) but anyways a few months ago I bent over to pick up a laundry Basket and after feeling my heart get racey, and passed out. I came to with chest pains, and my whole left side was numb, and I couldn't see out of my left eye. I went to the emergency room and tests showed I suffered a heart attack, keeping in mind I'm 21... And no doctor can tell me why... Throughout this ordeal I have tested positive for factor v Leiden, and apparently my chest, lungs and even my brain have small "nodules" and "cysts" as it's noted in my chart, but noone will discuss these with me and noone will tell me anything other than to take asprin daily... I go blind in my left eye almost daily now, my body constantly hurts (sore muscles
Like I've done an intense workout) I lose feeling in my feet hands legs arms... Everything, especially when laying down...I have really bad lower back pains and head aches, I've gained weight like crazy, I get dizzy, I have chest pains and it feels like my heart is going to fly out of my chest. A year ago I felt so healthy and happy and now I'm miserable and it's starting to really tear me up that noone can give me any answers...i have always been active, I love the gym and I eat pretty healthy... I get shaky a lot
And my mouth gets watery...I've also started recently to become very clumsy
And forgetful... But the biggest thing is that it almost feels like I have little rubber bands squeezing on all my limbs.. Like there
Will be spots I feel and then spots that feel dead, and sometimes, my limbs
Will turn ghost white (usually starts by one toe Turing white while the rest are noticeably red)... Does anyone have any advice?

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1 Replies:

  • Find a good hemotologist. I have factor v Lieden which is a red blood cell disorder. I also have 2 other blood disorders.
    Anonymous 42,789 Replies
    • September 17, 2010
    • 03:22 AM
    • 0
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