Discussions By Condition: I cannot get a diagnosis.

EXTREME "motion sickness"/motion intolerance and MUCH more

Posted In: I cannot get a diagnosis. 19 Replies
  • Posted By: Tranquillity
  • November 24, 2007
  • 07:51 PM

Hi everybody. Sorry, but this will be a LONG post, actually I'll split it to make it more readable.
Basic details: Male, 21 years, history of being underweight (still a bit) and having anxiety.

The short story:
I can't tolerate any kind of motion, whatsoever. I'm not talking about roller coaster rides here, I'm talking about things like WALKING (especially outside), watching TV, reading (unless the book is PERFECTLY still). I get nauseous from the TINIEST motion imaginable, even when the water in my glass moves while I'm eating lunch, or not having the door to my room closed - since I'd see my parents sitting (not perfectly still) in the couch! ANY motion will do, a few seconds of TV is all it takes, especially if the camera is moving.

I just can't stand this anymore. My "life" is so extremely far from normal that I can literally not imagine going home to (or even meet, at home) a friend! Needless to say, this is ridiculous, however I assure you that I'm NOT exaggerating even a tiny bit - I wish I was! :(
To be crystal clear: I haven't been outside the apartment, AT ALL, for many months, and I'm sick of it! I want a normal life! ***l, I'd be happy if I could watch frickin' TV, I'm soooo bored!

Now, that's not my only symptom, but by FAR the worst and most limiting. Here are most of the...
Symptoms:
The motion intolerance!
Tired, tired, tired. Decent amount of sleep (8-10 hours) but always tired.
Slightly low blood pressure at times, but especially when standing up (even from sitting position). I stand up from bed VERY slowly, or else I feel extremely dizzy and get "blind" for a few seconds. Even when doing it slooooowly I feel (more than usual) dizzy/nauseous.
Can't tolerate stress, or anything remotely similar. If somebody asks me to do ANYTHING that isn't lying on the bed, I feel worse.
Can't relax, either. I never ever feel truly calm. Not in the morning, not during the day, not when I go to sleep.
Depression, and anxiety. I'm pretty sure the depression is mostly caused by my lack of a life, rather than anything else. The anxiety has been there for a long time, though.
I'm cold. Always wear extra socks, low body temperature now and then (not extremely low though, but 36.5C/97.7F late afternoon, usually 37C/98.6F though. Runny nose, and cold hands too.
Usually a quite high resting pulse, 80-85 most of the time. I haven't counted it below 75-80 even once lately.
Easily frightened, i.e. sudden sounds and such.
Dry/chapped lips, at least the bottom one.
Horrible breath in the morning. I don't have anyone to compare with but I'm pretty sure it's worse than "normal".
Dark/purple circles under my eyes, always.
Shaky, at least sometimes. Tense, I guess. If I lay down on my bed, and try to relax, my teeth will be shaking slightly. Not really noticeable unless I'm on the bed, but annoying nonetheless.
Some kind of acid reflux, or similar. No burning (ever), but rather a disgusting feeling in the back of my throat and/or stomach. Big meals (well, any meal really) makes it worse.
Headaches. Not sure exactly what to call it, migraines perhaps. It's not really that painful, just a very annoying "feeling" accompanied by some "special" form of nausea, that I usually refer to as "headache nausea". Hard to explain, but I suppose mentioning it won't hurt. Might be some form of sinus headache; it often hurts "behind" my eyes, or "in" my eyes.
Slowly losing weight (despite being underweight) - this is most likely not really a symptom, but rather is caused by my bad appetite, which IS a symptom
This will sound weird, but I sometimes see my own nose. Just a big blur of course, but once I notice it, it's very annoying. This is usually accompanied by the headache thing.
I think my vision's getting worse, too. In fact, I've wondered if the vision problem is what causes the dizziness thing. Seems partially doubtful since closing my eyes doesn't seem to help at all.
Some stomach problems, too. Mostly well-formed but I'm a bit too regular, 2-4 times a day, and diarrhea now and then (3 times a week?). Sometimes floating stools. Sorry for the TMI.
Hypoglycemic periods, I think. I can't prove it, so to speak, but it feels like it. It often takes a long time to feel relief even after eating, sometimes there is no change for 30-40 minutes before it starts getting better.
Often hungry. I don't really feel like eating, but I do feel hunger, sometimes even just after eating. In other words, my stomach feels empty, but I have no desire to eat.
Irritable, now and then. I snap or no reason at all - things like dad bumping into my chair makes me yell a few times a week.
Some very minor bleeding in my right eye at times. I'm not sure "bleeding" is the right word for it, a few capillaries are red.
Now and then, perhaps a few times a month, I get a loud high-frequency beep in my ear. It fades out on its own within the minute. I have no idea what this is, or if it's even worth noting.
All these symptoms are day-long, 24/7, unless otherwise stated (such as the morning breath). Some are most likely not symptoms of the disease itself, but rather symptoms of me not exercising whatsoever. ALL of them can't be because of that, though, because I stopped going outside etc as I progressively got more sick, not the other way around.

Phu, that wasn't short. Nor am I done yet. Obviously, I'm very thankful for ANY replies, so if you really can't bother to read it all, please answer anyway if you have something that might be useful for me!

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19 Replies:

  • A bit of story:I really can't write 10% of what I'd like to, because NOBODY would read everything. I'll try to keep it down to the essentials - which doesn't mean it'll be short.I've been underweight since childhood. Psoriasis as well. I started getting help with the eating around the age of 15, and gained lots of weight - not too much, but I returned to normal. That's when my anxiety started, though. LOTS of it. I had to quit school eventually because of it. That's a long story to cut down to a single sentence. In any case, I kept on doing things (exposure therapy) to reduce the anxiety, and it helped lots. Eventually, I was back in school. For a while. Some time around September 2006, I quit again, feeling worse than before. Panic attacks were quite common. I (re)started medication on May 2007, Cipralex (Lexapro, an SSRI). Felt WAY worse in the beginning, I barely got out of bed for a week until I got some anti-anxiety (a benzodiazapine) prescribed. Only temporarily, though, so ***l returned after three weeks. Those three weeks with the benzo wasn't good at all, but MUCH better than the week before.Anyway, when the benzo period of three weeks was over, as I said, ***l returned. I was put on Remeron (Mirtazapine) as well as the SSRI. That helped me sleep in the mornings, but not much more.My first dizziness "attack" came two days before starting the remeron. I've been slightly dizzy/prone to motion sickness for a very long time, but nothing serious. Until that day. I was taking a walk, and got so dizzy that I almost fell. I walked home feeling a bit bad, and didn't get out of bed any more that day, due to the "motion sickness"-like nausea.Since then, I've been having a similar feeling that's getting worse by the day... That is, I tolerate less and less before it hits me. It's no attacks or dizzy spells any more though, it's constant. Not a second of relief. Not ONE second.As stated above, in the first post, no movement is small enough to not either make me nauseous, or at least annoyed. Since then (sometime in June) I haven't been able to go outside, watch TV/movies, play computer games, do the dishes, ... The list goes on and on, and it is definitely easier to list what I CAN do. Actually, there is nothing I can do without feeling the least bit ill, not even lie still.Current meds: 40mg Fluoxetine (switched from the lexapro two months ago), Remeron 7.5mg - tapering down, originally on 15.Lab values:I guess some of you will want to know. I can't write them all down (40 tests or so), but I'll write everything out of range down, and everything I think might be good to know. Blood was drawn in the morning, by the way (9.30AM).Obviously, the format isTest my_value (reference range)Blood cell count, hemoglobin, hematocrit looks good.MCV 101.4 (82-98)B-CRP 6)Homocysteine 11.1 (Other stuffI don't get outside AT ALL, remember? I've been thinking about Vitamin D deficiency, I honestly can't see how I could NOT have it (since most of the Vitamin D comes from sun exposure). I doubt it causes all of this, but still.I'll refrain from posting any of my own "thoughts" for a while. Why? Because I want new "ideas" what it might may be, rather than discussing the thoughts I've already had. :)Any advice is appreciated. Possible causes, lab values to check out, questions about things I haven't mentioned, what to do, ... Even "me too" posts are welcome - I feel like a total freak! I'd very much like to know, in a way, that I'm not alone. However, needless to say, I wouldn't wish this on anyone.Many thanks in advance, and sorry for the length.If you need more info, heck even if you're too lazy to read it all and want a shorter version, please ask!
    Tranquillity 34 Replies
    • November 24, 2007
    • 07:52 PM
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  • Wow! First let me say I'm sooo sorry you are living in this complete ***l! I experienced very simliar sxs a month ago for less than 12 hours. I woke up, started getting ready for work, heard a loud buzzing noise, and I fell to the floor. I stayed dizzy most of the day. My bp would "bottom out" when standing. But I also had numbness down the left side of my body. I was sent to the ER and there diagnosed with dehydration.. A few weeks later I saw a cardiologist who then said I may have had a stroke. Now, after having an MRI & MRA of my brain and a TEE of my heart, she says maybe it wasn't a stroke, because all these tests have a came back clear. So last Tuesday she order extensive blood work (10 tubes). Once I get those results, I'll be happy to share (I'll also update my own thread too). Do you mind giving us a more detailed story of how your sxs started? Were they gradual or sudden? Did it start out as a one time thing and then progress to the constant sxs? Since you have psoriasis, do any other members of your family have autoimmune diseases? I wish you the best~LDH
    mz ldh 24 Replies
    • November 25, 2007
    • 08:42 PM
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  • Wow! First let me say I'm sooo sorry you are living in this complete ***l! I experienced very simliar sxs a month ago for less than 12 hours. I woke up, started getting ready for work, heard a loud buzzing noise, and I fell to the floor. I stayed dizzy most of the day. My bp would "bottom out" when standing. But I also had numbness down the left side of my body. I was sent to the ER and there diagnosed with dehydration.. A few weeks later I saw a cardiologist who then said I may have had a stroke. Now, after having an MRI & MRA of my brain and a TEE of my heart, she says maybe it wasn't a stroke, because all these tests have a came back clear. So last Tuesday she order extensive blood work (10 tubes). Once I get those results, I'll be happy to share (I'll also update my own thread too). Do you mind giving us a more detailed story of how your sxs started? Were they gradual or sudden? Did it start out as a one time thing and then progress to the constant sxs? Since you have psoriasis, do any other members of your family have autoimmune diseases? I wish you the best~LDHHi, thanks for the reply :)What does sxs stand for? I understand the meaning, obviously, just wondering anyway.In any case, it doesn't sound very similar to me to be honest. I've been getting progressively worse for a long time, but I did have a "dizzy spell" once (the walk I mentioned in the 2nd post), but it's been pretty much constant except for that. I've always been slightly dizzy, or prone to motion sickness, but it's never really been a problem. I visited my brother, 650km (400 miles) one-way, in 2005, only with some very slight motion sickness (it's even very possible that it was anxiety of fear of becoming motion sick, rather than the actual thing).Anyway, I figured I'd add some (not much) info.I usually wake up quite early, at least early for someone who has no reason to get up in the morning. The two things that make me get out of bed 95% of the mornings is either that I'm really hungry, or that I have to go to the bathroom.I always eat a semi-big meal around 10pm, pretty odd that I'm hungry again in the morning to be honest. Might just be because of my low weight or something, though.Also, some info on what I think might be the problem. First, I need to mention something: at the very least, some of my problems are psychological - hopefully not all of them, I honestly can't see myself getting well if it's nothing psysical at all.Things I've considered:* Hypothyroidism Why? Feeling cold, tired, dizzy, dry lips/skin, depression/anxiety, and more. Not to mention a semi-high TSH (3.59) - good enough for a diagnosis according to quite a few doctors! Why not? Not gaining weight, high resting pulse, no constipation. The first two can probably be explained by eating too little and not exercising, though. More testing is on the way, or so I hope, namely antibody tests.* Addison's disease / low cortisol / related problems Pretty much ruled out by the (over the range!) high cortisol test. Seemed like a promising diagnosis until then, heh.* Hemochromatosis / iron overload Don't know what I think about this anymore. My ferritin has increased lots the last year, BUT it started out as borderline low, so that can't really be seen as a problem yet.* Some kind of (food) allergy/intolerance No idea how likely or unlikely this is. I've tried cutting out gluten, no effect so far, it's been 3 or 4 weeks now. Zilch effect, but I'm not giving up that easy, the diet isn't very hard to follow since I don't eat out etc.* Mold problems, or such No idea how likely this is, either. My parents seem to thing there' mold in the house, but we haven't really checked it out properly.Obviously, it's unlikely for ANY of the above to cause ALL my problems, but I figure that loads of the symptoms would go away as soon as the big ones got better.That wasn't nearly as short as I figured it'd be. Heh.
    Tranquillity 34 Replies
    • November 25, 2007
    • 09:50 PM
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  • Wow! First let me say I'm sooo sorry you are living in this complete ***l! I experienced very simliar sxs a month ago for less than 12 hours. I woke up, started getting ready for work, heard a loud buzzing noise, and I fell to the floor. I stayed dizzy most of the day. My bp would "bottom out" when standing. But I also had numbness down the left side of my body. I was sent to the ER and there diagnosed with dehydration.. A few weeks later I saw a cardiologist who then said I may have had a stroke. Now, after having an MRI & MRA of my brain and a TEE of my heart, she says maybe it wasn't a stroke, because all these tests have a came back clear. So last Tuesday she order extensive blood work (10 tubes). Once I get those results, I'll be happy to share (I'll also update my own thread too). Do you mind giving us a more detailed story of how your sxs started? Were they gradual or sudden? Did it start out as a one time thing and then progress to the constant sxs? Since you have psoriasis, do any other members of your family have autoimmune diseases? I wish you the best~LDHHi, thanks for the reply :)What does sxs stand for? I understand the meaning, obviously, just wondering anyway.In any case, it doesn't sound very similar to me to be honest. I've been getting progressively worse for a long time, but I did have a "dizzy spell" once (the walk I mentioned in the 2nd post), but it's been pretty much constant except for that. I've always been slightly dizzy, or prone to motion sickness, but it's never really been a problem. I visited my brother, 650km (400 miles) one-way, in 2005, only with some very slight motion sickness (it's even very possible that it was anxiety of fear of becoming motion sick, rather than the actual thing).Anyway, I figured I'd add some (not much) info.I usually wake up quite early, at least early for someone who has no reason to get up in the morning. The two things that make me get out of bed 95% of the mornings is either that I'm really hungry, or that I have to go to the bathroom.I always eat a semi-big meal around 10pm, pretty odd that I'm hungry again in the morning to be honest. Might just be because of my low weight or something, though.Also, some info on what I think might be the problem. First, I need to mention something: at the very least, some of my problems are psychological - hopefully not all of them, I honestly can't see myself getting well if it's nothing psysical at all.Things I've considered:* Hypothyroidism Why? Feeling cold, tired, dizzy, dry lips/skin, depression/anxiety, and more. Not to mention a semi-high TSH (3.59) - good enough for a diagnosis according to quite a few doctors!Why not? Not gaining weight, high resting pulse, no constipation. The first two can probably be explained by eating too little and not exercising, though. More testing is on the way, or so I hope, namely antibody tests.* Addison's disease / low cortisol / related problems Pretty much ruled out by the (over the range!) high cortisol test. Seemed like a promising diagnosis until then, heh.* Hemochromatosis / iron overloadDon't know what I think about this anymore. My ferritin has increased lots the last year, BUT it started out as borderline low, so that can't really be seen as a problem yet.* Some kind of (food) allergy/intoleranceNo idea how likely or unlikely this is. I've tried cutting out gluten, no effect so far, it's been 3 or 4 weeks now. Zilch effect, but I'm not giving up that easy, the diet isn't very hard to follow since I don't eat out etc.* Mold problems, or suchNo idea how likely this is, either. My parents seem to thing there' mold in the house, but we haven't really checked it out properly.Obviously, it's unlikely for ANY of the above to cause ALL my problems, but I figure that loads of the symptoms would go away as soon as the big ones got better.That wasn't nearly as short as I figured it'd be. Heh.
    Tranquillity 34 Replies
    • November 25, 2007
    • 09:53 PM
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  • :o Two years ago, I had something very similar to what you describe. In desperation I googled and researched every form of dizziness I could find. I realized that I was constantly rocking or feeling that things were rocking around me (like my bed at night, sort of like a swinging cradle!). I found a support group on Yahoo for "mal de debarquement," found a local doc, and was in physical therapy for 6 weeks. The PT, which helped get my feet back on the ground, consisted of some regular balance exercises and also a bit unconventional because it used body energy work. Good luck in seeking out the help you need. Don't give up. I had been to six docs before finding one who said, "You are not crazy!" That was reassuring and the beginning of my path back to being normal.
    KitKatKolorado 1 Replies
    • November 25, 2007
    • 10:49 PM
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  • Benign Positional Vertigohttp://www.emedicinehealth.com/benign_positional_vertigo/article_em.htmThe following are called the positional exercises of Brandt and Daroff. You will feel vertigo while doing these, but with each repetition, the severity and duration should decrease. Sit on the edge of the bed near the middle, with legs hanging down. Turn head 45° to right side. Quickly lie down on left side, with head still turned, and touch the bed with portion of the head behind the ear. Maintain this position and every subsequent position for about 30 seconds. Sit up again. Quickly lie down to right side after turning head 45° toward the left side. Sit up again. Do 6-10 repetitions, 3 times per day.
    Anonymous 42789 Replies
    • November 26, 2007
    • 06:39 PM
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  • Hi Tranquility!I am so sorry to hear about your troublesome symptoms. I had similar symptoms for years (except the dizziness was not nearly as severe as yours)- fatigue, migraine-like headaches, and ataxia (problems with balance and coordination) plus some of your other things like the highpitched ringing that would occur sporadically but go away quickly, acid reflux, low appetite, dry skin, high bilirubin, etcThough your dizziness definitely sounds worse than mine, I did notice a lot of it and realized that all of a sudden I became sea sick very easily- even on office furniture with wheels on it, etc.I went undiagnosed for almost a decade and went before a long, humiliating parade of neurologists and other doctors who told me it was all from stress or depression, etc etc.As it turns out, my 8th neurologist diagnosed me with something called Hashimoto's Encephalopathy. It is a rare complication of autoimmune thyroiditis. Most doctors do not know anything about it yet (it's a somewhat newly recognized phenomenon), and worse yet, most doctors do not order the tests you need to diagnose it unless your thyroid hormones are off first. The tests needed to see if you have it are thyroid antibodies. Mine were highly positive and a subsequent ultrasound of my thyroid gland revealed that it was full of tiny nodules from the autoimmune destruction from the antibodies. For some reason, some people with autoimmune thyroiditis can get a bad encephalopathy from it. Though this complication is rare, I suspect that there are many, many more cases of HE out there given the prevalence of thyroiditis- and most of us are women.If you want to get tested for this, you will need to ask your doctors to check your thyroid ANTIBODIES. They will be reluctant to do so because they are trained to check them only if your TSH or other hormones are off first or you have a goiter, and the tests are expensive send-outs usually. My TSH was checked many, many times throughout the years and so I was told that my "thyroid was fine". However, on top of the neuro symptoms, I had a lot of low thyroid symptoms: dry skin, low appetite, low blood pressure, compression neuropathies, cold hands and feet, elevated cholesterol and triglycerides, etc etc but my TSH was always normal.Do not let your doctors tell you thyroid is okay unless they check the antibodies (to both thyroperoxidase and thyroglobulin).HE is highly treatable/manageable with steroids if caught early enough. After one pulse of steroids, the weakness in my legs went away and I was going on 8 mile hikes again. I have had relapses, but at least I know what they are now. HE is also known as SREAT- steroid responsive encephalopathy associated with autoimmune thyroiditis, since it responds to steroids. It can cause a wide variety of symptoms and each case looks different.I wish you the best of luck in obtaining a correct diagnosis whatever it may be. I know how frustrating it is to be so ill and with no explanation.
    Anonymous 42789 Replies
    • November 26, 2007
    • 08:01 PM
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  • I would look into a condition called benign positional veritgoit is easily cured and if youre unable to do cure it at home you could get a referral from your GP to see a specialist http://www.emedicinehealth.com/benign_positional_vertigo/article_em.htm The following are called the positional exercises of Brandt and Daroff. You will feel vertigo while doing these, but with each repetition, the severity and duration should decrease. Sit on the edge of the bed near the middle, with legs hanging down.Turn head 45° to right side.Quickly lie down on left side, with head still turned, and touch the bed with portion of the head behind the ear.Maintain this position and every subsequent position for about 30 seconds.Sit up again.Quickly lie down to right side after turning head 45° toward the left side.Sit up again.Do 6-10 repetitions, 3 times per day.I imagine that if this is your problem the anxiety has stemmed from hereI would think that spending time in your house unable to even focus on a glass of water would cause unimaginable stress
    katz0rz 5 Replies
    • November 26, 2007
    • 08:08 PM
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  • Wow! My jaw (almost literally) hit the floor.I've been looking very much into Hashimoto's thyroiditis, and I'm currently waiting to get ahold of my doc for the antibody tests! This was BEFORE reading your post! :eek:I'll definately look more into the Encephalopathy as well. It seems very rare, but who knows. All I know is that something is odd with my thyroid - even according to an official "doctor's manual" of sorts, I should be treated with thyroxine with my current TSH.Are you on "regular" thyroid meds as well, or only the steroid-related ones?Anyway, many thanks for the reply, and that goes for all of you.I posted an answer earlier today but it hasn't shown up yet (I guess it won't, either).
    Tranquillity 34 Replies
    • November 26, 2007
    • 08:22 PM
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  • look into a condition called benign postional vertigoit is easily fixed at home but if you cant do it then have your GP refer you to a specialist http://www.emedicinehealth.com/benign_positional_vertigo/article_em.htm The following are called the positional exercises of Brandt and Daroff. You will feel vertigo while doing these, but with each repetition, the severity and duration should decrease. Sit on the edge of the bed near the middle, with legs hanging down.Turn head 45° to right side.Quickly lie down on left side, with head still turned, and touch the bed with portion of the head behind the ear.Maintain this position and every subsequent position for about 30 seconds.Sit up again.Quickly lie down to right side after turning head 45° toward the left side.Sit up again.Do 6-10 repetitions, 3 times per day.also i imagine that anxiety would have stemmed from this condition being that your life has been so affected by it
    katz0rz 5 Replies
    • November 26, 2007
    • 08:25 PM
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  • Hi Tranquility!I did a steroid pulse in May (prednisone- 80mg for three days, then 70 mg for three days then 60 mg for three days, etc down to 10 mg for three days). It was ******n me, because I found out the hard way that steroids can suprress your TSH and can block the conversion of T4 (inactive hormone) to T3 (active hormone). So, I had worsening low thyroid symptoms. But afterwards (and even in the evenings since prednisone has a short half-life and I dosed in the am), I felt a lot better- was able to walk without my cane and the weakness in my legs was gone. I felt even better when I was finally able to get in to the endocrinologist and she put me on Levoxyl to keep my TSH at the lower end of normal- 0.5. So, I'm on 50 micrograms of Levoxl now even thogh myTSH was always about 1.0. At first it can make you lose more hair (a symptom I forgot to mention), but after a couple months it stabilizes and for the first time in a while my hair loss has slowed down to the normal 100 strands or less a day.I did relapse again this month and had to go on steroids, but at least I know now what's wrong. I suspect that there are many many more women out there with HE and they are being told they have psychosomatic illness.I hope you get your anwer soon!Best Wishes
    Anonymous 42789 Replies
    • November 26, 2007
    • 08:43 PM
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  • I've ruled out BPPV many times, for many reasons, but thanks anyway. :)Why? I don't have vertigo (spinning dizziness), nor nystagmus (eyes moving back and forth), and it's not positional either, it's *always* the same - which brings us to the point that BPPV attacks last less than a minute, mine has lasted for months. :(
    Tranquillity 34 Replies
    • November 27, 2007
    • 03:46 PM
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  • First, you can enroll in a virtual school and do all of your school work online. Depending on what state, www.k12.com is good academically and your state will have a handful of other virtual schools if k12 is not available. There is something specific with low blood pressure and getting from a flat to an up position that indicates something special to a doctor, so I would relay that information. I believe you need to see a cardiologist to check out your heart muscle and see if the low blood pressure is an issue. Your vision is a grave concern. You need to see an opthalmologist. You need to see a neurologist to rule out stroke like condition or brain tumor. You need to see an ear/nose/throat man to determine if you need ear surgery. Your diet may be a contributing factor. Go off sugar and flour. Eat a good diet. Mold is not good. I have a mold eating machine your mom can buy:www.westcoastaircare.comMold alone can make you super sick. So I think you need 4 specialists. Have fun. And I think you have OCD with regards to viewing your nose, along with anxiety disoder, perhaps GAD, http://en.wikipedia.org/wiki/Generalized_anxiety_disorder In any event, your "virtual school" can qualify you for services under Section 504.
    Monsterlove 2921 Replies
    • November 27, 2007
    • 07:28 PM
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  • First, you can enroll in a virtual school and do all of your school work online. Depending on what state, www.k12.com is good academically and your state will have a handful of other virtual schools if k12 is not available. There is something specific with low blood pressure and getting from a flat to an up position that indicates something special to a doctor, so I would relay that information. I believe you need to see a cardiologist to check out your heart muscle and see if the low blood pressure is an issue. Your vision is a grave concern. You need to see an opthalmologist. You need to see a neurologist to rule out stroke like condition or brain tumor. You need to see an ear/nose/throat man to determine if you need ear surgery. Your diet may be a contributing factor. Go off sugar and flour. Eat a good diet. Mold is not good. I have a mold eating machine your mom can buy:www.westcoastaircare.comMold alone can make you super sick. So I think you need 4 specialists. Have fun. And I think you have OCD with regards to viewing your nose, along with anxiety disoder, perhaps GAD, http://en.wikipedia.org/wiki/Generalized_anxiety_disorder In any event, your "virtual school" can qualify you for services under Section 504.I don't live in the US so K12 probably won't work :)In any case, I don't have the energy required to do school work, even if I could do it laying in my bed. I've got bigger problems than learning at the moment :(Yes, I'll definately tell my doc about the blood pressure (this tuesday). It's pretty good at times (115/70 or so, pretty much optimal) but low at times (106/67 just now, it's been at 100/61). The real problem is when I get up or move around, though.I very much doubt something stroke-like, but I've thought about it. From some brief reading, it seems most if not all similar problems happen pretty quickly (minutes, never more than hours/days), I've had the some problems for more than 6 months, and smaller problems for years.In any case.Is there really any kind of health problem/"disease" that can cause all this? I feel like a psycho. Not having people (parents, for one) believe that something is physically wrong doesn't help much, either.
    Tranquillity 34 Replies
    • December 1, 2007
    • 10:29 AM
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  • There is something - look into migraine-associated vertigo. I also have extreme motion sensitivity (but didn't until 6 months ago) and get the exact same heavy feeling/pain behind my eyes from the motion. It sometimes feels like vertigo also, but never the classic spinning kind. I've been to 4 neurologists and 2 ENTs, and half have *guessed* BPPV - ridiculous, since it doesn't fit at all: it's not related to head position, lasts for months on end instead of seconds, does not spin, DOES have the ringing in the ears you describe, etc...The vertigo with migrainous vertigo most often does NOT come along with a migraine headache. It just has a similar mechanism, which is not well understood. It may not sound like it fits exactly, but it's the closest I have found so far. From here:http://www.emedicine.com/ent/topic727.htm..."Cutrer and Baloh suggest that when dizziness is unrelated to headache, the dizziness occurs from the release of neuropeptides (ie, neuropeptide substance P, neurokinin A, calcitonin gene–related peptide ). Neuropeptide release has an excitatory effect on the baseline firing rate of the sensory epithelium of the inner ear, as well as on the vestibular nuclei in the pons. Asymmetric neuropeptide release results in the sensation of vertigo. When neuropeptide release is symmetric, the patient feels an increased sensitivity to motion due to an increased vestibular firing rate during head movements. Cutrer and Baloh also propose that CGRP and other neuropeptides may produce a prolonged hormonelike effect as these peptides diffuse into the extracellular fluid. This may explain the prolonged symptoms in some patients with migraine-associated vertigo, as well as the typical progression of persistent spontaneous vertigo followed by benign positional vertigo then motion sensitivity.Serotonin (5-HT) has also been found to be an important substrate in the development of migraine. Interestingly, 5-HT has direct effects on the firing rate of vestibular nucleus neurons. Both the serotonergic and the peptidergic pathways possibly play a role in the development of the short and prolonged periods of dizziness in migraine-associated vertigo. No single hypothesis explains the headache or dizziness process in migraine at this time. Thus, the causes of the symptoms of migraine remain controversial."....You don't have BPPV or a stroke, almost surely. HE, who knows. I also have OCD, which from cursory look at your extensive symptom lists, I'd guess you probably do too (it's not a big deal, it's really treatable - lexapro, buspar). Some therapists believe that people with OCD can become hyper-sensitized to their own sensory input, with things like motion, visual input, vestibular input, etc.- the brain's plasticity means that it actually rewires itself to overreact to (what once was) normal inputs. It becomes a feedback loop, that reinforces itself, especially when the emotional (limbic system) reacts with it's flood of chemicals to the fear these sensations (rightfully) produce. I might not be describing it perfectly, but it's real, and not voodoo.And the thing is, migraine-related vertigo is very common in people who were predisposed to motion sensitivity in the past, and people with OCD are more likely than regular people to have MRV and motion sensitivity too. So, it's not ridiculous to have all three - you could just be wired that way. Two ENTs, one a professor at Stanford who has specialized in dizziness for 15 years, both guessed this as the cause of my symptoms. I'm not completely sold yet, but it's worth a shot. And the treatment for both, OCD and this motion sensitivity are similar. SSRIs like lexapro or zoloft work well for OCD, and (less well) for migraine vertigo. You could try benadryl (diphenhydramine, not the non-drowsy type) for the dizziness, it is an anti-cholinergic which could help the nervous system to become less sensitive. They also give beta-blockers, but you have low blood pressure so they're probably not a good idea (same here). I'd say take Lexapro and buspar (or a benzo like lorazepam if you don't mind the addiction risk). Both will decrease sensitivity. You can do vestibular exercises like the ones linked above for BPPV, just to shake up the ear and eyes, and get them used to reporting movement to your brain and not freaking out. Most importantly, get outta the house and move around. Get back into life as soon as possible. Just like with OCD exposure therapy, you've gotta just do it, and endure the crap feelings. You're not crazy, you're not imaging the symptoms, but (if my amateur diagnosis is correct) there IS a psychosomatic element. Take some pills, endure the dizziness, get back into life and you'll eventually be focusing on things outside of yourself, instead of inside. That's my guess.Good luck, and if you find a magic bullet, tell me, since I think I got the same thing.
    Anonymous 42789 Replies
    • November 5, 2008
    • 11:19 AM
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  • Hi everybody. Sorry, but this will be a LONG post, actually I'll split it to make it more readable.Basic details: Male, 21 years, history of being underweight (still a bit) and having anxiety.The short story:I can't tolerate any kind of motion, whatsoever. I'm not talking about roller coaster rides here, I'm talking about things like WALKING (especially outside), watching TV, reading (unless the book is PERFECTLY still). I get nauseous from the TINIEST motion imaginable, even when the water in my glass moves while I'm eating lunch, or not having the door to my room closed - since I'd see my parents sitting (not perfectly still) in the couch! ANY motion will do, a few seconds of TV is all it takes, especially if the camera is moving.I just can't stand this anymore. My "life" is so extremely far from normal that I can literally not imagine going home to (or even meet, at home) a friend! Needless to say, this is ridiculous, however I assure you that I'm NOT exaggerating even a tiny bit - I wish I was! :(To be crystal clear: I haven't been outside the apartment, AT ALL, for many months, and I'm sick of it! I want a normal life! ****, I'd be happy if I could watch frickin' TV, I'm soooo bored!Now, that's not my only symptom, but by FAR the worst and most limiting. Here are most of the...Symptoms: The motion intolerance! Tired, tired, tired. Decent amount of sleep (8-10 hours) but always tired. Slightly low blood pressure at times, but especially when standing up (even from sitting position). I stand up from bed VERY slowly, or else I feel extremely dizzy and get "blind" for a few seconds. Even when doing it slooooowly I feel (more than usual) dizzy/nauseous. Can't tolerate stress, or anything remotely similar. If somebody asks me to do ANYTHING that isn't lying on the bed, I feel worse. Can't relax, either. I never ever feel truly calm. Not in the morning, not during the day, not when I go to sleep. Depression, and anxiety. I'm pretty sure the depression is mostly caused by my lack of a life, rather than anything else. The anxiety has been there for a long time, though. I'm cold. Always wear extra socks, low body temperature now and then (not extremely low though, but 36.5C/97.7F late afternoon, usually 37C/98.6F though. Runny nose, and cold hands too. Usually a quite high resting pulse, 80-85 most of the time. I haven't counted it below 75-80 even once lately. Easily frightened, i.e. sudden sounds and such. Dry/chapped lips, at least the bottom one. Horrible breath in the morning. I don't have anyone to compare with but I'm pretty sure it's worse than "normal". Dark/purple circles under my eyes, always. Shaky, at least sometimes. Tense, I guess. If I lay down on my bed, and try to relax, my teeth will be shaking slightly. Not really noticeable unless I'm on the bed, but annoying nonetheless. Some kind of acid reflux, or similar. No burning (ever), but rather a disgusting feeling in the back of my throat and/or stomach. Big meals (well, any meal really) makes it worse. Headaches. Not sure exactly what to call it, migraines perhaps. It's not really that painful, just a very annoying "feeling" accompanied by some "special" form of nausea, that I usually refer to as "headache nausea". Hard to explain, but I suppose mentioning it won't hurt. Might be some form of sinus headache; it often hurts "behind" my eyes, or "in" my eyes. Slowly losing weight (despite being underweight) - this is most likely not really a symptom, but rather is caused by my bad appetite, which IS a symptom This will sound weird, but I sometimes see my own nose. Just a big blur of course, but once I notice it, it's very annoying. This is usually accompanied by the headache thing. I think my vision's getting worse, too. In fact, I've wondered if the vision problem is what causes the dizziness thing. Seems partially doubtful since closing my eyes doesn't seem to help at all. Some stomach problems, too. Mostly well-formed but I'm a bit too regular, 2-4 times a day, and diarrhea now and then (3 times a week?). Sometimes floating stools. Sorry for the TMI. Hypoglycemic periods, I think. I can't prove it, so to speak, but it feels like it. It often takes a long time to feel relief even after eating, sometimes there is no change for 30-40 minutes before it starts getting better. Often hungry. I don't really feel like eating, but I do feel hunger, sometimes even just after eating. In other words, my stomach feels empty, but I have no desire to eat. Irritable, now and then. I snap or no reason at all - things like dad bumping into my chair makes me yell a few times a week. Some very minor bleeding in my right eye at times. I'm not sure "bleeding" is the right word for it, a few capillaries are red. Now and then, perhaps a few times a month, I get a loud high-frequency beep in my ear. It fades out on its own within the minute. I have no idea what this is, or if it's even worth noting.All these symptoms are day-long, 24/7, unless otherwise stated (such as the morning breath). Some are most likely not symptoms of the disease itself, but rather symptoms of me not exercising whatsoever. ALL of them can't be because of that, though, because I stopped going outside etc as I progressively got more sick, not the other way around.Phu, that wasn't short. Nor am I done yet. Obviously, I'm very thankful for ANY replies, so if you really can't bother to read it all, please answer anyway if you have something that might be useful for me! You sound like me, and I'm sorry for your troubles. I sincerely feel your pain.Years ago some of these symptoms showed up, turned out to be Lyme disease that had given me encephalitis and swollen chest walls.Recently, I got sudden intense vertigo, accompanied by ringing in my ears... Quite the experience.So after the full allergy panel (where I also discovered a Celiac response), a great ENT doc gave me an MRI with and without contrast.The results point to Ménière's disease...Bottom line: cut out as much salt as possible, and my middle ear doesn't fill up with water anymore. Cutting out gluten solved most of my other issues. Good luck and Godspeed.
    Bywayofzen 1 Replies Flag this Response
  • Hi everybody. Sorry, but this will be a LONG post, actually I'll split it to make it more readable.Basic details: Male, 21 years, history of being underweight (still a bit) and having anxiety.The short story:I can't tolerate any kind of motion, whatsoever. I'm not talking about roller coaster rides here, I'm talking about things like WALKING (especially outside), watching TV, reading (unless the book is PERFECTLY still). I get nauseous from the TINIEST motion imaginable, even when the water in my glass moves while I'm eating lunch, or not having the door to my room closed - since I'd see my parents sitting (not perfectly still) in the couch! ANY motion will do, a few seconds of TV is all it takes, especially if the camera is moving.I just can't stand this anymore. My "life" is so extremely far from normal that I can literally not imagine going home to (or even meet, at home) a friend! Needless to say, this is ridiculous, however I assure you that I'm NOT exaggerating even a tiny bit - I wish I was! :(To be crystal clear: I haven't been outside the apartment, AT ALL, for many months, and I'm sick of it! I want a normal life! ****, I'd be happy if I could watch frickin' TV, I'm soooo bored!Now, that's not my only symptom, but by FAR the worst and most limiting. Here are most of the...Symptoms: The motion intolerance! Tired, tired, tired. Decent amount of sleep (8-10 hours) but always tired. Slightly low blood pressure at times, but especially when standing up (even from sitting position). I stand up from bed VERY slowly, or else I feel extremely dizzy and get "blind" for a few seconds. Even when doing it slooooowly I feel (more than usual) dizzy/nauseous. Can't tolerate stress, or anything remotely similar. If somebody asks me to do ANYTHING that isn't lying on the bed, I feel worse. Can't relax, either. I never ever feel truly calm. Not in the morning, not during the day, not when I go to sleep. Depression, and anxiety. I'm pretty sure the depression is mostly caused by my lack of a life, rather than anything else. The anxiety has been there for a long time, though. I'm cold. Always wear extra socks, low body temperature now and then (not extremely low though, but 36.5C/97.7F late afternoon, usually 37C/98.6F though. Runny nose, and cold hands too. Usually a quite high resting pulse, 80-85 most of the time. I haven't counted it below 75-80 even once lately. Easily frightened, i.e. sudden sounds and such. Dry/chapped lips, at least the bottom one. Horrible breath in the morning. I don't have anyone to compare with but I'm pretty sure it's worse than "normal". Dark/purple circles under my eyes, always. Shaky, at least sometimes. Tense, I guess. If I lay down on my bed, and try to relax, my teeth will be shaking slightly. Not really noticeable unless I'm on the bed, but annoying nonetheless. Some kind of acid reflux, or similar. No burning (ever), but rather a disgusting feeling in the back of my throat and/or stomach. Big meals (well, any meal really) makes it worse. Headaches. Not sure exactly what to call it, migraines perhaps. It's not really that painful, just a very annoying "feeling" accompanied by some "special" form of nausea, that I usually refer to as "headache nausea". Hard to explain, but I suppose mentioning it won't hurt. Might be some form of sinus headache; it often hurts "behind" my eyes, or "in" my eyes. Slowly losing weight (despite being underweight) - this is most likely not really a symptom, but rather is caused by my bad appetite, which IS a symptom This will sound weird, but I sometimes see my own nose. Just a big blur of course, but once I notice it, it's very annoying. This is usually accompanied by the headache thing. I think my vision's getting worse, too. In fact, I've wondered if the vision problem is what causes the dizziness thing. Seems partially doubtful since closing my eyes doesn't seem to help at all. Some stomach problems, too. Mostly well-formed but I'm a bit too regular, 2-4 times a day, and diarrhea now and then (3 times a week?). Sometimes floating stools. Sorry for the TMI. Hypoglycemic periods, I think. I can't prove it, so to speak, but it feels like it. It often takes a long time to feel relief even after eating, sometimes there is no change for 30-40 minutes before it starts getting better. Often hungry. I don't really feel like eating, but I do feel hunger, sometimes even just after eating. In other words, my stomach feels empty, but I have no desire to eat. Irritable, now and then. I snap or no reason at all - things like dad bumping into my chair makes me yell a few times a week. Some very minor bleeding in my right eye at times. I'm not sure "bleeding" is the right word for it, a few capillaries are red. Now and then, perhaps a few times a month, I get a loud high-frequency beep in my ear. It fades out on its own within the minute. I have no idea what this is, or if it's even worth noting.All these symptoms are day-long, 24/7, unless otherwise stated (such as the morning breath). Some are most likely not symptoms of the disease itself, but rather symptoms of me not exercising whatsoever. ALL of them can't be because of that, though, because I stopped going outside etc as I progressively got more sick, not the other way around.Phu, that wasn't short. Nor am I done yet. Obviously, I'm very thankful for ANY replies, so if you really can't bother to read it all, please answer anyway if you have something that might be useful for me! Hi- I just found this recently, athough it has been a few years. I hope you are better. Please look at the symptoms of dysautonomia. They are almost identical. We have been dealing with this for almost 2 years with my son. Very few people know much about it, but a great resource is DINET.org. It's uncanny how your symptoms mirror my son's. Please let us know how you are doing now. THank you.
    beverlyz 2 Replies
    • December 1, 2013
    • 07:38 PM
    • 0
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  • (Pg.1)Hi Tranquility. I also have been battling chronic motion sickness/intolerance for about 14 years. I have highlighted pretty much every symptom that you have. It has been as severe as yours but has subsided quite a lot over the years. Here are a few tips that helped me: Have your iron levels checked(the normal is between 40-200). Mine was at 5 when first tested, I am now at 49. This helps with lightheadedness because iron produces red blood cells and red blood cells produce oxygen. (con't)
    Anonymous 1 Replies
    • August 18, 2014
    • 07:33 PM
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  • (Pg#2)Tranquility. (Iron pills)If your body is lacking oxygen then lightheadedness happens(this will help with tiredness as well). For your hands and feet being cold, try cayenne pills(a low dose to start) it helps with circulation. I believe alot of the other symptoms are from just being stressed about being dizzy. I know how frustrating it is not to live a normal life, I hope what I've shared helps and one more thing, I use a herbal called "Vertigoheel" it helps with the dizziness.
    Anonymous 1 Replies
    • August 18, 2014
    • 08:05 PM
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