Discussions By Condition: I cannot get a diagnosis.

Ehlers-Danlos Syndrome

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: CrossMyHeart08
  • January 12, 2007
  • 08:34 PM

Hey, my name's Johnna, and I'll be 17 on the 25th. Over the summer, I was diagnosed with Ehlers-Danlos Syndrome.
I'm relatively young, and have a difficult time keeping up with my friends. It's extremely hard to do every day tasks at school now. I have a difficult time going down stairs, so I use the elevator (and get nasty glares from people for doing so, as it looks like there's nothing wrong with me.) I'm trying my best to handle the pain, but some days it just feels like I'm at my wit's end. Does anyone have any suggestions on how to help the physical pain and how to handle school life?


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  • I am sorry you have such a condition and being so young. I did not know what it was so I looked it up. There is a website with message boards http://www.ednf.org/ that is probably the best place to start. Good Luck:)
    nccarol28732 44 Replies
    • January 14, 2007
    • 04:15 PM
    • 0
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