Discussions By Condition: I cannot get a diagnosis.

Eposodic Muscle Weakness

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: fastmat23
  • August 28, 2012
  • 04:20 PM


35 yr old Caucasian Male

For the past 4 years I have been having on/off periods of muscle weakness. The first occurrence was in Spring 2008 just as I was completing the construction of my new home. My legs became weak and I started feeling tired. I assumed it was from the extensive manual labor involved in building my house. I decided to see my family doctor who did some blood work. He tested my CPK which was 304 and I also tested positive for Epstein Barr. All other blood work was normal. Shortly after seeing the Dr. my weakness went away. Roughly a year/half later July 2009 the same symptoms came back. Weak/achy legs. Primarily my calf muscles. Sore only in the calf. The Dr. did additional blood work and my CPK was 208. All other tests were normal. About 2 months ago the weak/achy legs came back. It started with the sore calf muscles and moved into my thigh. I decided it was time to see a specialist. The Dr. once again did a complete work-up. All blood-work was normal. My CPK was 364. After a month of weak/sore legs my arms started feeling weak. I then revisited the Dr. wondering why I was feeling this way. He then referred me to a neurologist. At the time I also had the Dr. look into a cough I had. He prescribed me a Z-pack. After day 3 of the antibiotic I started feeling better. The weakness started to go away. Yesterday I seen a Neurologist who did a complete exam. said I was perfect. He wrote on the sheet Polymyositis as diagnosis. He said he dosent think its that but needs to do a EMG and re-test my CPK levels. For the past couple weeks I have been kind of going through a worry-some/depression mode due to the fact that no-one can diagnose me. Im not looking for something to be wrong but I know being tired all the time isnt going to work for me. Any ideas? Or possible herbal treatments for weakness? I have no family history of muscle disorders so I am kind of confused. It seems like the weakness comes on when my immune system is low. Was just seeing what you think! Thank you for reading! Just a quick background, 1. Im 35yrs old male. 2. Married with one Child 2yrs old. 3. I have a desk job active when I get home. 4. Smoked the past 10yrs quit 2weeks ago. 5. Been using Imitrex for Migrane headaches the past 10yrs+ 6. Socially drink 7. No drug use 8.Only take multi-vitamin and fish oil. Daily.

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  • Dear Sir, I have polymyositis since 2001. I went undiagnosed for 3 years. What confirmed it was a blood test. I am anti-jo 1 positive. I take plaquinil, Immuran and cortisone to ease the pain and help me function. My cpk was at 17000 and my sedimentation rate at 49. It's come down since the meds. Hope this helps
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