Discussions By Condition: I cannot get a diagnosis.

Dry eyes, dry nose, dry skin, constant thirst - help?

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: BethanyisAWAKe
  • January 12, 2009
  • 06:36 AM

Hi,

I'm a 17-year-old girls who's quite fed up with a dryness problem. The most severe symptom is dry eye. I've always had dry eye to some extent, but about a year ago it became significantly worse after I'd been wearing contact lenses for a while. Naturally, I visited an eye doctor, who did a few tests and was quite surprised at how little tears my eyes were even producing. Eventually I had punctal plugs put in, and was prescribed Restasis, which I use faithfully two times a day, and permanently switched from contacts to glasses. I haven't noticed any improvement since the plugs were put in. The Restasis seemed to help for a while, but it's not a terribly great improvement. I use normal eye lubricants from time to time, but not often as they simply seem to go in my eye without doing anything, or just remind me for a split second how dry my eyes are!

In addition to all this, I've had nosebleeds for almost as long as I can remember. They were particularly horrible when I was about 10-11. I had 3 cauterizations (one and two weren't enough) and was alright for a while, but I still bleed at least once a week or so. I can feel how dry my nasal passages are; it sort of stings. I use Aquaphor almost every night, and always carry AYR gel. Neither provide any permanent help.

I've also got dry skin. Nothing like the dry eye, but still, I have to be vigilant about using some heavy-duty body lotion at least every day, and always always carry around hand lotion - my hands crack all the time.

Finally, I'm always thirsty. I can hardly go fifteen minutes without needing a drink of water. My mouth doesn't "feel" dry, but the thirst is terrible. I drink at least five or six large bottle's worth a day. If I don't my dry eyes, nose and skin get even worse.

It doesn't help that I live in an extremely dry climate; it's hard to tell where the climate ends and my body screwing up begins.

If anyone has even taken the time to read this, I am eternally grateful to you! If you've experienced something similar or even heard of something remotely like what I've described, please, please reply. I'm afraid going to my doctor at this point would be fruitless; likely I'd just get more remedies for the symptoms (which I've tried to treat in any way I can), not an actual answer. I've had plenty of experience with the medical world for a few other conditions, so I know how it all works. I'm not stupid - I just believe my best shot at getting to the bottom of this is talking to people here.

Thank you so much to anyone who even read about my difficulties!

Sincerely,
Bethany

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9 Replies:

  • im not sure if i can help but i have heard that extreme thirst can be a sign of diabetes
    porcelain 36 Replies
    • February 23, 2009
    • 07:55 AM
    • 0
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  • I saw on discovery channel the other day a part of an episode about this girl that could not stop drinking tons and tons of water. Have you hit your head hard at any point? She apparently did something to her pituitary gland and it stopped production of a hormone that allowed for water absorption. Might be that diagnosis you're looking for.
    Anonymous 42789 Replies
    • February 23, 2009
    • 08:04 AM
    • 0
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  • I suggest that you investigate Sjogren's syndrome also called Sicca Syndrome heres a link http://www.sjogrens.org/syndrome/faqs.html What are the symptoms of Sjögren's syndrome?Symptoms may include a dry, gritty, or burning sensation in the eyes; difficulty talking, chewing, or swallowing; a sore or cracked tongue; dry or burning throat; a change in the sense of taste or smell; increased dental decay; joint pain; digestive problems; dry nose; dry skin; and fatigue. No two people have the exact same set of symptoms. Is it easy to diagnose Sjögren's syndrome?Sjögren's syndrome often is undiagnosed or misdiagnosed.
    taniaaust1 2267 Replies
    • February 23, 2009
    • 10:00 AM
    • 0
    Flag this Response
  • Yes, it sounds like you have Sjogrens Syndrome. There is a prescription treatment called Evoxac that might relieve your dry mouth issues better than most over the counter remedies, or all that water.Good Luck!
    Anonymous 42789 Replies
    • December 3, 2009
    • 03:52 AM
    • 0
    Flag this Response
  • Hi Bethany,Funny but I have some similar symptoms to yours although it's only for a few days. It is driving me nuts. I am constantly thirsty and totally dried out. Wondering if you managed to find a cure for your troubles.Christian
    Anonymous 42789 Replies
    • January 5, 2010
    • 09:22 PM
    • 0
    Flag this Response
  • Hi,I'm a 17-year-old girls who's quite fed up with a dryness problem. The most severe symptom is dry eye. I've always had dry eye to some extent, but about a year ago it became significantly worse after I'd been wearing contact lenses for a while. Naturally, I visited an eye doctor, who did a few tests and was quite surprised at how little tears my eyes were even producing. Eventually I had punctal plugs put in, and was prescribed Restasis, which I use faithfully two times a day, and permanently switched from contacts to glasses. I haven't noticed any improvement since the plugs were put in. The Restasis seemed to help for a while, but it's not a terribly great improvement. I use normal eye lubricants from time to time, but not often as they simply seem to go in my eye without doing anything, or just remind me for a split second how dry my eyes are!In addition to all this, I've had nosebleeds for almost as long as I can remember. They were particularly horrible when I was about 10-11. I had 3 cauterizations (one and two weren't enough) and was alright for a while, but I still bleed at least once a week or so. I can feel how dry my nasal passages are; it sort of stings. I use Aquaphor almost every night, and always carry AYR gel. Neither provide any permanent help.I've also got dry skin. Nothing like the dry eye, but still, I have to be vigilant about using some heavy-duty body lotion at least every day, and always always carry around hand lotion - my hands crack all the time.Finally, I'm always thirsty. I can hardly go fifteen minutes without needing a drink of water. My mouth doesn't "feel" dry, but the thirst is terrible. I drink at least five or six large bottle's worth a day. If I don't my dry eyes, nose and skin get even worse. It doesn't help that I live in an extremely dry climate; it's hard to tell where the climate ends and my body screwing up begins. If anyone has even taken the time to read this, I am eternally grateful to you! If you've experienced something similar or even heard of something remotely like what I've described, please, please reply. I'm afraid going to my doctor at this point would be fruitless; likely I'd just get more remedies for the symptoms (which I've tried to treat in any way I can), not an actual answer. I've had plenty of experience with the medical world for a few other conditions, so I know how it all works. I'm not stupid - I just believe my best shot at getting to the bottom of this is talking to people here.Thank you so much to anyone who even read about my difficulties!Sincerely, BethanyHave your self checked for Diabetes
    Anonymous 42789 Replies
    • January 6, 2010
    • 04:42 AM
    • 0
    Flag this Response
  • Dear Bethany, Thanks for your post. I also have dryness in mouth and eyes for half a year now. Nobody point me to the right cause or treatment. I will investigate about the Sjögren's syndrome. Did you test on this? Thank you,Jasmine
    Anonymous 42789 Replies Flag this Response
  • Bethany, I had all the symptoms you do, and had my punctums closed as well. My corneas were scratched very badly and I constantly applied dry eye drops as well as nightly ointments. Then my Labrador retriever died that I had had for 12 years. Four months later my eyes were very much better. I still use an ointment for the interior ofmy nose (I now have a hypo allergenic pet), but overall, my symptoms have dissipated substantially. My Lab never caused me to sneeze, I didn't cough, and I didn't have skin reactions to the Labrador. However, the causal effects of the dog's dander was pretty obvious after she died.I'd suggest you go to an allergist and have the skin scratch tests. I think you'll be surprised at the results. In addition, I know of another person who had the same reaction to their dog (coincidentally a Lab, too) and had to give up her glasses like me. All the best!
    Anonymous 42789 Replies Flag this Response
  • I had the same sort of symptoms that Bethany described for about 8 months - eyes always dry and skin. It was so bad with my eyes that I could hardly hold eye contact during conversations, because I always felt the need to blink a lot or close them. Eye drops did not even help.Good news though; I did something that drastically improved my situation.After these 8 months of great torment, a family member suggested that I switch my shampoo and body soap products. Miraculously, since I have started using new soap products my condition has improved tremendously; and this is understandable. Let me explain. The typical soap products that you can buy at the store often contain harsh substances, and the main one that I will point out is SLS, or Sodium Lauryl Sulfate. Take a look at http://www.natural-health-information-centre.com/sodium-lauryl-sulfate.html to read up on it a bit. This is a harsh chemical used (in higher concentrations) in cleaning applications, and in biological labs for lysing cells to extact DNA (I’ve even used it for this purpose in the lab before). It’s rough on your skin and prolonged use can cause skin irritation in some people. I switched to a shampoo that does not use SLS, or any detergents or parabens. I did the same with my body soap. My condition greatly improved as of this switch. I am still not back to normal – I still have dry skin and eyes to some degree; but the point is that I feel that I can have my social life back because my condition is manageable now. I can once again actually hold a conversation with somebody without having to look down or blink constantly, and I don’t feel the need to have to take off my shirt because my skin is irritable.So, I wanted to share with others what has helped me out a lot. My advice to you all – switch your soaps to something that is SLS free, and use natural, plant-based washing detergent for your clothes. Drinks lots of liquids to keep your skin hydrated. But above all, SWITCH YOUR SOAPS.-Nathan
    Anonymous 42789 Replies
    • January 5, 2011
    • 07:38 AM
    • 0
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