Discussions By Condition: I cannot get a diagnosis.

Enlarged thyroid, normal blood tests, very tired

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: kentishman
  • April 24, 2007
  • 06:45 PM

Hi,
My partner has an enlarged thyroid but the blood tests are normal and things have come to a standstill with family doctor. Small nodule seen in ultraound but ruled out as anything sinister. She is unusually tired and as aching limbs. Thyroid problems run the family. What can she do next ?
Thanks in advance.

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8 Replies:

  • She needs to have her thyroid anitbodies checked. I have Hashimoto's, it is autoimmune thyroid disease. A lot of people with Hashimoto's have normal TSH, T4, & T3 levels, but their antibodies are high and they may have an enlarged thyroid with nodules.
    Anonymous 42789 Replies Flag this Response
  • Hi,My partner has an enlarged thyroid but the blood tests are normal and things have come to a standstill with family doctor. Small nodule seen in ultraound but ruled out as anything sinister. She is unusually tired and as aching limbs. Thyroid problems run the family. What can she do next ? Thanks in advance.What tests? blood levels? biopsy? ct scan??
    Anonymous 42789 Replies Flag this Response
  • Find an alt doc that uses saliva tests and have it checked that way. Often the blood and saliva test results can be very different and the saliva can be more indicative of what is really going on.
    Anonymous 42789 Replies Flag this Response
  • Hi,My partner has an enlarged thyroid but the blood tests are normal and things have come to a standstill with family doctor. Small nodule seen in ultraound but ruled out as anything sinister. She is unusually tired and as aching limbs. Thyroid problems run the family. What can she do next ? Thanks in advance.Was a biopsy done? Sometimes, this can detect abnormal cells. Also, ruling out sinister (if complete and rigorous tests done) still does not answer why growth is there (how long? rate of growth being tracked?) Diet implications? (Speaking as a person who had thyroid cancer... who had an enlarged "gland" ultimately diag'd as thyroid ca) Not that your partner has this...i hope not...but, still, you are right to seek an answer for whatever it is. have you gone to an endocrinologist? (my guess is yes) also, know that the biopsies are not always definitive since the "slices" have to get just the right aspect ...nodules, etc.) not to go on and on, if your interested in more details, google thyroid cancer, the academic and medical sites and assoc's will tell you a great deal, give you a good understanding of how this breaks out in diagnosing (even "just" goiters and off-levels of TSH, etc)I know you will keep searching for a solution and not let this go.
    anon inca 1 Replies Flag this Response
  • check out this site ahummingbirdsguide.com see how many sx pertain to you There are several people on this site who have very similar sx... a nodular thyroid is one of the problems associated with the disease listed on the above site...best of luck...mommy cat
    mommy cat 1654 Replies Flag this Response
  • Thanks for your comments so far ! Much appreciated. (by the way, no biopsies done as yet)
    kentishman 19 Replies Flag this Response
  • www.ahummingbirdsguide.com it is not about hummingbirds...it is a disease called ME look at it, there are several sx and you have some...also look at page that says ME patients may also have... a nodular thyroid is one...good luck...
    mommy cat 1654 Replies Flag this Response
  • I was diagnosed with Hashimoto's Thyroiditis 30 years ago and was on .1 mg of Synthroid. My thyroid was enlarged, I was tired, my joints ached, I had gained a lot of weight yet my tests were in the "normal" range. I was also diagnosed with lupus 15 years ago. Recently I changed doctors and found that I did not have lupus, I was under-medicated for thyroid. My doctor felt that I was near the border of the so-called "normal" range. She has found some of her patients were exceptions to this range and after slowly upping my Snynthroid level to .15, all of my so-called lupus symptoms went away and after seeing a rheumatologist, I did NOT have lupus!!! My thyroid is no longer enlarged either. If I were you, I'd change doctors. BTW, I went through 4 doctors before I found one that made any sense. Most doctors just want to treat symptoms or fluff you off rather than taking the time to get to the root cause. I hope this helps you.
    Anonymous 42789 Replies Flag this Response
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