Discussions By Condition: I cannot get a diagnosis.

Extreme Fatigue/Sleep Problems for past 7 years

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • December 5, 2009
  • 02:35 PM

Here are some of my problems:
-Extreme fatigue
-Insomnia along with a free rolling sleep cycle(I think this is because I just can't get enough sleep)
-Extreme Drowsiness 24/7
-Weight gain.
-Confusion & trouble concentrating.
-Repeated awakenings in the night(every 2 or 3 hours)
-Swelling in my left wrist & swollen ankles.
-Joint problems.
-Trouble breathing.
-Heart palpitations.

I started having these problems when I was just 15, I was a straight A student with perfect attendance when all of a sudden one day I just could not wake up and get ready for school anymore. I pushed myself to continue to go but eventually was told I was missing too much & to not bother coming back. I feel like I have not slept in 7 years. I used to work out at the gym everyday and now I still go about once or twice a week but cannot do more than 3 or 4 minutes of cardio max w/o having to take a break. I have no job & do not go to school, everything is very difficult for me. Here are the things I have been tested for:
-Thyroid problems(I saw an endocrinologist)
-Anemia(probably iron deficiency)
-Vitamin d deficiency
-Sleep apnea
-Diabetes Insipidus

I am currently working w/a sleep specialist. She thinks I have a genetic disorder, though the only one in my whole family, that causes a free rolling sleep cycle & she told me to take melatonin but it keeps me up all night. I know that doesn't make sense. I am going to see her again to discuss things further. I really need help but I feel like the doctors don't listen & think it's all in my head or it's not as big of a deal as it is. I know a lot about medicine, I've learned trying to figure what's wrong with me for the past 7 years. Right now I try and cope with my problems with caffeine when I wake up & 50 mg diphenyhdramine HCL when I go to sleep. It has helped a little but it is impossible to wake up & go to sleep at the same time everyday & has not helped my fatigue at all. If you have more questions for me please do ask. If I told you everything, I would need to write a book. I'm open to suggestion, please help.

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2 Replies:

  • i would look for some sort of kidney problemi m not sure about the extreme fatigue... but there are some symptoms consistent with kidney problems like glomerulonephritis. however i dont think its that because that wouldnt go on for 7 years however have your kidneys examined... as you cant tell there is something wrong with them till the end stages of renal failure... hope that leads you in a direction at least good luck Here are some of my problems:-Extreme fatigue-Insomnia along with a free rolling sleep cycle(I think this is because I just can't get enough sleep)-Extreme Drowsiness 24/7-Weight gain.-Confusion & trouble concentrating.-Repeated awakenings in the night(every 2 or 3 hours)-Swelling in my left wrist & swollen ankles.-Joint problems.-Trouble breathing.-Heart palpitations.I started having these problems when I was just 15, I was a straight A student with perfect attendance when all of a sudden one day I just could not wake up and get ready for school anymore. I pushed myself to continue to go but eventually was told I was missing too much & to not bother coming back. I feel like I have not slept in 7 years. I used to work out at the gym everyday and now I still go about once or twice a week but cannot do more than 3 or 4 minutes of cardio max w/o having to take a break. I have no job & do not go to school, everything is very difficult for me. Here are the things I have been tested for:-Thyroid problems(I saw an endocrinologist)-Anemia(probably iron deficiency)-Vitamin d deficiency-Sleep apnea-Diabetes InsipidusI am currently working w/a sleep specialist. She thinks I have a genetic disorder, though the only one in my whole family, that causes a free rolling sleep cycle & she told me to take melatonin but it keeps me up all night. I know that doesn't make sense. I am going to see her again to discuss things further. I really need help but I feel like the doctors don't listen & think it's all in my head or it's not as big of a deal as it is. I know a lot about medicine, I've learned trying to figure what's wrong with me for the past 7 years. Right now I try and cope with my problems with caffeine when I wake up & 50 mg diphenyhdramine HCL when I go to sleep. It has helped a little but it is impossible to wake up & go to sleep at the same time everyday & has not helped my fatigue at all. If you have more questions for me please do ask. If I told you everything, I would need to write a book. I'm open to suggestion, please help.
    Anonymous 42789 Replies
    • December 6, 2009
    • 05:23 AM
    • 0
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  • What about Lupus?? MS?? Both can cause strange symptoms and interrupt sleep patterns.Here are some of my problems:-Extreme fatigue-Insomnia along with a free rolling sleep cycle(I think this is because I just can't get enough sleep)-Extreme Drowsiness 24/7-Weight gain.-Confusion & trouble concentrating.-Repeated awakenings in the night(every 2 or 3 hours)-Swelling in my left wrist & swollen ankles.-Joint problems.-Trouble breathing.-Heart palpitations.I started having these problems when I was just 15, I was a straight A student with perfect attendance when all of a sudden one day I just could not wake up and get ready for school anymore. I pushed myself to continue to go but eventually was told I was missing too much & to not bother coming back. I feel like I have not slept in 7 years. I used to work out at the gym everyday and now I still go about once or twice a week but cannot do more than 3 or 4 minutes of cardio max w/o having to take a break. I have no job & do not go to school, everything is very difficult for me. Here are the things I have been tested for:-Thyroid problems(I saw an endocrinologist)-Anemia(probably iron deficiency)-Vitamin d deficiency-Sleep apnea-Diabetes InsipidusI am currently working w/a sleep specialist. She thinks I have a genetic disorder, though the only one in my whole family, that causes a free rolling sleep cycle & she told me to take melatonin but it keeps me up all night. I know that doesn't make sense. I am going to see her again to discuss things further. I really need help but I feel like the doctors don't listen & think it's all in my head or it's not as big of a deal as it is. I know a lot about medicine, I've learned trying to figure what's wrong with me for the past 7 years. Right now I try and cope with my problems with caffeine when I wake up & 50 mg diphenyhdramine HCL when I go to sleep. It has helped a little but it is impossible to wake up & go to sleep at the same time everyday & has not helped my fatigue at all. If you have more questions for me please do ask. If I told you everything, I would need to write a book. I'm open to suggestion, please help.
    Anonymous 42789 Replies
    • December 7, 2009
    • 07:13 AM
    • 0
    Flag this Response
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