Discussions By Condition: I cannot get a diagnosis.

Extreme fatigue, muscle problems and paresthesia, please advice!

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: Anonymous
  • February 18, 2009
  • 05:37 PM

Hi,


I hope that someone can help me. I have physical problems bothering me for a long time.
The problems are that severe, that i can't work or even live a normal life.
Sorry if my English writing isn't great, i'm Dutch from origin.
Maybe someone can relate to some of my problems or can give me an advice what to do.
I'm a 31 old woman.

The problems i had in 2004/2005:

-Continious soreness/acidification in both arms and a bit in the legs. (Like you did an intense exercise and went over the edge.An Acidified feeling. )
-Extreme fatigue.
-Strange sensations/ paresthesias.

Back then i was diagnosed with a severe vitamine D deficieny (< 5) and b12 deficiency (89). The cause for this deficiency has never been found.
Supplements were given. (And injections for the b12 deficiency.)
I had a MRI of my head (not the neck) and an EMG of the nerves in 2004. Both were ok/clean.


Between 2005 and 2008: I had above problems constantly , but slightly.
Never had the energy of a young woman though.

Problems were getting worse and worse in march 2008 till now:

Arms:

-Acidified and tired/sorehead feeling of both arms (In rest and worse after activities). Sometimes extreme, sometimes just a bit, but it is never gone.
-An high tension of both arms (Mostly upperarms). As if a tensiometer on your arms is fully pumped up. (Mostly after activities such a driving a car)
The tension is so extreme sometimes that i long for a relieve in medication.
-Cramped feeling in arms when i lift the arms above the shoulders or holding them in one position for a while.
-Muscles in upperarms are hard.
-Skin/muscles of both arms are painfull when you do a massage.(Extreme tired/sorehead feeling of the arms afterwards.)
-Burning feeling in arms when the tension is high. (sometimes)
-The sensation that a muscle is rolling. (Had that once.)

Hands:

-Cramped feeling when i need to do something with force. (peeling potatos, using a gamepad,wringing a towel.)
- I cannot write ordely anymore.
-When i touch something cold ( or cold water), my hands are getting very painfull. It's a intense cold feeling, like a cramp.
When my hands touch warm water after that, the tingling starts.

Legs:

-Stiffness in standing and walking when i stand up out of a chair or when i stand up after i kneeled.
-Stiff rightlegg when i stand up out of a chair.(Needed to stretch,had that a few weeks.)
-Feeling of stiffness in legs (mostly upperlegs) when i walk. (As if there is a board fastened to my upperlegs.)
-Extreme tired feeling in legs after walking a while.
-Extreme Acidified feeling in legs when i walk up a few stairs.
-The feeling that i'm not grounded enough.
-Sometimes the feeling that i have magnets at the bottom of my legs.Upperlegs are stiff, the rest has a loose feeling.It's Hard to explain.I had that feeling also after a warm shower.
-My walk is not fluent/fluently.Bit stiff, unsteady and strange. (hard to explain.) I want to walk elegantly/ fluent, but i can't. My upperbody and hips are moving along while i walk sometimes.
-Slightly tingling/cotton-wool feeling in both feet.

Nerve symptoms;

-Tingling in shoulder (always on the left side)
-Extreme paresthesias when i get chills/ goose bumps.(Also when i sneeze) Mostly in the right leg, sometimes also in back,arms and left leg. It also feels like the skin is tight.(Also when i squat to sit.)
I can even provoke those sensations just by creating goose bumps.It sounds strange but the extreme paresthesias in my right leg are already created when i move my finger over the side of my abdomen.
-Sometimes tingling sensations in arms/legs.
-Sometimes a Buzzing/zoom feeling inside of my body.As if the muscles/nerves are twitching extreme rapidly or like a tremor.(When i stretch the muscles or after activities.)
-Feeling of electricity trough my left leg and sometimes elsewhere. (Short and just a few times. It was very intense. )

General:

-Always extreme tired/fatigue. Getting worse after activities. 11/12 hours of sleep a day doesn't take the tiredness away, but makes it a bit tolerable.
-Always the (extreme) urge to lengthen/ stretch the muscles of my body when i stand up out of a chair.
-Diziness. Two times, it was dependable of how i was sitting or moving. I was even more fatigue and walked worse after that.
-My muscles are bigger/ hypertrophy. I have extreme developed muscles in arms and legs without doing anything.
-Extreme concentration problems.I think because of the tiredness.
-sore feeling in my eyes when i try to cry.
-Painfull feeling behind my eyes. (sometimes, but always a few days in a row.)
-My glands ache when i eat something sour.They are sensitive anyway.
-Twitching of muscles in arms and sometimes legs. (Daily, you can see them twitching sometimes.)
-No feelings of depression, anxiety, panic, stress.
-No sleeping problems.

Findings/diagnoses so far:

-Blood shows an abnormal kreatinine (between 90-100). Everything else is ok.(Vitamine D is a bit below norm.)
- Different scans and a operation show that my left kidney is almost completly damaged/ shriveled due to severe Endometriose.The Endometriose is present in peritoneum/through the whole abdomen and a part of my colon.
I have the medicine Zoladex as a treatment for the Endometriose.
-No Sarcoidose (lungs and blood are ok)
-Rheumatologist said that fibromyalgie isn't the cause of any of my problems.
-Neurologist did the standards tests and decided to do nothing further. There is no numbness,weakness,loss of feeling or failure of any extremity. But the tests were hard and it felt abnormal.
Holding my arms forwards gives a extreme acidified and tired feeling.

Diagnoses before 2004-

-Pfeiffer.



It´s a long story,sorry... but it´s no use when i´m telling just a bit of all the problems.
I really hope that someone can tell me anything that´s helpfull. I´m thinking about doing further scans myself, but maybe you have an idea.
Thanks a lot for reading this.

Kind regards,

B.

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17 Replies:

  • You main symptom sounds like fatigue. You also have muscle involvement and hormonal involvement. This all points to one thing, IMO. They can treat your endometriosis, but if you aren't treated for EVERYTHING going on....you will never get well. You very likely have Chronic Fatigue Syndrome. IT is not as simple as it sounds. It is a dumb name for a syndrome of symptoms, but lets not labor on the name. For answers please see immunesupport.com and vitality101.com.It would help you immensely if you found a Dr. on the immunesupport site that would treat you. They use Dr. Teitlebaum's protocol. If you call their 1-800 # they will find the closest Dr. to you. If not, you can have phone conferences with them for "out of town treatment". GL, call the number and see what they have to say! I hope you find answers. http://www.immunesupport.com/library/images/7856_chartLarge.gif
    Anonymous 42789 Replies
    • February 19, 2009
    • 08:30 AM
    • 0
    Flag this Response
  • You main symptom sounds like fatigue. You also have muscle involvement and hormonal involvement. This all points to one thing, IMO. They can treat your endometriosis, but if you aren't treated for EVERYTHING going on....you will never get well. You very likely have Chronic Fatigue Syndrome. IT is not as simple as it sounds. It is a dumb name for a syndrome of symptoms, but lets not labor on the name. For answers please see immunesupport.com and vitality101.com.It would help you immensely if you found a Dr. on the immunesupport site that would treat you. They use Dr. Teitlebaum's protocol. If you call their 1-800 # they will find the closest Dr. to you. If not, you can have phone conferences with them for "out of town treatment". GL, call the number and see what they have to say! I hope you find answers. http://www.immunesupport.com/library/images/7856_chartLarge.gifHi V52,Thank you very much for your advice.CFS has crossed my mind, but the specialists never mentioned or ignored it.I will search for a doctor who is specialised in Chronique fatique syndrome.Thanks again.Kind regards,Gerbren.NB: I just noticed that i can't edit my thread.I liked to mention that i made a mistake. The feeling of electricity was present in the right leg (not the left as i wrote.) It's probably not important, but you never know. I made also a few mistakes in my writing (legg instead of leg for example), but ok.... you get the point. :)
    Anonymous 42789 Replies
    • February 19, 2009
    • 02:04 PM
    • 0
    Flag this Response
  • Hi,I hope that someone can help me. I have physical problems bothering me for a long time.The problems are that severe, that i can't work or even live a normal life.Sorry if my English writing isn't great, i'm Dutch from origin.Maybe someone can relate to some of my problems or can give me an advice what to do.I'm a 31 old woman.The problems i had in 2004/2005: -Continious soreness/acidification in both arms and a bit in the legs. (Like you did an intense exercise and went over the edge.An Acidified feeling. )-Extreme fatigue.-Strange sensations/ paresthesias.Back then i was diagnosed with a severe vitamine D deficieny (Supplements were given. (And injections for the b12 deficiency.)I had a MRI of my head (not the neck) and an EMG of the nerves in 2004. Both were ok/clean.Between 2005 and 2008: I had above problems constantly , but slightly.Never had the energy of a young woman though.Problems were getting worse and worse in march 2008 till now:Arms:-Acidified and tired/sorehead feeling of both arms (In rest and worse after activities). Sometimes extreme, sometimes just a bit, but it is never gone.-An high tension of both arms (Mostly upperarms). As if a tensiometer on your arms is fully pumped up. (Mostly after activities such a driving a car) The tension is so extreme sometimes that i long for a relieve in medication.-Cramped feeling in arms when i lift the arms above the shoulders or holding them in one position for a while.-Muscles in upperarms are hard.-Skin/muscles of both arms are painfull when you do a massage.(Extreme tired/sorehead feeling of the arms afterwards.)-Burning feeling in arms when the tension is high. (sometimes) -The sensation that a muscle is rolling. (Had that once.)Hands: -Cramped feeling when i need to do something with force. (peeling potatos, using a gamepad,wringing a towel.)- I cannot write ordely anymore.-When i touch something cold ( or cold water), my hands are getting very painfull. It's a intense cold feeling, like a cramp.When my hands touch warm water after that, the tingling starts. Legs:-Stiffness in standing and walking when i stand up out of a chair or when i stand up after i kneeled.-Stiff rightlegg when i stand up out of a chair.(Needed to stretch,had that a few weeks.)-Feeling of stiffness in legs (mostly upperlegs) when i walk. (As if there is a board fastened to my upperlegs.)-Extreme tired feeling in legs after walking a while.-Extreme Acidified feeling in legs when i walk up a few stairs.-The feeling that i'm not grounded enough. -Sometimes the feeling that i have magnets at the bottom of my legs.Upperlegs are stiff, the rest has a loose feeling.It's Hard to explain.I had that feeling also after a warm shower.-My walk is not fluent/fluently.Bit stiff, unsteady and strange. (hard to explain.) I want to walk elegantly/ fluent, but i can't. My upperbody and hips are moving along while i walk sometimes. -Slightly tingling/cotton-wool feeling in both feet. Nerve symptoms;-Tingling in shoulder (always on the left side)-Extreme paresthesias when i get chills/ goose bumps.(Also when i sneeze) Mostly in the right leg, sometimes also in back,arms and left leg. It also feels like the skin is tight.(Also when i squat to sit.)I can even provoke those sensations just by creating goose bumps.It sounds strange but the extreme paresthesias in my right leg are already created when i move my finger over the side of my abdomen.-Sometimes tingling sensations in arms/legs.-Sometimes a Buzzing/zoom feeling inside of my body.As if the muscles/nerves are twitching extreme rapidly or like a tremor.(When i stretch the muscles or after activities.)-Feeling of electricity trough my left leg and sometimes elsewhere. (Short and just a few times. It was very intense. ) General: -Always extreme tired/fatigue. Getting worse after activities. 11/12 hours of sleep a day doesn't take the tiredness away, but makes it a bit tolerable.-Always the (extreme) urge to lengthen/ stretch the muscles of my body when i stand up out of a chair.-Diziness. Two times, it was dependable of how i was sitting or moving. I was even more fatigue and walked worse after that. -My muscles are bigger/ hypertrophy. I have extreme developed muscles in arms and legs without doing anything. -Extreme concentration problems.I think because of the tiredness.-sore feeling in my eyes when i try to cry.-Painfull feeling behind my eyes. (sometimes, but always a few days in a row.)-My glands ache when i eat something sour.They are sensitive anyway.-Twitching of muscles in arms and sometimes legs. (Daily, you can see them twitching sometimes.)-No feelings of depression, anxiety, panic, stress.-No sleeping problems. Findings/diagnoses so far:-Blood shows an abnormal kreatinine (between 90-100). Everything else is ok.(Vitamine D is a bit below norm.)- Different scans and a operation show that my left kidney is almost completly damaged/ shriveled due to severe Endometriose.The Endometriose is present in peritoneum/through the whole abdomen and a part of my colon.I have the medicine Zoladex as a treatment for the Endometriose.-No Sarcoidose (lungs and blood are ok) -Rheumatologist said that fibromyalgie isn't the cause of any of my problems.-Neurologist did the standards tests and decided to do nothing further. There is no numbness,weakness,loss of feeling or failure of any extremity. But the tests were hard and it felt abnormal.Holding my arms forwards gives a extreme acidified and tired feeling.Diagnoses before 2004--Pfeiffer.It´s a long story,sorry... but it´s no use when i´m telling just a bit of all the problems.I really hope that someone can tell me anything that´s helpfull. I´m thinking about doing further scans myself, but maybe you have an idea.Thanks a lot for reading this. Kind regards,B.the muscle cramping sounds alot what i have called dystonia. same with the vibrations, tingling sensation, weakness and twitching. have you ever heard of it before? and the shocklike sensations you have... if you find out what it is, you should repost the answer, because i am also looking for the answer to why it feels like im hooked up to a car battery.
    Anonymous 42789 Replies
    • February 19, 2009
    • 07:50 PM
    • 0
    Flag this Response
  • Sounds like some of the symptoms are from neck/cervical problems. Do you have stenosis or disc problems? Also, carpal tunnel syndrome or nerve impingement. Have you seen an orthopedic doctor?
    rad-skw 1605 Replies
    • February 20, 2009
    • 00:07 PM
    • 0
    Flag this Response
  • Hi,Thank you all very much for the replies.Rar: I didn't know that tingling sensations and twitching of the muscles are symptomes of Dystonia. What exactly do you mean with vibrations?I read about Dystonia because of the muscle problems i have,but i don't have any contractures or actual cramp. It's more a cramp feeling. (Like you lifted something a bit too long and your arms get really tired/Acidified.)I will keep 'Dystonia' in mind when i talk to a doctor. And i will let you know if i got any answers about the shocklike sensations.Thanks.Blaze: Some people are sensitive to electromagnetic radiation, i believe that... but, i don't think that it explains my problems. Well,i need to know first if there is a physical problem.Electromagnetic radiation isn't a positive influence though, to no one i quess.About the high tension of my arms after activities such a driving a car. I mean by that that the tension of my arms increase due to the position of my arms when i'm holding the steering-wheel.(It's not the car itself that's the problem.)Thanks for the reply. :)Rad-Skw: I also thought about neck/cervical problems because of the paresthesias, but then again, paresthesias can be the cause of so many things.I did not visit an orthopedic doctor yet.Thanks for the advice.I simply cannot find a direct clue to what's going on. Well...the doctors can't find a starting point to look further,so why should i.I can't give up looking for an answer though, my life is a mess due to how i'm feeling.My symptomes are so clearly present and a handicap.I wish all of my symptomes were obvious connected to something minor that's good treatable. There is not one disease that can explain my symptomes. At least not clearly.If anyone has more ideas or can relate to my symptomes, please feel free to reply.Thanks. Kind regards,B.M
    Anonymous 42789 Replies
    • February 20, 2009
    • 02:32 PM
    • 0
    Flag this Response
  • Anyone else who has an idea, advice or can relate to my symptoms?Thanks. B.M
    Anonymous 42789 Replies
    • February 28, 2009
    • 02:26 AM
    • 0
    Flag this Response
  • You have all the same symptoms then me. I have lyme disease, chronic lyme disease. Am 25 and did not remebered a tick bite (50% do) Look the symptoms on www.canlyme.com you will be::eek: That are all your symtoms. I was very sick like you, no dr told me I had this before I went see a Dr who knew about chronic lyme and got diagnosed and treated. To be efficacely treated for lyme, you must seek help from a ''lyme literate doctor''. They are doing the good tests (standard test is not accurate) and will treat you properly, you need long term treatment. To find a doctor and more opinions, go on ''lymenet'' They will guide you. For more informations about the situation, why your normal dr can not treat you, do this on google:''Attorney general Connecticut lyme'' You can also read the book ''coping with lyme disease'' forwared by Andy McDonell. But before all this, seek help for a llmd. I have b12 defiency too, i have thiroid problems too....lyme disease bacterias and associated infections make a big puzzle in ur body. That is weird I know, but that is real...:( I know this is all new, but that is the biggest epidemic in ur country and it is really dangerous. Oprah will doing a show really soon about that situation and the movie ''under our skin'', look at that on youtiube and on googe. But don't freak, you're at the right moment to get better. Give news ok.
    Fannou 111 Replies
    • February 28, 2009
    • 04:49 AM
    • 0
    Flag this Response
  • You have all the same symptoms then me. I have lyme disease, chronic lyme disease. Am 25 and did not remebered a tick bite (50% do) Look the symptoms on www.canlyme.com you will be::eek: That are all your symtoms. I was very sick like you, no dr told me I had this before I went see a Dr who knew about chronic lyme and got diagnosed and treated. To be efficacely treated for lyme, you must seek help from a ''lyme literate doctor''. They are doing the good tests (standard test is not accurate) and will treat you properly, you need long term treatment. To find a doctor and more opinions, go on ''lymenet'' They will guide you. For more informations about the situation, why your normal dr can not treat you, do this on google:''Attorney general Connecticut lyme'' You can also read the book ''coping with lyme disease'' forwared by Andy McDonell. But before all this, seek help for a llmd. I have b12 defiency too, i have thiroid problems too....lyme disease bacterias and associated infections make a big puzzle in ur body. That is weird I know, but that is real...:( I know this is all new, but that is the biggest epidemic in ur country and it is really dangerous. Oprah will doing a show really soon about that situation and the movie ''under our skin'', look at that on youtiube and on googe. But don't freak, you're at the right moment to get better. Give news ok.Hi Fannou,Thank you so much for your reply.It is really helpfull. My local doctor did a standard Lyme test about 4/5 years ago... that was when i started to have paresthesias and extreme fatique. The test was negative, so i haven't payed much attention to Lyme after that test. I read about Lyme a while ago, also about the fact that the standard test aren't that reliable. (That was after i did the standard test.) I thought about doing a different Lymetest,but then i felt a bit less fatique in 2006, i forgot about it and went on. I know i had a strange red rash when i was a kid. I was playing alot in the woods/ nature when i was a child. My parents did not understand where the mark/rash came from. It was visible for weeks i quess. I have a picture of that rash, my parents took the photo back then. I think i was about 7 years old. Could it be that i was infected as a child? I thought about that rash a few times, but hey... what to think of it.The symptoms i have are so a-specific.You made me aware that it could be Lyme. You say you have the same symptoms, and i thought about the rash again.I will take a test soon. I'll let you know.And... i wish you te best, Lyme is an awful disease.Kind regards,B.M
    Anonymous 42789 Replies
    • February 28, 2009
    • 05:31 PM
    • 0
    Flag this Response
  • Hi, I hope that someone can help me. I have physical problems bothering me for a long time.The problems are that severe, that i can't work or even live a normal life.Sorry if my English writing isn't great, i'm Dutch from origin.Maybe someone can relate to some of my problems or can give me an advice what to do.I'm a 31 old woman. The problems i had in 2004/2005: -Continious soreness/acidification in both arms and a bit in the legs. (Like you did an intense exercise and went over the edge.An Acidified feeling. )-Extreme fatigue.-Strange sensations/ paresthesias. Back then i was diagnosed with a severe vitamine D deficieny (Supplements were given. (And injections for the b12 deficiency.)I had a MRI of my head (not the neck) and an EMG of the nerves in 2004. Both were ok/clean. Between 2005 and 2008: I had above problems constantly , but slightly.Never had the energy of a young woman though. Problems were getting worse and worse in march 2008 till now: Arms: -Acidified and tired/sorehead feeling of both arms (In rest and worse after activities). Sometimes extreme, sometimes just a bit, but it is never gone.-An high tension of both arms (Mostly upperarms). As if a tensiometer on your arms is fully pumped up. (Mostly after activities such a driving a car) The tension is so extreme sometimes that i long for a relieve in medication.-Cramped feeling in arms when i lift the arms above the shoulders or holding them in one position for a while.-Muscles in upperarms are hard.-Skin/muscles of both arms are painfull when you do a massage.(Extreme tired/sorehead feeling of the arms afterwards.)-Burning feeling in arms when the tension is high. (sometimes) -The sensation that a muscle is rolling. (Had that once.) Hands: -Cramped feeling when i need to do something with force. (peeling potatos, using a gamepad,wringing a towel.)- I cannot write ordely anymore.-When i touch something cold ( or cold water), my hands are getting very painfull. It's a intense cold feeling, like a cramp.When my hands touch warm water after that, the tingling starts. Legs: -Stiffness in standing and walking when i stand up out of a chair or when i stand up after i kneeled.-Stiff rightlegg when i stand up out of a chair.(Needed to stretch,had that a few weeks.)-Feeling of stiffness in legs (mostly upperlegs) when i walk. (As if there is a board fastened to my upperlegs.)-Extreme tired feeling in legs after walking a while.-Extreme Acidified feeling in legs when i walk up a few stairs.-The feeling that i'm not grounded enough. -Sometimes the feeling that i have magnets at the bottom of my legs.Upperlegs are stiff, the rest has a loose feeling.It's Hard to explain.I had that feeling also after a warm shower.-My walk is not fluent/fluently.Bit stiff, unsteady and strange. (hard to explain.) I want to walk elegantly/ fluent, but i can't. My upperbody and hips are moving along while i walk sometimes. -Slightly tingling/cotton-wool feeling in both feet. Nerve symptoms; -Tingling in shoulder (always on the left side)-Extreme paresthesias when i get chills/ goose bumps.(Also when i sneeze) Mostly in the right leg, sometimes also in back,arms and left leg. It also feels like the skin is tight.(Also when i squat to sit.)I can even provoke those sensations just by creating goose bumps.It sounds strange but the extreme paresthesias in my right leg are already created when i move my finger over the side of my abdomen.-Sometimes tingling sensations in arms/legs.-Sometimes a Buzzing/zoom feeling inside of my body.As if the muscles/nerves are twitching extreme rapidly or like a tremor.(When i stretch the muscles or after activities.)-Feeling of electricity trough my left leg and sometimes elsewhere. (Short and just a few times. It was very intense. ) General: -Always extreme tired/fatigue. Getting worse after activities. 11/12 hours of sleep a day doesn't take the tiredness away, but makes it a bit tolerable.-Always the (extreme) urge to lengthen/ stretch the muscles of my body when i stand up out of a chair.-Diziness. Two times, it was dependable of how i was sitting or moving. I was even more fatigue and walked worse after that. -My muscles are bigger/ hypertrophy. I have extreme developed muscles in arms and legs without doing anything. -Extreme concentration problems.I think because of the tiredness.-sore feeling in my eyes when i try to cry.-Painfull feeling behind my eyes. (sometimes, but always a few days in a row.)-My glands ache when i eat something sour.They are sensitive anyway.-Twitching of muscles in arms and sometimes legs. (Daily, you can see them twitching sometimes.)-No feelings of depression, anxiety, panic, stress.-No sleeping problems. Findings/diagnoses so far: -Blood shows an abnormal kreatinine (between 90-100). Everything else is ok.(Vitamine D is a bit below norm.)- Different scans and a operation show that my left kidney is almost completly damaged/ shriveled due to severe Endometriose.The Endometriose is present in peritoneum/through the whole abdomen and a part of my colon.I have the medicine Zoladex as a treatment for the Endometriose.-No Sarcoidose (lungs and blood are ok) -Rheumatologist said that fibromyalgie isn't the cause of any of my problems.-Neurologist did the standards tests and decided to do nothing further. There is no numbness,weakness,loss of feeling or failure of any extremity. But the tests were hard and it felt abnormal.Holding my arms forwards gives a extreme acidified and tired feeling. Diagnoses before 2004- -Pfeiffer. It´s a long story,sorry... but it´s no use when i´m telling just a bit of all the problems.I really hope that someone can tell me anything that´s helpfull. I´m thinking about doing further scans myself, but maybe you have an idea.Thanks a lot for reading this. Kind regards, B. Hi B.M., Considering that you have an outrageously low serum b12 level, 89, and had partial response to injections and have virtually all your symptoms are part of b12 deficiency, the answer is very clear.http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=174 Come on over to the b12 deficiency forum and learn how to treat b12 deficiency with the natural active in humans forms of b12 available. These active forms are about 100 to 10,000 times more effective than the inactive forms of b12 given in the usual injections. Those may keep a person alive but rarely result in outright healing of dozens or hundreds of symptoms. If you would really like to get better, come on over and talk to folks who are doing so. CFS/FMS/ME and that whole business are totally irrelevant to this as they are all subsets of b12 deficiency symptoms and respoind the the exact same set of nutriants. We have a reasonably complete list of symptoms to compare to and the full set of specific nutrients and the brands that actually are effective over there. You already know the problem, so let's fix it properly.
    Freddd 3576 Replies
    • February 28, 2009
    • 08:24 PM
    • 0
    Flag this Response
  • I am very that I helped you!That made my day:) Did you understand that you must find a specialist in your area to be well tested and diagnosed? Did u go on lymenet? Yeah, this rash can just be lyme, but that doesn't mean you were not effected more to get more sick. Maby you got other bite you did not see and got co-infections with it. Ticks are everywhere, not only in the wood and very easy to miss. I got infected often too until I crashed like I did. Yes, I do have the same symptoms then you. All. Here are my advices: -Go on lymenet and canlyme to find help and informations -Take probiotics, magnesium, complex B, omega 3...you ll get more with good info (see treatment on canlyme)-diet: -no sugar -no gluten -no yeast -a lot of water and green tea -a lot of green vegetable, raw ++ -Caseine free is an advice as not all specialist suggest it Byebye! You will get better!!:)-
    Fannou 111 Replies
    • February 28, 2009
    • 11:13 PM
    • 0
    Flag this Response
  • If it has been a while since your last MRI I would see about getting another one, and also one of your spinal cord. Vitamin D deficiencies are typically found in many patients with MS. Also note that MRIs can been clean for sometime. Not to scare you but if its been a while I would try find a good neuro, easier said that done sometimes, and have then them run more test.Just make sure to supplement their expertise with your own research. Alot of test are not 100% so if you test negative on something it doesn't always rule it out.I wish the the best. Hopefully you will a "House" type doctor ;)
    tony79 6 Replies Flag this Response
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  • Hi,Thanks again for the replies.Freddd: I had a cure of hydrocobalamine injections in 2004 when i was diagnosed with the B12 deficiency. (2 ampoules each three days for a month.) That was it, no follow up bloodtests or attention to it by my local doctor. I had another 2 injections in 2007, when i went to the doctor because of the fatique. (At my request.)My latest vitamine B12 value was about 190.(About a year ago, when i went to the doctor again because of the fatique.)I know a lot of symptoms are related to b12 deficiency, but none of my doctors in 2008/ 2009 did a new test or payed attention to my deficiency.The 2 bloodtests for b12 in 2007/2008 were at my request, how odd is that?Doctors totally ignore the impact of b12 and Vitamine D deficiency. (Well... in Holland). None of my doctors said one word about it and i've seen a lot of them the last 6 months. The occupational physician at my work-who i have spoken a week ago- is the first to mention the importance of bloodtests for b12 and vitamine D. The occupational physician said that i need bloodtests for B12 and vitamine D each 3 months.I know the bloodtests are important, but what to do when doctors accept the value of 190 and completly ignore it as the possible cause of my symptoms.I could have mentioned it again to the doctors, but i already know the answer. I will take another bloodtest soon, i let you know what the value is. Thanks a lot for the advice.(NB: I'm not sure if all the data is correct (When the injections were given). My memory is a bit blurr these days. )Fannou... i found a good laboratory to do the bloodtest, but i'm not sure if i need to sent the bloodsample to them or if it's possible to visit them for the test. I'm gonna sent them an e-mail with questions about that.I'm going to watch a documentary about Lyme disease tonight and i will search for more information.(Lymenet and a specialist in Lyme disease.)I also talked to my parents about the rash i had as a kid. My parents that said it wasn't a rash, it was some sort of wound. And i was about 2 years old, not 7. :)Thanks again for the help and advices!Tony79: Thanks for the reply. I'm thinking about doing a total bodyscan in Germany. The bodyscan includes an MRI of the brain, neck and back. I'm also thinking about doing the bloodtests and scan at once. Its a lot of money, but then again... something need to be done. Doctors ignore my problems, so i need to take action on my own.Thank you, and i will let you know if i have new information.Kind regards,B.M
    Anonymous 42789 Replies Flag this Response
  • Hi B.M The good lab to test is IGenex. The documentary is ''Under Our Skin''The specialist are the ones that can well analyse your test, if you did already ask a dr to receive it, ask him to give u a copy even if he tells it is negative ok. Keep this copy, and do the others things you said. That is great. Good luck.
    Fannou 111 Replies Flag this Response
  • Hi, Thanks again for the replies. Freddd: I had a cure of hydrocobalamine injections in 2004 when i was diagnosed with the B12 deficiency. (2 ampoules each three days for a month.) That was it, no follow up bloodtests or attention to it by my local doctor. I had another 2 injections in 2007, when i went to the doctor because of the fatique. (At my request.)My latest vitamine B12 value was about 190.(About a year ago, when i went to the doctor again because of the fatique.)I know a lot of symptoms are related to b12 deficiency, but none of my doctors in 2008/ 2009 did a new test or payed attention to my deficiency.The 2 bloodtests for b12 in 2007/2008 were at my request, how odd is that?Doctors totally ignore the impact of b12 and Vitamine D deficiency. (Well... in Holland). None of my doctors said one word about it and i've seen a lot of them the last 6 months. The occupational physician at my work-who i have spoken a week ago- is the first to mention the importance of bloodtests for b12 and vitamine D. The occupational physician said that i need bloodtests for B12 and vitamine D each 3 months.I know the bloodtests are important, but what to do when doctors accept the value of 190 and completly ignore it as the possible cause of my symptoms.I could have mentioned it again to the doctors, but i already know the answer. I will take another bloodtest soon, i let you know what the value is. Thanks a lot for the advice.(NB: I'm not sure if all the data is correct (When the injections were given). My memory is a bit blurr these days. ) Fannou... i found a good laboratory to do the bloodtest, but i'm not sure if i need to sent the bloodsample to them or if it's possible to visit them for the test. I'm gonna sent them an e-mail with questions about that.I'm going to watch a documentary about Lyme disease tonight and i will search for more information.(Lymenet and a specialist in Lyme disease.)I also talked to my parents about the rash i had as a kid. My parents that said it wasn't a rash, it was some sort of wound. And i was about 2 years old, not 7. :)Thanks again for the help and advices! Tony79: Thanks for the reply. I'm thinking about doing a total bodyscan in Germany. The bodyscan includes an MRI of the brain, neck and back. I'm also thinking about doing the bloodtests and scan at once. Its a lot of money, but then again... something need to be done. Doctors ignore my problems, so i need to take action on my own. Thank you, and i will let you know if i have new information. Kind regards, B.M A few injections of b12 is no cure and 190 is terribly low. You have b12 deficiency no matter what else is going on. Extreme fatigue is a result of b12 deficiency. If you want to start feelong better within days come on over to the b12 forum and we will help you buy the brands that work of rhe two active b12s that work with a techniques that work and the required cofactors. The longer you wait the worse it gets. What are you waiting for? The docs don't know what they are taliking about on this.
    Freddd 3576 Replies Flag this Response
  • Thanks again Fannou and Freddd, i will take action.I'll keep you informed.Kind regards,B.M
    Anonymous 42789 Replies Flag this Response
  • Thanks again Fannou and Freddd, i will take action.I'll keep you informed.Kind regards,B.MCan you post a link to the vitamin b12 forum, I can't find it. Thanks
    Anonymous 42789 Replies
    • September 30, 2009
    • 05:55 PM
    • 0
    Flag this Response
  • Can you post a link to the vitamin b12 forum, I can't find it. Thanks http://forums.wrongdiagnosis.com/showthread.php?p=198493#post198493
    Freddd 3576 Replies
    • September 30, 2009
    • 10:05 PM
    • 0
    Flag this Response
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