I may have fibromuscular dysplasia. That's the current hypothesis and I'm waiting for results of a CTA, which should -- as I understand it -- tell me definitively, but I understand the symptoms of FMD are often mistaken for something else and it's very rare for this disease to occur in males, anyway (which I am), so even a positive diagnosis shouldn't be trusted.
I am under 40 (39, to be precise). During the last 10 years, I have had two strokes. The second one was much worse than the first. I got to the hospital in time to be administered that clot-busting drug, but it had no effect on me (which makes sense, because the stroke -- as the first stroke before it -- was caused by a dissection, not a clot). I ended up entirely paralyzed on my right side.
For a few years before my most recent stroke, I have also been having problems with erections. The problems began in the last year or two into my marriage (more on that later) with my erections gradually losing potency, to the point that after the second stroke, I haven't been able to become erect at all. Not even a morning erection when I wake up. The problems continued, gradually getting worse, all throughout my separation.
Then I had my stroke (before the impotence was resolved). I understand lowered testosterone can be quite common after a stroke, and that was true with me. I consulted a urologist who prescribed Androgel for a few months. My testosterone level got back into a normal range, but I still had the same erection problems.
Because my marriage was ending, it was hypothesized by several doctors that my problems were more psychological than anything else (leaving alone that the first signs of a problem pre-dated my separation). Although I initially bought this, at this point, I'm convinced that's not correct.
I'm beginning to think there's a connection between my stroke & dissection on the one hand and the impotence on the other. I no longer believe these are independent issues. (I seem to also have a cardiac issue that's causing some concern, but I just found out about it and don't yet know enough to talk about it.)
After a recent evaluation by a specialist (a geneticist) at an academic center, it was hypothesized that I have FMD. They sent me for my recent CTA to make sure.
My question is, does this sound like FMD to anyone? Or does it sound like something else?