Discussions By Condition: I cannot get a diagnosis.

Exercise induced muscle heaviness, weakness

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • July 23, 2007
  • 09:09 PM

I used to exercise about 30 minutes, three times a week, for over five years. Then I had to cut back on my exercise because my muscles (in legs) started hurting and felt stiff, heavy and sore...after shorter and shorter times at the gym. Then, two months ago my upper arms got stiff heavy and sore, with mild exertion, (like loading the washing machine). When this happens, my upper arms get weak and burn inside. I have to wait overnight for it to get better. My doctor took a blood test for muscle function called creatine kinase and it was normal. It seems like my symptoms are moving upward from my legs into my arms. And they go away overnight. What should I do?

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10 Replies:

  • Could be hyperlactatemia which is the symptom of MANY diseases. If it were me, I would get a muscle biopsy.
    rad-skw 1605 Replies Flag this Response
  • Thank you...i also forgot to mention that my neck, back and low spine are stiff...and...could this be ms? you seem to know more than my doctor, who has not even taken an mri of my spine! i am a female-age 54, and i have lost 2 1/2 inches in height since 2001, but my doctor said "that's nothing!" i want to get another doctior, but i lost my insurance...
    Anonymous 42789 Replies Flag this Response
  • Your age makes me think of hyper-parathyroidism. I felt like I had the flu for a year before it was diagnosed. The over-grown parathyroid is sending the message that your body needs more calcium. Calcium will leach out of your bones and enter the blood stream..where it might end up as kidney stones. Losing height may be because of de-mineralization of the spine. Get a full body bone density scan done. Get lab work. The surgery is relatively simple. Mine was first diagnosed by lab work. I had to kick and scream to get that done and I told my doctor I didn't need Prozac, I needed a diagnosis. Do you live near a teaching hospital? They might have ways and means for pts. without insurance.
    rad-skw 1605 Replies Flag this Response
  • i live near case western reserve university...and the doctors i went to are at a local well known hospital...and they do not take me seriously!
    Anonymous 42789 Replies Flag this Response
  • Call the doctor's office and ask the nurse, not the receptionist, if you have been tested for hyperparathyroidism. If not, make an appointment and tell the doc your worst three symptoms. (Demineralization of your bones, muscle weakness and are you having bone pain? like you hurt all over?). Hope this helps.
    rad-skw 1605 Replies Flag this Response
  • Thank you. I use the computer at the library...and that is why it took me so long to reply. I will do as you suggest. I will let you know what happens...but this may take a few weeks.
    Anonymous 42789 Replies Flag this Response
  • Hey I Have The Exact Same Thing , The Leg Stiffness And Soreness , My Arms Burn When I Brush My Teeth , And My Exams Came Out Clean , What Did You Do Next ? Im Running Out Of Options And Getting Pretty Upset!
    Anonymous 42789 Replies
    • September 6, 2008
    • 02:44 AM
    • 0
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  • When you get worked up by a physician, please consider getting tested for a Vitamin D deficiency - it will often be overlooked as a source. It will present with proximal muscle weakness - that means most of the weakness will be in the thighs and upper arms (front of the neck might feel a little weak too). It might be difficult to rise from chairs, the toilet, or get out of your car. You might find pushing things difficult. Stairs can sometimes feel challenging - you might even be weak enough that you need assistance with stairs. Drying your hair and brushing your teeth might be difficult. In the mornings you might feel pretty good and find that your symptoms worsen as the day progresses or if you exert yourself. Your legs might feel heavier and heavier. It might feel like you are "hitting a wall" in the afternoon. Your gait might look or feel a bit like you're waddling. You might find that you're weakness is accompanied by a deep ache in your muscles that's not relieved by anything. If you are female your symptoms might worsen during your menstrual cycle. Alcohol and dehydration might worsen your symptoms. Rest and sleep will improve your symptoms. If you are actually Vitamin D deficient with a vitamin D proximal muscle myopathy - supplements can essentially eliminate the symptoms. It will take a couple of weeks to a month to really see the difference. Caution should be used with supplements. Vitamin D is a fat soluble vitamin that can build up and people can get toxic doses. Go to your doctor get a vitamin D level and let them direct your supplementation, but keep in mind this is fairly new information and a lot of doctors are not aware of the problems associated with vitamin D deficiency or how to correct it.
    Anonymous 42789 Replies
    • October 25, 2008
    • 11:56 PM
    • 0
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  • Interesting you mention Vitamin D levels. Mine are almost toxic in the absence of supplements or dietary intake. I don't have kidney stones that I know of, do have bladder urgency and gall stones bad enough that now my liver enzymes are messed up with some mild jaundice setting in. Hmmm...other primary issues include over 20 lesions on my brain which the neuro specialist feels are strokes and significant trouble breathing upon exertion and anticardiolipin antibody syndrome. The ankle spasms are becoming extremely painful in addition to the increasing weakness, fatigue, stiffness, etc. And, I have been tested for all the thyroid conditions and my calcium. Upcoming tests include results of much blood work to rule out Sjorgen's and Mitochondrial Myopathy as well as further evaluate the potential of transient blood clotting causing brain lesions, Gallium Scan and Spiral CT of Chest. Any best guess is appreciated. Also, I'm happy to answer any questions which might facilitate a differential. Thank you very much!
    dennisandkristen 1 Replies
    • October 26, 2008
    • 06:16 PM
    • 0
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  • Have you been checked for Sarcoidosis or refered to as Neurosarcoidosis when sensory is involved? It is an autoimmune disease that is very difficult to diagnose. It does cause brain lesions and trouble breathing upon exertion because the disease can inflame chest lymph nodes. Also people with this disease can have abnormally high calcium levels due to abnormal manufactering of vitamen D caused by the disease. You need a chest x-ray and the specific antibody blood test for the disease and maybe a spinal tap to examine spinal fluid in order to rule out diagnoseHope this helpsEMInteresting you mention Vitamin D levels. Mine are almost toxic in the absence of supplements or dietary intake. I don't have kidney stones that I know of, do have bladder urgency and gall stones bad enough that now my liver enzymes are messed up with some mild jaundice setting in. Hmmm...other primary issues include over 20 lesions on my brain which the neuro specialist feels are strokes and significant trouble breathing upon exertion and anticardiolipin antibody syndrome. The ankle spasms are becoming extremely painful in addition to the increasing weakness, fatigue, stiffness, etc. And, I have been tested for all the thyroid conditions and my calcium. Upcoming tests include results of much blood work to rule out Sjorgen's and Mitochondrial Myopathy as well as further evaluate the potential of transient blood clotting causing brain lesions, Gallium Scan and Spiral CT of Chest. Any best guess is appreciated. Also, I'm happy to answer any questions which might facilitate a differential. Thank you very much!
    Anonymous 42789 Replies
    • October 25, 2009
    • 02:07 PM
    • 0
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