I have suffered with facial numbness for over 18 months. I had trigeminal neuralgia initially along with numbness on the left side of face. My left side feels like my face is frozen leaving a dentist, my lips on the left side have a heightened sensitivity and feel prickly all the time. It hurts to eat if the food touches the inside of my lips. I had a MRI done which displayed some lesions, I was told possible MS..I had a spinal tap and the evoked potentials test...eye tests, blood tests, etc..another MRI..was told MS was ruled out but can't explain the numbness...the lesions could be the result that I suffer from chronic migraines for over 25 years.
I lool normal but not a second goes by that I don't feel abnormal. My face feel thick and tight, sometimes I feel like I am turning to stone. I can no longer give my loved one kisses and I find it too painful and a constant discomfort.
After 10 months seeing a neurologist followed by extensive testing at the MS clinic, I've been told to learn to live with my face. I bite my tongue and cheeks daily, I hate how I feel..can anyone give me some suggestions..what to do next..I really do need help.