Discussions By Condition: I cannot get a diagnosis.

Eye pain/burning

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: bobbyjane
  • December 8, 2009
  • 01:29 AM

My mom has had a constant sensation of burning eyes for the last 15 years. She has been to many specialists, had numerous tests, etc., to no avail. She has grown ever more frustrated and become increasingly despondent. In addition to the burning sensation, she says it feels like there is sand or something gritty in her eyes, and from time to time her eyes water profusely. She has had surgery to block her tearducts, and then another to unblock them. She has had the underside of her eyelids treated (?silver nitrate?). She also had a procedure to decrease the size of the opening of her eyes. She has been given numerous drops/ointments to use, Restasis among them, and nothing has helped. She has been given diagnoses of Sjogren's syndrome, keratoconjunctivitis, and blepharitis, treated for these, and with no resolution of her pain over the years. She had cataract surgery in one eye last year, contracted an infection and lost the site in that eye for a period of time but her vision is back though not fully. Her eye pain has not resolved. She continues to see her docs, but she gets the feeling that they think this is all in her head, so to speak, and she has grown resentful of them, especially when they tell her to "get a hobby." She would indeed be indulging in her many hobbies if her eyes did not always burn and hurt. Does anyone have suggestions for her?

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