I hope that someone can help me. I have physical problems bothering me for a long time.
The problems are that severe, that i can't work or even live a normal life.
Sorry if my English writing isn't great, i'm Dutch from origin.
Maybe someone can relate to some of my problems or can give me an advice what to do.
I'm a 31 old woman.
The problems i had in 2004/2005:
-Continious soreness/acidification in both arms and a bit in the legs. (Like you did an intense exercise and went over the edge.An Acidified feeling. )
-Strange sensations/ paresthesias.
Back then i was diagnosed with a severe vitamine D deficieny (< 5) and b12 deficiency (89). The cause for this deficiency has never been found.
Supplements were given. (And injections for the b12 deficiency.)
I had a MRI of my head (not the neck) and an EMG of the nerves in 2004. Both were ok/clean.
Between 2005 and 2008: I had above problems constantly , but slightly.
Never had the energy of a young woman though.
Problems were getting worse and worse in march 2008 till now:
-Acidified and tired/sorehead feeling of both arms (In rest and worse after activities). Sometimes extreme, sometimes just a bit, but it is never gone.
-An high tension of both arms (Mostly upperarms). As if a tensiometer on your arms is fully pumped up. (Mostly after activities such a driving a car)
The tension is so extreme sometimes that i long for a relieve in medication.
-Cramped feeling in arms when i lift the arms above the shoulders or holding them in one position for a while.
-Muscles in upperarms are hard.
-Skin/muscles of both arms are painfull when you do a massage.(Extreme tired/sorehead feeling of the arms afterwards.)
-Burning feeling in arms when the tension is high. (sometimes)
-The sensation that a muscle is rolling. (Had that once.)
-Cramped feeling when i need to do something with force. (peeling potatos, using a gamepad,wringing a towel.)
- I cannot write ordely anymore.
-When i touch something cold ( or cold water), my hands are getting very painfull. It's a intense cold feeling, like a cramp.
When my hands touch warm water after that, the tingling starts.
-Stiffness in standing and walking when i stand up out of a chair or when i stand up after i kneeled.
-Stiff rightlegg when i stand up out of a chair.(Needed to stretch,had that a few weeks.)
-Feeling of stiffness in legs (mostly upperlegs) when i walk. (As if there is a board fastened to my upperlegs.)
-Extreme tired feeling in legs after walking a while.
-Extreme Acidified feeling in legs when i walk up a few stairs.
-The feeling that i'm not grounded enough.
-Sometimes the feeling that i have magnets at the bottom of my legs.Upperlegs are stiff, the rest has a loose feeling.It's Hard to explain.I had that feeling also after a warm shower.
-My walk is not fluent/fluently.Bit stiff, unsteady and strange. (hard to explain.) I want to walk elegantly/ fluent, but i can't. My upperbody and hips are moving along while i walk sometimes.
-Slightly tingling/cotton-wool feeling in both feet.
-Tingling in shoulder (always on the left side)
-Extreme paresthesias when i get chills/ goose bumps.(Also when i sneeze) Mostly in the right leg, sometimes also in back,arms and left leg. It also feels like the skin is tight.(Also when i squat to sit.)
I can even provoke those sensations just by creating goose bumps.It sounds strange but the extreme paresthesias in my right leg are already created when i move my finger over the side of my abdomen.
-Sometimes tingling sensations in arms/legs.
-Sometimes a Buzzing/zoom feeling inside of my body.As if the muscles/nerves are twitching extreme rapidly or like a tremor.(When i stretch the muscles or after activities.)
-Feeling of electricity trough my left leg and sometimes elsewhere. (Short and just a few times. It was very intense. )
-Always extreme tired/fatigue. Getting worse after activities. 11/12 hours of sleep a day doesn't take the tiredness away, but makes it a bit tolerable.
-Always the (extreme) urge to lengthen/ stretch the muscles of my body when i stand up out of a chair.
-Diziness. Two times, it was dependable of how i was sitting or moving. I was even more fatigue and walked worse after that.
-My muscles are bigger/ hypertrophy. I have extreme developed muscles in arms and legs without doing anything.
-Extreme concentration problems.I think because of the tiredness.
-sore feeling in my eyes when i try to cry.
-Painfull feeling behind my eyes. (sometimes, but always a few days in a row.)
-My glands ache when i eat something sour.They are sensitive anyway.
-Twitching of muscles in arms and sometimes legs. (Daily, you can see them twitching sometimes.)
-No feelings of depression, anxiety, panic, stress.
-No sleeping problems.
Findings/diagnoses so far:
-Blood shows an abnormal kreatinine (between 90-100). Everything else is ok.(Vitamine D is a bit below norm.)
- Different scans and a operation show that my left kidney is almost completly damaged/ shriveled due to severe Endometriose.The Endometriose is present in peritoneum/through the whole abdomen and a part of my colon.
I have the medicine Zoladex as a treatment for the Endometriose.
-No Sarcoidose (lungs and blood are ok)
-Rheumatologist said that fibromyalgie isn't the cause of any of my problems.
-Neurologist did the standards tests and decided to do nothing further. There is no numbness,weakness,loss of feeling or failure of any extremity. But the tests were hard and it felt abnormal.
Holding my arms forwards gives a extreme acidified and tired feeling.
Diagnoses before 2004-
It´s a long story,sorry... but it´s no use when i´m telling just a bit of all the problems.
I really hope that someone can tell me anything that´s helpfull. I´m thinking about doing further scans myself, but maybe you have an idea.
Thanks a lot for reading this.
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