Discussions By Condition: I cannot get a diagnosis.

Extreme fatigue/mental fogginess

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: toniinindiana
  • July 21, 2008
  • 05:36 AM

Hello everyone! I am despirate for any answers or suggestions you all can give me.
I'm 34 yrs old. I am experiencing extreme fatuge that can hit me in an instant. It hits me durring the day with no warning. I have enough rest and I eat enough. It is so bad that i feel like i'm going to pass out. Like my head weighs 50lbs. I also experience mental foggyness, forgetfulness, and lightheadedness. I have been told that i have thick blood. I had a blood clot 2yrs ago and when they tried to thin my blood with Warfin, it never worked, no matter how much they upped the dose.
A brand new symptom is that my ankles and feet have been swelling almost every night. My lower half becomes painful and heavy.
Anyone with any suggestions, please help. I have seen my cardiologist several times and spent time in the hosp, but I always leave with no answers. They are baffled. If is helps narrow things down, they have done an MRI of my brain, echo cardiograms, dopplers on my legs, urine tests, blood tests... and still, no idea what is causing all of this.
Thank you for reading this.
Toni in Indiana

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14 Replies:

  • You need to find out exactly what the doctors mean when they say "thick blood." It sounds like you have a genetic condition, maybe something called Factor V Leiden, but it could be other things. A geneticist can help you nail it down if you don't have a diagnosis from your cardiology team. Here's info on Factor V Leiden, but remember, this is only one of the more common blood clotting problems and it may not be what you have: http://ghr.nlm.nih.gov/condition=factorvleidenthrombophilia
    aquila 1263 Replies Flag this Response
  • It also sounds like you may have Epstein Barr virus at the moment which would be unrelated to your blood problems. There is a simple blood test for it. The edema (ankle swelling) is troubling though. Definitely get back in touch with your Cardiologist if this is new. Also, you might want to find an Infectious Disease Dr.
    dizzy lizzie 192 Replies Flag this Response
  • Please check back with a specialist as the swelling in the legs is not a good sign
    Anonymous 42789 Replies Flag this Response
  • I have been told that i have thick blood. hypercoagulation .. is it Antiphospholipid Antibody Syndrome (APS)?? (also i think called Hugh's syndrome.. i may be spelling it wrongly). I am experiencing extreme fatuge that can hit me in an instant. It hits me durring the day with no warning. I have enough rest and I eat enough. It is so bad that i feel like i'm going to pass out. Like my head weighs 50lbs. I also experience mental foggyness, forgetfulness, and lightheadedness. Those symptoms can happen in people with chronic fatigue syndrome (CFS). 75-92%+ of people with CFS have an hypercoagulation issue, Antiphospholipid Antibody Syndrome.
    taniaaust1 2267 Replies Flag this Response
  • Seriously get check for OI (orthostatic Intollerance)!!!!!! Here are SOME of the symptoms:Excessive FatigueExercise IntoleranceRecurrent Syncope or Near Syncope (passing out)DizzinessNauseaAnxietyTachycardiaPalpitationsVisual DisturbancesBlurred Vision Tunnel VisionGraying OutTremulusnessWeakness - most noticeable in the legsChest DiscomfortShortness of BreathMood SwingsMigraines and Other HeadachesGastrointestinal Problems
    aliceanna 41 Replies Flag this Response
  • These symptoms are typical for candida yeast overgrowth..The problem is that it's almost impossible to correctly diganose medically - which is why most doctors don't deal with it. Often when "Drs are baffled", that's what it is. (Most people have it to some degree, but we manifest different symptoms.) Live blood cell micoscropy can acurately identify yeast in the blood because you can SEE it there.. I wrote an article about it for my clients, so if you want a copy you can email me at freehelp99@yahoo.com There are also some links to informative sites on it - you can see what you think..Karen
    Kinesiologist 62 Replies Flag this Response
  • Thank you all very much for the information. My doc said there is a strong chance that I have chronic fatigue. We tested for diabetes, thyroid probs, and other things and all came back just fine. She even used the word "perfect". Unfortunately, with chronic fatigue you have to basically eliminate everything else before you can be diagnosed with it. Thanks again and I'll keep you posted on any further news.
    toniinindiana 1 Replies Flag this Response
  • Hi Toni,Good to have some kind of diagnosis! This confirms the candida connection because it goes hand in hand with CFS. I've worked with them both a lot, and never seen anyone with CFS (or Fibromyalgia) who does not have a major candida yeast imbalance somewhere in the body, but it always starts in the digestive tract (80% of the immune system is in the digestive tract.). We get it from anything that stresses the immune system - anti biotics, the pill, other medications, environmental stress, heavy metals (metal fillings), hormone changes, high sugar/carb diet... It IS quite easy to deal with..you just need to focus on an anti-candida diet and some supplements you can pick up at most health food stores (Research has shown that it's important to take something to kill the yeast as well as doing the diet because it can adapt to low sugars.) Some doctors may prescribe anti fungal medications, but I have done it successfully without. I've done some research for you regarding your symptoms, CFS, and candida...It's important to be aware of the connection..here are some links and info.. http://www.life-enthusiast.com/amino/candida.htm(exerpt under “candida and your pancreas”) Finally, this water brings your blood to the correct viscosity (consistency) necessary to flow through your system. Without this extra water half an hour prior to taking food - especially if it is made up of fat or protein - your blood might be too thick to flow easily through your circulatory system, which is a problem you certainly want to avoid”http://www.candidafree.net/Freehelp99@yahoo.com (exerpt from my article – source Brenda Watson ND) The yeast produces more than 70 toxins, Over time the candida changes from a yeast form, to a fungus, which creates a waste called “mycotoxins”. An acidic by-product of the mycotoxins is acetaldehyde – a poison that is converted by the liver into alcohol. This is why some of the symptoms of candida simulate symptoms associated with intoxication from alcohol, such as “brain fog”, poor co-ordination, and blurred vision. Candidiasis Syndrome and Chronic Fatigue Syndromepresented by Dr. Carol Jessop at the Chronic Fatigue Syndrome Conference, April 15, 1989. This was a report of anti-candida therapy on 1100 patients presenting symptoms of Chronic Fatigue Syndrome, Irritabel Bowel Syndrome, headaches, allergic disorders, emotional disturbances (depression, panica attacks, irritability, and anxiety), etc.After 3 to 12 months of treatment with ketoconazol and a no sugar, no alcohol diet, a major reduction in symptoms was seen in 84% of the patients. "In September of 1987, 685 of the 1100 patients were on disability; in April of 1989, only 12 of the 1100 were on disability." http://www.cfs-recovery.org/docdarren2.html http://www.drcranton.com/yeast.htmhttp://www.candidadoctor.com/articles.html (click “candida and chronic fatigue”)http://www.nutritionhelp.com/http://vids.myspace.com/index.cfm?fuseaction=vids.individual&videoid=22406484&searchid=d0e1c5f3-2c7d-42db-9c69-29cb118f3c17 video with MD who has worked with candida/chronic fatigue for yearshttp://www.newlifevitamins.com/threelac_testimonials.shtml This woman mentions severe water retention in ankles (from candida) being gone after using “Three Lac” (which I have never used), which the MD in the video recommends.http://www.cfidsinsights.com/cfidlk01.htm#Part6 I know of a kinesiologiest colleague in St Joe Indiana, if that's anywhere near you...Karen freehelp99@yahoo.com
    Kinesiologist 62 Replies Flag this Response
  • Thank you all very much for the information. My doc said there is a strong chance that I have chronic fatigue. We tested for diabetes, thyroid probs, and other things and all came back just fine. She even used the word "perfect". Unfortunately, with chronic fatigue you have to basically eliminate everything else before you can be diagnosed with it. Thanks again and I'll keep you posted on any further news. "chronic fatigue" and "chronic fatigue syndrome" are two completely different things.. chronic fatigue is just long standing fatigue.. where as chronic fatigue syndrome is an illness which affects so many systems in the body.. and probably an issue happening within the cells themselves. it helps others to differentiate if you yourself start calling your issue by the correct name (or others will trivialise what you are going throu). If you have CFS (chronic fatigue syndrome).. it can sometimes be important to find yourself someone who specialises in this disorder as it IS a MAJOR disorder and so many body systems can go wrong so may need treatment (a normal doctor who dont specialise in this illness wont know what to keep on eye on). You may also end up on disability so need someone to back up that kind of claim. A CFS specialist is likely to run many more tests on you which could show things eg many with CFS have vitamin D deficiency as our bodies cant convert D2 to D3 (active form of D3) etc etc.. so need to take D3 supplements. (ive nearly got a severe deficiency due to the CFS... hospital had to give me a mega dose of Vit D the other day.. 50 000 IUs instead of 2000). A CFS specialist will also think of others things which should be ruled out which normal GPs dont think of...
    taniaaust1 2267 Replies Flag this Response
  • "chronic fatigue" and "chronic fatigue syndrome" are two completely different things.. chronic fatigue is just long standing fatigue.. where as chronic fatigue syndrome is an illness which affects so many systems in the body.. and probably an issue happening within the cells themselves. it helps others to differentiate if you yourself start calling your issue by the correct name (or others will trivialise what you are going throu). If you have CFS (chronic fatigue syndrome).. it can sometimes be important to find yourself someone who specialises in this disorder as it IS a MAJOR disorder and so many body systems can go wrong so may need treatment (a normal doctor who dont specialise in this illness wont know what to keep on eye on). You may also end up on disability so need someone to back up that kind of claim. A CFS specialist is likely to run many more tests on you which could show things eg many with CFS have vitamin D deficiency as our bodies cant convert D2 to D3 (active form of D3) etc etc.. so need to take D3 supplements. (ive nearly got a severe deficiency due to the CFS... hospital had to give me a mega dose of Vit D the other day.. 50 000 IUs instead of 2000). A CFS specialist will also think of others things which should be ruled out which normal GPs dont think of... YES I agree 100%..ususally an ND (naturopath) will be very familiar with it. I've heard of so many cases of CFS and Fibromyalgia sufferers getting 0 support from their doctors, who don't even acknowledge the disease exists. But in your case since your Dr. has diagnosted it, she obviously knows about it - Ask her how much success she's had with it..
    Kinesiologist 62 Replies Flag this Response
  • Mommy Cat posts about the contribution of mycoplasma with CFS and Fibromyalgia. I'll look up the thread title. Marionstar
    marionstar 228 Replies Flag this Response
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  • The blog is: "4,576 People With No Diagnosis On This Site Alone" by mommy cat. Check it out. Marionstar
    marionstar 228 Replies Flag this Response
  • really extreme fatigueIm a 3rd year acupuncture and health science student, who suffered from very similar symptoms for 4 months at the beginning of the year. I know what people go through , it is ***l! waking up extremly tired, getting dizzy throughout the day, not having the strength to do what you used to can be very depressing. Then doctors think depression may be the cause .. well of course your going to feel depressed your constantly so tired! Anyway, this topic really interests me and my heart goes out to people suffering. Blood tests come back clean and makes it out to be nothing wrong and you feel silly. DONT, there is something definatly not working properly in your body. Firstly i want to ask some questions if anyone is out there listening for my research purposes, Does the dizziness occur after eating/ around lunch time? Do you find it a lot harder to read and concentrate on reading? Do you experience abdominal bloating after meals? Is your fatigue accompanied by weak limbs? Is your fatigue worse in the day/night time? Do you urinate exessively? Forex Guides
    ForexGuides 1 Replies Flag this Response
  • Hello everyone! I am despirate for any answers or suggestions you all can give me.I'm 34 yrs old. I am experiencing extreme fatuge that can hit me in an instant. It hits me durring the day with no warning. I have enough rest and I eat enough. It is so bad that i feel like i'm going to pass out. Like my head weighs 50lbs. I also experience mental foggyness, forgetfulness, and lightheadedness. I have been told that i have thick blood. I had a blood clot 2yrs ago and when they tried to thin my blood with Warfin, it never worked, no matter how much they upped the dose.A brand new symptom is that my ankles and feet have been swelling almost every night. My lower half becomes painful and heavy.Anyone with any suggestions, please help. I have seen my cardiologist several times and spent time in the hosp, but I always leave with no answers. They are baffled. If is helps narrow things down, they have done an MRI of my brain, echo cardiograms, dopplers on my legs, urine tests, blood tests... and still, no idea what is causing all of this.Thank you for reading this.Toni in IndianaYou need to check your thyroid function.
    Anonymous 42789 Replies
    • February 24, 2010
    • 02:34 AM
    • 0
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