Discussions By Condition: I cannot get a diagnosis.

Excruciating joint pain that comes and goes

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: ccross04
  • August 10, 2013
  • 06:48 AM

Hello,
I'm a 23 year old female that is active and healthy. Growing up, I had a condition called osgood-schlatter disease. I have always been very active either in sports at school or martial arts. The doctors said that I would grow out of osgood-schlatter as I grew out of it. The pain has always been there. I remember countless nights crying, because my legs hurt so bad and my dad bringing me a heating pad to try and help.
Now that I am not a little child anymore, I am wondering if it is something else, because the problem has never gone away.
What happens is in my joints (it doesn't happen in all the joints at once, it is usually only the main joints like leg joints or arm joints), a dull
ache starts, and it grows into a pain that is only describable is a liquid flame that hurts so bad sometimes I can't put pressure on it. Normally, it begins under my knee cap and the radiates up the outside nerve of my thigh until it gets to my hip joint and down the outside nerve of my shin into my ankle. Sometimes, this happens in my elbows and goes to my should joint and my wrist, but this doesn't happen as often and it doesn't usualy hurt as bad.
The doctors always try to isolate a trigger that causes this, and we haven't found anything I can do to make this happen. They wanted to see if exercise, certain foods, lack of use, etc brings this on, but nothing ever consistently was linked to it. It just happens sometimes.
The length of time the pain lasts and its intensity varies.
Sometimes, I am able to take 2 Alieve and it will eventually help ease the, however, this could also just be the pain itself easing off before the Alieve can kick in. Using a heating pad on the back of my hip helps the pain, if it is my leg that is hurting.
I have been to several doctors and none of them have been able to actually tell me anything about what is happening and how to fix it. Some think I am making something up to get pain medicine, but I always turn it down because the Alieve does the exact same as prescription pain medicine.
Like I said above, this has been happening as far back as I can remember in my life, and it is a problem that I would very much like to go away.
If anyone has any advice or information, it would be greatly appreciated.

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