Discussions By Condition: I cannot get a diagnosis.

Extreme fatigue, forgetfulness, constant uncontrollable toe(s) movement, high BP

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Jhamilton
  • May 9, 2011
  • 01:58 AM

I've had extreme fatigue for over 7 years. I've been to almost every doctor out there. I've been on antidepressant but I don't feel depressed. I've had doctor tell me I'm not depressed. I stay tired no matter how much I sleep. I have high blood pressure, all my toes move constantly, forgetfulness, and I always stay hot. Doctor's have ruled out depression, sleep apnea, low testosterone, allergies, restless leg syndrome, etc. I want to be able to get out and exercise or just have a normal persons energy level. Please help

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5 Replies:

  • I've had extreme fatigue for over 7 years. I've been to almost every doctor out there. I've been on antidepressant but I don't feel depressed. I've had doctor tell me I'm not depressed. I stay tired no matter how much I sleep. I have high blood pressure, all my toes move constantly, forgetfulness, and I always stay hot. Doctor's have ruled out depression, sleep apnea, low testosterone, allergies, restless leg syndrome, thyroid disease, etc. I want to be able to get out and exercise or just have a normal persons energy level. Has anyone experienced this? I would appreciate any help. Thank you
    Jhamilton 3 Replies Flag this Response
  • Have you ever had you b12 checked.. if not i would get that checked... i was in the same place, although i didnt have high bp, but later had constant elevated heart rate.. toes ticking.. then eventaully went numb and i didnt even know they were numb. Get it checked out.. wouldnt hurt.. i am so glad someone finally found my b12 issue. it almost ruined my life. anything under 400 no good!
    mommagotb12issues 1 Replies Flag this Response
  • Have you ever had you b12 checked.. if not i would get that checked... i was in the same place, although i didnt have high bp, but later had constant elevated heart rate.. toes ticking.. then eventaully went numb and i didnt even know they were numb. Get it checked out.. wouldnt hurt.. i am so glad someone finally found my b12 issue. it almost ruined my life. anything under 400 no good!Thank you very much for your reply. My vitamin b12 is good. I used them over the last several years. I even got a shot to see if it would help. I was low on vitamin d. But never felt better after taking vitamin d for several months. I started seeing an acupuncturist to have treatments called NAET. I've had 2 but will need a total of 15 treatments. They are expensive but I have to find something or someone to help. If your fatigue comes back let me know and I can let you know if NAET works or not when I have a few more. Good luck. Thank you very much!
    Jhamilton 3 Replies Flag this Response
  • Your case dont sound like a typical case of it but it is possible it could be a subgroup of CFS. I say its not typical for that illness thou as usually those with the neurological symptoms have a ton more symptoms then you said and those tend to be in the ME subgroup of CFS. The other thing which also makes me slightly more doubtful is that commonly ones with ME/CFS have low testosterone with it and you dont nor do you mention other common indicators. You dont have any real indications that it could be that but I just wanted to say it could possibly be that. So keep an open mind to that if you develop more symptoms. Low BP is the normal in ME/CFS (86% have low BP) .. many of the rest not in the low BP usually have blood pressure abnormalities eg regulation issues with it often going up high and can often end up with high BP diagnoses. (I can get extremely high BP with the ME i have). ME causes twitchiness in many and myoclonus (contractions of body parts or spasms). Anyway.. I currently dont think this is your issue due to lack of enough symptoms in your case with the info you've given but do keep it in mind it could be possible but dont allow anyone to put that diagnoses onto you unless you get a lot more going on to vertify its probably that. ME/CFS shouldnt be used as a waste basket diagnoses like some doctors do.. it should be clear that is a persons issue before that's diagnosed. (there are many different abnormalities which can be found in ME if the right tests are done to help to confirm that is what it is eg postive Rombergs sign, abnormal EEGs etc etc Unfortunately most dont have those tests and if abnormalities are found which doctors dont understand, they are so often then just dimissed). best luck finding an answer. ps if you havent seen a neurologist who's done a Rombergs test on you... you can do one on yourself (take care not to fall and hurt yourself.. surround yourself by cushions in case you are positive) http://en.wikipedia.org/wiki/Romberg's_test I wonder if you have a deficiency of something... but I dont know what. Hair analyses testing can be good for showing up some deficiencies. I recently found out that I had a severe deficiency of a trace mineral due to that and hence specialist now has me on new supplements and its making a huge different to my concentration and memory issues.
    taniaaust1 2267 Replies Flag this Response
  • Your case dont sound like a typical case of it but it is possible it could be a subgroup of CFS. I say its not typical for that illness thou as usually those with the neurological symptoms have a ton more symptoms then you said and those tend to be in the ME subgroup of CFS. The other thing which also makes me slightly more doubtful is that commonly ones with ME/CFS have low testosterone with it and you dont nor do you mention other common indicators. You dont have any real indications that it could be that but I just wanted to say it could possibly be that. So keep an open mind to that if you develop more symptoms. Low BP is the normal in ME/CFS (86% have low BP) .. many of the rest not in the low BP usually have blood pressure abnormalities eg regulation issues with it often going up high and can often end up with high BP diagnoses. (I can get extremely high BP with the ME i have). ME causes twitchiness in many and myoclonus (contractions of body parts or spasms). Anyway.. I currently dont think this is your issue due to lack of enough symptoms in your case with the info you've given but do keep it in mind it could be possible but dont allow anyone to put that diagnoses onto you unless you get a lot more going on to vertify its probably that. ME/CFS shouldnt be used as a waste basket diagnoses like some doctors do.. it should be clear that is a persons issue before that's diagnosed. (there are many different abnormalities which can be found in ME if the right tests are done to help to confirm that is what it is eg postive Rombergs sign, abnormal EEGs etc etc Unfortunately most dont have those tests and if abnormalities are found which doctors dont understand, they are so often then just dimissed). best luck finding an answer. ps if you havent seen a neurologist who's done a Rombergs test on you... you can do one on yourself (take care not to fall and hurt yourself.. surround yourself by cushions in case you are positive) http://en.wikipedia.org/wiki/Romberg's_test I wonder if you have a deficiency of something... but I dont know what. Hair analyses testing can be good for showing up some deficiencies. I recently found out that I had a severe deficiency of a trace mineral due to that and hence specialist now has me on new supplements and its making a huge different to my concentration and memory issues.WOW. Thank you so much for taking all that time for a complete stranger. I do have low testosterone. I've used patches, gels, and injections. None of those helped. My testosterone was 300, the last time I checked. That was without using any testosterone replacement. I stopped using any replacements when I never felt any improvements. It increased on its on. For years it was 150-170. I think the normal range is between 200-300 and 700. I was treated for years and had close to 600 with treatment. I knew a lot of people would think I had low testosterone so I didn't mention it with my first post. Thank you again. I really appreciate you going out of your way to help a stranger!
    Jhamilton 3 Replies Flag this Response
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