Discussions By Condition: I cannot get a diagnosis.

EXTREME canker sores!!! 8 at a time ... huge

Posted In: I cannot get a diagnosis. 91 Replies
  • Posted By: Brandise
  • October 15, 2006
  • 07:56 PM

To whom it may concern..or whom may be able to help!!!

I am at my wits end with chronic canker sores. I have tried mouthwashes, pure salt, medication, numbing agents etc. Nothing works. I get one by a bump or abrasion and then I am guaranteed five more will pop up in a few days. I have scars in my mouth from multiple canker sores. Right now I have two HUGE sores left (have had total of 8 at the same time for the last 6 weeks). These last two will last another two weeks. I cannot eat, sleep, or talk. No one can help or knows anything about it. PLEASE tell me what this is... I get it every month. I obviously have stress in my life but I am a happy person (except when these things are visiting :(

Do I have some rare disease? I have never met anyone who gets these the way I do. I even got them on the back of my throat this time. Please help!

Sincerely,

tired momma

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91 Replies:

  • I had a friend who got them whenever he was around cats for a long period of time (he is allergic to cat dander, and lived in the same house with one on a couple of occasions)I remember this because he would have many many at a time during thisif it is not that, perhaps you have developed an allergy to something that you are around everyday, pets, chemicals, etc..-K
    Anonymous 42789 Replies
    • October 16, 2006
    • 10:50 AM
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  • My son has behcet's disease and gets apthous stomatits all the time when he has flare ups. He is now in remission, but our alternative medicine physician recommended liquid folic acid. When we used this his sores healed in 24-48 hours. It is a godsend.
    Anonymous 42789 Replies
    • October 16, 2006
    • 02:42 PM
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  • Thanks so much for your responses. I will give the folicacid a shot. You just apply it right on the sores?
    Brandise 1 Replies
    • October 17, 2006
    • 03:25 AM
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  • If you can get some from a pharmacist, try putting "chunk alum" on the canker sores. I get them too and this is the only thing that works for mine. It burns, but it's worth it...it drys the tissue up and they go away pretty fast (a couple days). Apply it frequently. My mother eats yogurt - a lot of it - when she gets them...it's the "acidopholis" in it that is therapeutic.
    Anonymous 42789 Replies
    • October 20, 2006
    • 08:55 PM
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  • I presume that a "canker sore" is the American version of an aphatous mouth ulcer.Folic acid and other B-vitamin deficiencies can do it. Have you had any trouble with the bowels at all?Do you tend to be prone to infections?have you seen your dentist?
    Anonymous 42789 Replies
    • October 20, 2006
    • 10:31 PM
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  • I Get Those 2, At Least A Couple Of Them In My Mouth Everymonth. Very Painful And Irritating. It Really Sucks When I Get It Near My Tonsil Area/top Roof In The Back Of My Mouth, It Makes Eating Very Difficult For A Couple Of Long Long Days. I Not Sure Why I Get Them, But I Know That I Always Had Them When I Was A Kid Too. I Guess Its My Genes Because My Father Used 2 Get Alot Too.
    GEMINI 21 Replies
    • October 22, 2006
    • 06:35 AM
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  • To whom it may concern..or whom may be able to help!!! I am at my wits end with chronic canker sores. I have tried mouthwashes, pure salt, medication, numbing agents etc. Nothing works. I get one by a bump or abrasion and then I am guaranteed five more will pop up in a few days. I have scars in my mouth from multiple canker sores. Right now I have two HUGE sores left (have had total of 8 at the same time for the last 6 weeks). These last two will last another two weeks. I cannot eat, sleep, or talk. No one can help or knows anything about it. PLEASE tell me what this is... I get it every month. I obviously have stress in my life but I am a happy person (except when these things are visiting :( Do I have some rare disease? I have never met anyone who gets these the way I do. I even got them on the back of my throat this time. Please help! Sincerely, tired mommaYou need to see an ear, nose and throat doctor to be tested for the viral infection, Herpes Zoster. For two years I had the same problem with apthous ulcers and my doctor prescribed 800mg of Acyclovir three times a day. I am much better.
    Anonymous 42789 Replies
    • October 22, 2006
    • 08:48 PM
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  • For two years apthous ulcers erupted in my mouth and along the inside of my cheeks and tongue with severe swelling, dry mouth and extreme pain. My dentist didn't knnow what it was (he attributed it to aging, I am 70), my internist ran tests and gave me some medicine to try that didn't work (he attributed it to my diabetes), my gastroenterologist siad he had no idea what it was, but he treated it with very expensive magic mouth wash that only numbed the pain temporarily, so finally I went to an EENT surgeon who took one look and said it was a Herpes Viral Infection similar to chicken pox that is caused by a depressed immune system. He prescribed Acyclovir 800mg three times a day and the ulcers are finally lessening, my dry mouth and pain is gone, and I can eat and talk without pain again. There is no cure for this disease but it CAN be treated.
    Anonymous 42789 Replies
    • October 22, 2006
    • 09:07 PM
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  • What A Coincidence, I Went To See My Doctor In The Past Regarding About Always Getting Canker Sores & He Also Prescribed Me Something Similar To Acyclovir Stating That I Have Some Type Herpes Viral As Well. I Was Also Prescribed A Lidocaine Mouthwash Which I Use Sometimes. It Mainly Numbs My Mouth Only. It Helps A Bit. With The Medication Part, I Never Took Them Though. As Of Right Now I Have 1 Canker Sore On The Left Side Of My Cheek, It Does Not Bother As Much As The Others I Get On The Inside Of My Lip, Roof Of My Tonsil Area, And Under And Around The Tongue Area. I M 25 Year Old Male, But As Far Back As I Could Remember As A Child I Used To Only Get 1 Canker Sore EVERY SO OFTEN, Then When I Reached The Middle Of My Teen Age Year It Has Doubled, Now A Days I Would Get 3 To 4 Big Ones With Tiny Ones Surrounding Them. I Would Have These For As Long As 2 To 3 Weeks Sometimes. It Would Really Hurt Especially When I Would Brush My Teeth.
    GEMINI 21 Replies
    • October 23, 2006
    • 02:37 AM
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  • What A Coincidence, I Went To See My Doctor In The Past Regarding About Always Getting Canker Sores & He Also Prescribed Me Something Similar To Acyclovir Stating That I Have Some Type Herpes Viral As Well. I Was Also Prescribed A Lidocaine Mouthwash Which I Use Sometimes. It Mainly Numbs My Mouth Only. It Helps A Bit. With The Medication Part, I Never Took Them Though. As Of Right Now I Have 1 Canker Sore On The Left Side Of My Cheek, It Does Not Bother As Much As The Others I Get On The Inside Of My Lip, Roof Of My Tonsil Area, And Under And Around The Tongue Area. I M 25 Year Old Male, But As Far Back As I Could Remember As A Child I Used To Only Get 1 Canker Sore EVERY SO OFTEN, Then When I Reached The Middle Of My Teen Age Year It Has Doubled, Now A Days I Would Get 3 To 4 Big Ones With Tiny Ones Surrounding Them. I Would Have These For As Long As 2 To 3 Weeks Sometimes. It Would Really Hurt Especially When I Would Brush My Teeth.
    GEMINI 21 Replies
    • October 23, 2006
    • 02:39 AM
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  • I have suffered from recurring canker sores since I can remember. Having braces as a teenager was a living ***l and yearly Halloween candy inevitably brought on horrific cankers. Cankers have been so bad for me that it noticeably affected my social life. Over the years I have tried all kinds of home remedies. In the end, a prescription medicine made all the difference in treating the outbreaks. In addition, I believe the following regime, though not completely eliminating the problem, has helped me cope with something that I will probably just have to live with for the rest of my life. PREVENTION1. Only use toothpaste that does NOT contain sodium Lauryl Sulphate (SLS). This is a detergent (commonly used in floor cleaners) that will strip your mucous membranes and dry out your mouth making you prone to canker sores. I personally use Biotene which is readily available at the grocery store and there several, though are more expensive, SLS free toothpastes available online. 2. Reduce sugar intake or at least brush immediately after eating sweets. (I am not a doctor but I believe sweets cause cankers because sugar raises the acidic level in your mouth and by increasing the amount of acidi producing bacteria, just ask any dentist on the cause of cavities.3. Eliminate acidic sodas such as coca cola or pepsi or at least brush immediately afterwards with an SLS free toothpaste. I believe acidic sodas packs a double whammy, they have a ton of sugar and immediately increase the acid level in your mouth. 4. Use a humidifier if you live in a dry climate such as Colorado.5. Get good sleep.6. Take a daily multivitaminTreatment1. Gargle with hydrogen peroxide (H202), you know the stuff you can get at walgreens for about a buck. In my experience, this cuts the outbreak time by half if used 2 to 3 times per day.2. Get a perscription from your dentist for a topical steroid. Personally, my dentist prescribes a paste called "Triamcinolone Acetonide Dental Past USP, 0.1%". I put this directly on the sore before I go to bed and try to keep it in contact with the sore as long as possible. This seems to cut the outbreak intensity and duration dramatically. 3. My sister (canker sores are genetic, I'm sure of it) swears by a new treatment called Debacterol. This is essentially a small vial of sulphuric acid which you apply directly to the sore with a miniature Q-tip. The result is the cauterization of the canker and cessation of pain (after very brief excruciating pain). In my experience, this completely relieves the symptoms for about 12 hours after application. However, I find the sore to be just as painful the next day... and bigger! I list it here because I believe it has its uses for temporary eradication of pain from a large and painful canker. For example... a date, a party, speaking engagement, etc. Othe common home remedies seem pretty useless and cruel.. such as gargling with salt water or applying alum, ouch!One treatment which I have not tried seems promising: 1-2 tablespoons of Maalox mixed with one-half tablespoon of liquid diphenhydramine (Benadryl).Also, the folic acid treatment described in an earlier post seems promising. I would think if that is effective, then a multivitamin containing folic acid may be helpful for prevention, such as women's prenatal vitamins. By the way, I have had many dentists in my life and I always brought up the subject of canker sores and all but my most recent simply shrugged it away and probably mistook them for Cold Sores. If your dentist is not familiar with the prescription medications available, it is your job to educate them or find someone else who is knowlegable or is willing to learn. My dentist literally had me wait while he did some research and came back with a written prescription for the topical steroid and asked me to report back on the result. He later prescribed the debacterol at my request. There is no sense in silent suffering and there is no silver bullet for these things. In my experience, it takes a combination of prevention, home remedies and prescription medication.
    Anonymous 42789 Replies
    • October 28, 2006
    • 07:11 PM
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  • Thanks for all the good advice on this. My sons get them really badly.
    ksgomez 1 Replies
    • October 28, 2006
    • 10:32 PM
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  • my daughter has suffered from attacks of severe mouth ulceration for the past six years,she also had them in her esophagus and stomach , she has been diagnosed with Behcets syndrome and has had many different drugs to treat this.We tried sulphasalazine,which worked for the gut but not for the mouth, cortisone which works but when she comes off it she gets it back ,immuran which did not work, we have been on cochicine which did not work.we are now on methotrexate which did not work until the dose was 20 mg we have just had a remission which lasted 10 weeks but have just suffered a big attack of the ulcers.She takes folic acid as a supplement to the chemotherapy.Has anyone got a therapy that works? We are at our wits end.
    Anonymous 42789 Replies
    • October 29, 2006
    • 00:39 PM
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  • I too kept having canker sores. Someone told me about Lysine. I take it every day and if I do get a rare canker sore I double up on pills for two days. They go away promptly and hardly any pain. Give it a try. Costco and Walmart sell it cheaper in large bottles. It really works!
    Anonymous 42789 Replies
    • October 29, 2006
    • 04:33 PM
    • 0
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  • If you get canker sores at least once and month and are willing to report your results by e-mail once a week, you can get a free supply of a new product now in testing for prevention of canker sores. Go to orahealth.com and look at the bottom of the page.
    Anonymous 42789 Replies
    • October 31, 2006
    • 06:10 AM
    • 0
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  • At the first sign, take a couple of lyzyne. Then continue with taking 1-2 each day until the sores are gone. If you take 1 per day, the sores should not return. It worked for me. Lyzyne can be found in the vitamin section of any store.
    Anonymous 42789 Replies
    • November 17, 2006
    • 00:44 AM
    • 0
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  • Cauterize the sores by appling salt directly to sore and you own natural body will reponde and flood it with antibodies. In about 2 days they should go away.
    Anonymous 42789 Replies
    • December 2, 2006
    • 01:01 AM
    • 0
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  • Something else you might want to try is a simple OTC medication.Cankermelts costs about $8 at CVS/pharmacy and will heal canker sores in days. The earlier in the development of the sore that you use it, the faster you will see results. If you use them right when you feel the sore forming, they will likely prevent it from forming or heal it in 1 day. If the sore has formed, Cankermelts will relieve the pain and speed healing to about 3 days. I like them because they are all-natural and easy to use. Also much cheaper than going to see a specialist. Try them. They are ridiculously awesome.
    Anonymous 42789 Replies
    • December 5, 2006
    • 07:15 PM
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  • Don't confuse herpes zoster (aka cold sores or fever blisters), which normally appear on the lips and are contagious, with canker sores, which normally appear on the inside of the mouth and aren't contagious. Cold sores can be prevented or stopped in their very early stages with lysine. As soon as you feel a tingling sensation in your lip (where they most usually occur) take a lysine tablet. Lysine is a building block for protein. More about it here: http://en.wikipedia.org/wiki/Lysine The above article does say that more research is needed to substantiate the claim that it can prevent cold sores. However, from my personal experience I have had lysine nip a cold sore in the bud. There are cold sore medicines out there, but personally I'd rather take a nutritional supplement. Plus many of the cold sore remedies have side effects for some people, for instance nausea. With canker sores there are often triggers such as acidic foods like oranges. Others get them when they eat foods they are allergic to. I have noticed that when I am getting enough B vitamins my incidence of canker sores goes down. So the suggestion of folic acid completely makes sense. More about that here: http://en.wikipedia.org/wiki/Canker_soresWalnuts, which are high in arginine, can trigger canker sores in some people.One thing I want to mention. I read years ago that too low of intake of B vitamins can cause fleshy appendages on the inside of the mouth that get in the way of the teeth, resulting in their being bitten. Then a canker sore might develop there on the bite. So if you are always biting the inside of your cheeks, there is the possibility that your intake of B-vitamins is too low or not balanced in favor of all the B-vitamins.Vitamin E can help heal canker sores and is a natural pain killer. Zinc is a natural healer for ulcers of any type (including stomach ulcers).
    Anonymous 42789 Replies
    • December 6, 2006
    • 10:01 AM
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  • PLEASE READ THIS - it's NOT just about coffee! Also, this refers to canker sores - inside the mouth, including, on the tongue - not cold sores on the outside, around the lips. There is a lot of good advice in this forum. Unfortunately, much is what to do AFTER you get a sore. The best advice, of course, is "see your doctor," first. You could have a more obvious underlying cause they can help you with.I didn't have a "known underlying cause" and used to get them bad. In college once, I had 10 at a time including 3 on my tongue! I could barely talk or eat. Sure I had "stress," but I have more stress now and no cankers. Went to doctors - got the typical advice, but no real help; the dentist would always have advice, too. Took me 20 years to figure out what caused mine: coffee with robusta bean content. So, to PREVENT them in the first place, watch your diet; not just what you eat and drink, but what is (chemically) IN what you eat and drink. Consider the ingredients carefully. If you drink coffee, try only 100% arabica bean (think "Grade A" for Arabica) or "100% Columbian" coffee for a couple months. Don't drink the stuff in restaurants, at work, or anywhere else - bring a thermos to work if necessary. If it doesn't specifically say 100% arabica or 100% Columbian on the package, it probably contains robusta beans. The cheaper Robusta beans grow in dry climates, like Africa, and are more disease resistant. As a result, the yield is higher and they are much cheaper, but have a harsh taste. To stay competitive, coffee companies typically blend the better tasting arabica beans with the cheaper robusta beans. The very cheap coffee (free stuff at businesses, and often at work) can be 100% robusta. I used to think cankers were a result of this formula: caffeine = nerves = stress = cankers. Nope. Caffeine in pop didn't give me cankers! (Just zits from all the other junk in soda.) Tried decaf, too - instant AND drip. But, instant and decaf coffee is usually made from the cheaper robusta beans. The cheapest coffee always has the highest robusta content. But expensive coffees with fancy marketing names and packaging can also be a blend. If you watch for sales, you can get 100% Columbian or arabica bean coffee at the same price and stock up. (Also, don't think just because you pay $5.50 a cup at one of those specialty joints you're getting the best coffee in the world, either.)I used to have cankers all the time, seemingly without any rhyme or reason to what I was doing different. I tried all the advice suggested in this forum at one time or another. Certain toothpaste, as recommended above, and Lysine seems to help. But Lysine makes me nauseous when taken in the large recommended doses. (I don't take anything but an occasional Flintstones vitamin.) Since I became careful about the coffee, I can now go month after month without a single sore. I typically drink between 2 to 8 cups of coffee a day. Don't give up! Keep looking for THE CAUSE; pay special attention to your diet; keep a notebook of the TIME and DATE of everything that goes in your mouth. (Including gum, breath mints, and the end of that ink pen cap you chew on.) Keep in mind, a canker may result from something you put in your mouth hours, or even, a day or two ago. For many years, I only knew it was "cheap coffee" that caused my problem. But, what is "cheap coffee?" It wasn't until a "Modern Marvels" episode on coffee (on the History Channel) a couple years ago, that I determined what was IN cheap (and even, expensive blend) coffee. Look IN the foods you are eating, and keep a careful record. Don't "assume" anything. In my case, about 8 years ago, I drank some very, very cheap coffee and got two cankers right where my travel mug touched the inside of my upper lip. I couldn't use that particular mug for a couple months - until the cankers healed - they wouldn't go away because of their "up front" location. BUT, they sprung up fast - just a couple hours - and that was a "eureka moment" for me. In college, I was very poor and drank lots of cheap instant coffee to stay awake - bingo! (I was afraid caffeine tablets would be bad for me. Ha!) For a while, I thought it was "acid" in coffee, but found "low acid" coffee didn't make a difference. (Again, made from robusta beans, but who knew?) It's something chemically different in the specific robusta beans that affect me. The higher the percentage, the more cankers I get. Of course, you may be different and have to determine what might be causing yours. Best of luck. I know how awful and painful they are. Please let me know if this helped you, or anyone else out there. Thanks. I'll check back often. -zimbo
    Anonymous 42789 Replies
    • December 13, 2006
    • 06:51 PM
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