Discussions By Condition: I cannot get a diagnosis.

Does this sound familiar to anyone?

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: RStevens43
  • August 29, 2007
  • 00:47 AM

Elevated Sed rate, Positive ANA, Elevated Anti-histones, C-reactive Protein, C3C. Sleep Apnea, 140 lb weight gain from prednizone, fatigue, extreme fatique in winter, hand and feet swelling, sleep apnea, asthma,pain in all joints, hump on neck, very large stomach girth, little skinny feet and hands. I have been diagnosed with:
RA, Raynauds, Mono, Lupus, possible secondary sjogrens, fibromyalgia, cushing like appearance and flu (repeatedly after 18 hospitalizations in 5 years and each time it was pleurisy, flu or pneumonia).
The last Rheumatologist I went to thought it might be lupus but said I needed further testing. I have no insurance and can not afford more pin sticking. Does all this sound familiar to anyone. I am physically and emotionally exhausted.

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  • I have very similar pains to what your describing, and it took my doctors 23 yrs to diagnose my problem, in the end they said I have Jesners Lymphositic Infiltrate, and this is a member of the Lupas family. Its the Lymph Glands that dont work properly and I come out in severe looking spots very itchy and sometimes they are painful to the touch. The pain in the joints is Athrities, the sleep apnia is due to the pain in the joints where the arms and hands go numb and the pain wakes you up. To get a nights sleep with not waking up so much, I take 4 of 30mg co-drydomol and 2 sleeping pills, it does the trick but I feel groggy in the morning, but at least Ive had a bit of a sleep. I do this once a week, as I dont want to get addicted to the pills. Hope Ive helped you a little.
    Anonymous 42789 Replies
    • August 29, 2007
    • 01:55 AM
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  • With the positive ANA it sounds like it could be Lupus. But with the hump, if on the very upper part of back and the large stomach girth and the swelling it could be Cushing Disease. Keep going and don't give up!
    Anonymous 42789 Replies
    • August 29, 2007
    • 08:28 AM
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  • Elevated Sed rate, Positive ANA, Elevated Anti-histones, C-reactive Protein, C3C. Sleep Apnea, 140 lb weight gain from prednizone, fatigue, extreme fatique in winter, hand and feet swelling, sleep apnea, asthma,pain in all joints, hump on neck, very large stomach girth, little skinny feet and hands. I have been diagnosed with:RA, Raynauds, Mono, Lupus, possible secondary sjogrens, fibromyalgia, cushing like appearance and flu (repeatedly after 18 hospitalizations in 5 years and each time it was pleurisy, flu or pneumonia).The last Rheumatologist I went to thought it might be lupus but said I needed further testing. I have no insurance and can not afford more pin sticking. Does all this sound familiar to anyone. I am physically and emotionally exhausted.I'm no doctor but it really sounds like you have Cushings. Here are the symptoms:Moon face (round, red, and full) Buffalo hump (a collection of fat between the shoulders or on the neck) Central obesity with protruding abdomen and thin extremities Weight gain (unintentional) Weakness Backache Headache Acne or superficial skin infections Thin skin with easy bruising Purple striations on the skin of the abdomen, thighs, and breasts Mental changes Impotence or cessation of menses Facial hair growth Skin spots, red Skin blushing/flushing Muscle atrophy Fatigue Bone pain or tenderness High blood pressure I would strongly encourage you to have your serum cortisol levels tested. If you have Cushings they will be high. The test is done in the early morning when cortisol levels are the highest. Your glucose levels may elevated and your potassium may be low as well if you have Cushings.
    Anonymous 42789 Replies
    • August 31, 2007
    • 04:34 AM
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