Discussions By Condition: I cannot get a diagnosis.

Does one of you have this...?

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Anonymous
  • December 10, 2006
  • 00:30 AM

:mad: I have few health issues. I have chronic pain for almost 15 years now.
Was diagnosed with Fibromyalgia about 5 years ago,I take morphine that helps a lot, it keeps me able to do my usual daily activies, except exercices.
I have redness and heat on my ear lobe in the evening if I drink a bit of wine or alcohol it is my whole face it burns like ....
I have a severe problem with profuse perspiration starting on the top of my head and going down. I had that before the pain meds.I don't get . I am lucky in my bad luck I don't smell sweaty. My gp gave me clonidine but it doesn't help much.it is not menopause cause I am over 60. He told me to learn to live with it. I saw 2 endo and they did not help, they took me off all my meds to no avail. This is not a social thing it comes the minute I move and get my heart 2-5 beats higher. I also have tinnitus that sound like crickets it pulses like my heart I had MIR and nothing is wrong there but that noise is with me 24/7 sometimes keep me awake or wakes me during the night mostly early morning.:eek:
If someone has the same and can share...mainly for the ear lobe, face and sweating.
Thank you for reading. Menow

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9 Replies:

  • I dont have all the answers and I am not a doctor but it sounds like you may be allergic to alcohol. I actually know a couple of people that as little as a shot of alcohol will cause them to perspire profusly and their whole head gets extremely red and hot.As for the normal sweating have you had your heart and lungs checked...it sounds like there may be an underlying problem that maybe a doc hasnt thought about.Good luck and I hope I helped even a tad!
    MrsYoung 10 Replies
    • December 10, 2006
    • 00:46 AM
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  • Thank you for your reply but I usually do not drink . I just said that a little bit of wine will accentuate the redness and the heat. It is why I never drink I was not a drinker to start with . I am even bypassing tea and coffee for the same reason. I am asking here to see if someone has a similar experience and has not been dx or has. I don't know anyone who has that. It is why I use the net to see if I am alone or not . I was seen by many drs over the years who had no idea of what is going on with me. The rheumy did not say a thing about it he diagnosed me with fibro and at the time I did not believe it was that because the pain was mostly in my back but when it started to spread I started to believed him
    Anonymous 42789 Replies
    • December 10, 2006
    • 03:25 AM
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  • There is an extremely strong connection between FM and CFS (chronic fatigue syndrome). Some specialists tend to lump these two illnesses together as they see so many of their FM patients illnesses change and develop into CFS. Due to how these two illnesses are related, this is why one sees so many FM/CFS support groups and websites which lump the two illnesses together. Im mentioning this to you as the symptoms you have there are sometimes involved in CFS, thou I dont think you've currently got CFS as you didnt mention post exertional tiredness and exhaustion but its something you should be aware of and look out for as if your FM starts to go into CFS, you need to cut back on what you do. "As Dr Shepherd writes in his book 'Living With M.E.', many people who might have been able to drink alcohol before the onset of their illness, often find themselves getting very unwell even after small amounts.So if you have M.E./CFS, it is likely that you may have developed an intolerance to alcohol." That getting unwell mentioned in that quote I took from a CFS site can include all kinds of CFS symptoms and body reactions including the skin flushing which you are describing etc. One just can start getting intollerences to all kinds of things eg I cant have coffee either (I have CFS and used to have FM in the past) but being alcohol sensitive is a fairly well known CFS sensitivity. "Since my DX of CFS and FM, I cannot drink even a teaspoon of alcohol without developing a severe red face over the cheeks and nose, chin and often neck, chest and ears. Hands also get hot. " part of quote from pollygirl at http://www.healthboards.com/boards/showthread.php?t=423115 CFS is a central nervous system disorder and as such can cause some strange sensations which may come and go in various body parts eg even possibly a sensation in an ear lobe. I can actually feel hot in one body part yet cold in another body part. With CFS abnormal sweating reactions on doing anything is common too. Just vaccuming a small room can have me dripping in sweat. The moving about can cause me at times to have that reaction. My heart beat too I think often changes too when I start doing anything. Ive capitalisted your symptoms in the below, its from http://www.cfids.org/about-cfids/symptoms.asp , it thou dont mention all the CFS also known as CFIDS symptoms eg sweating on doing anything and food intollences."Other Common Symptoms Additional symptoms are reported by people with CFIDS (PWCs) such as word-finding difficulties, inability to comprehend/retain what is read, inability to calculate numbers and impairment of speech and/or reasoning. PWCs may also have visual disturbances (blurring, sensitivity to light, eye pain, need for frequent prescription changes); psychological problems (depression, irritability, anxiety, panic attacks, personality changes, mood swings); chills and night sweats; shortness of breath; dizziness and balance problems; sensitivity to heat and/or cold; ALCOHOL INTOLERANCE; irregular heartbeat; irritable bowel (abdominal pain, diarrhea, constipation, intestinal gas); low-grade fever or low body temperature; numbness, tingling and/or BURNING SENSATIONS IN THE FACE or extremities; dryness of the mouth and eyes (sicca syndrome); gynecological problems including PMS and endometriosis; chest pains; rashes; ringing in the ears (TINNITUS); allergies and sensitivities to noise/sound, odors, chemicals and medications; weight changes without changes in diet; light-headedness; mental fogginess; fainting; muscle twitching; and seizures. "
    taniaaust1 2267 Replies
    • December 10, 2006
    • 04:11 AM
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  • CFS causes food intolerences? It was the other way around, for me :)
    Azaral 152 Replies
    • December 10, 2006
    • 06:45 AM
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  • CFS causes food intolerences? It was the other way around, for me :) You truely didnt have CFS then but rather a undiagnosed food intollerance that your doctor missed. With CFS all other diagnoses for the problem are meant to be looked at, tested for and discounted before the diagnoses of CFS is given. Food intollerances can be just a very common small part of CFS.
    taniaaust1 2267 Replies
    • December 13, 2006
    • 09:15 AM
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  • Thank you so much for your reply, I am sorry to let you know how I do appreciate your input a bit late but I am just getting used with this place and still have problem to find my way around. All you say makes so much sense. I only wish my new dr. starts to work with me and takes me a bit seriously. I was dx with thyroid problems 5 years ago and fibro about 2 years ago, I have been having chronic pain for ages and when my former dr said it was soft tissues related I aked to see a rheumy.I read and kept in boomark the links you gave me. Altho I don't feel fatique like people with CFS I might be borderline. I spent my whole life borderline ...of evrything.I hope this will reach you .
    Anonymous 42789 Replies
    • December 15, 2006
    • 02:43 AM
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  • Thank you so much for your reply, I am sorry to let you know how I do appreciate your input a bit late but I am just getting used with this place and still have problem to find my way around. All you say makes so much sense. I only wish my new dr. starts to work with me and takes me a bit seriously. I was dx with thyroid problems 5 years ago and fibro about 2 years ago, I have been having chronic pain for ages and when my former dr said it was soft tissues related I aked to see a rheumy.I read and kept in boomark the links you gave me. Altho I don't feel fatique like people with CFS I might be borderline. I spent my whole life borderline ...of evrything.I hope this will reach you . The thing which all people with CFS have is fatigue (post exertional fatigue) .. the other symptoms can vary in CFS but not the post exertional fatigue symptom, so if you havent got that you wouldnt have CFS. Keep seeking an answer. You just said in your last post that you was diagnosed with thyroid problems. I myself dont know much about thyroid problem symptoms but have you looked into your problems being caused by that? sweating can be caused by thyroid issues.
    taniaaust1 2267 Replies
    • December 15, 2006
    • 05:23 AM
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  • Hi Menow,http://www.naturalchoicesforyou.com/site/680805/page/594047 you may find this very interesting. After reading your post I typed insulin resistance and fibromyalgia into my search machine and got the above thread. Insulin resistance can cause thyroid trouble and all the other stuff you mention.I am a sufferer of insulin resistance with some of your problems.Your talk of alcohol triggered a memory that I too cant have alcohol; just a glass of beer makes me drunk and unwell and anything stronger has me fight for breath and curled up in a ball of pain. Now I just might have found out why this happens. I haven't touched alcohol since I was about sixteen after that real scarry incident.I also sweat like a tap without having to do anything. Thanks for your contribution as it makes things more and more clearer regarding my own problems. I am 37.I am presently taking oral powder Amino Acid L-Arginine three times a day on an empty stomach and am having miraculous results.All the best Searchingsam
    searchingsam 54 Replies
    • December 15, 2006
    • 00:12 PM
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  • Hi, There is also a link between Fibro, CFS, ALS, MS and LYME disease. I was dx'd with fibro 5 yrs ago. But I didn't fit all the fibro symptoms. Low thyroid on and off, not low enough for the docs to want me on meds for life. Just 4 months ago, I was bitten by a second tick and the mark reminded me of one I had yrs ago. Not a bulls eye, but a big pruple bruise. My Lyme was undx'd for nearly 20 yrs. Some people never know they have been bitten. Have ya ever noticied, you feel better after being on antibx for something else?? Then crash. That can be a clue. Lyme affects the thyroid and adrenal gland too. They both work with the metabolism, temp control , and the insulin resistance. The western blot test for Lyme is the best, the rest give many false negs. Lyme has co infections that can cause profuse sweating. Just another option for you to look into. Hope you can feel better soon. ....Best Wishes.
    Anonymous 42789 Replies
    • December 16, 2006
    • 07:45 PM
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