I have had 2 episodes of a sudden Hgb of 5.1, requiring transfusions (9 units total between the 2). The second occurred 18 days after the first. I have had 2 endoscopies, one colonoscopy (all negative even for polyps) so they had me eat a camera - results were negative. I have no hematuria, no vaginal bleeding, no bloody nose, no bleeding gums, no occult bleeding, CT scan w contrast was negative, no AV malformations, no hemolytic anemia (normal haptoglobin).
The lab profiles are consistent w a massive hemorrhage but there is no blood anywhere. Taking iron every day & stabilized at a Hgb of 11.3 - 11.5 a year later. But now suddenly I feel the distinct symptoms again: pounding heart rate of 116, feel faint & overwhelming despair for no reason. No appetite, no energy & pain in both shoulders & pectorals - forced hyperventilation helps. Professors (gastro, cardiology, hematology, internal med) at the med center can't figure it out. Any ideas?? Thanks -