Discussions By Condition: I cannot get a diagnosis.

Facial numbness, left side, 18 months

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: tbrix55
  • January 29, 2008
  • 04:13 AM

I have suffered with facial numbness for over 18 months. I had trigeminal neuralgia initially along with numbness on the left side of face. My left side feels like my face is frozen leaving a dentist, my lips on the left side have a heightened sensitivity and feel prickly all the time. It hurts to eat if the food touches the inside of my lips. I had a MRI done which displayed some lesions, I was told possible MS..I had a spinal tap and the evoked potentials test...eye tests, blood tests, etc..another MRI..was told MS was ruled out but can't explain the numbness...the lesions could be the result that I suffer from chronic migraines for over 25 years.

I lool normal but not a second goes by that I don't feel abnormal. My face feel thick and tight, sometimes I feel like I am turning to stone. I can no longer give my loved one kisses and I find it too painful and a constant discomfort.

After 10 months seeing a neurologist followed by extensive testing at the MS clinic, I've been told to learn to live with my face. I bite my tongue and cheeks daily, I hate how I feel..can anyone give me some suggestions..what to do next..I really do need help.

thanks kindly

Reply Flag this Discussion

3 Replies:

  • I hope they are giving you something for the pain. Also get a script for Lyrica. Or try a pain clinic. These meds are for trigeminal neuralgia. The goal of pharmacologic therapy is to reduce pain. Carbamazepine (Tegretol) is regarded as the most effective medical treatment. Additional agents that may benefit selected patients include phenytoin (Dilantin), baclofen, gabapentin (Neurontin), Trileptol and Klonazepin.
    rad-skw 1605 Replies
    • January 30, 2008
    • 01:26 PM
    • 0
    Flag this Response
  • try some acupuncture for it and see if that helps any...ideally, one who has an electric machine that hooks up to the needles giving you electric pulses during the treatment. It should help a bunch..
    Monsterlove 2921 Replies
    • January 30, 2008
    • 06:42 PM
    • 0
    Flag this Response
  • Bell's palsy?
    rad-skw 1605 Replies
    • February 1, 2008
    • 00:23 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.