I am female, 55. I was basically ok until 4 years ago. I had my first attack then - my whole digestive system seized up. I couldn't eat anything, it stuck in my throat. I was like that for 10 days, drinking soup and liquids, I frequently couldn't swallow, and my right eyelid had drooped down - I thought I'd had a stroke. I had blood tests, came back ok. Gradually I got back to near normal. I was very careful what I ate, but I was alright again. Six months later I was walking along and I felt my legs weren't behaving properly suddenly. I went home, forgot about it, went on normally, woke up the next morning, ate my porridge for breakfast and it stuck in my throat. I thought I was going to choke/die - lasted hours. This time the attack was much worse. Couldn't swallow, both eyelidsdown, muscles so contracted my legs were going into spasm. No help from the doctors. Another 2-3 weeks of nearly starving, literally, and again it started to ease off, then went. OK again for a few months. Then it came again. That's the story - attacks/remissions - doctors were talking about stress, but nothing more constructive, then 2 years ago in the summer it came on suddenly, and in addition my heart started thumping like mad when it did. When I had an attack, it was signalled by not being able to swallow, lots of gurgling in digestive system, and very stiff legs, arms, right hand hard to walk - muscles, basically. Eyelid/s collapsed also. Saw a neurologist who said nothing wrong with that he could tell. Last summer had biggest attack yet. Collapsed, heart pounding, both eyelids down. Had ecg they said it was ok. Had a blood test and the only thing was I noticed was my potassium was high - just above the safe level. The attacks come on after food, that's certain. I am struggling on, but it is getting more and more difficult. The attacks are sudden, and when my heart starts pounding it's very scary. I should mention that I in desperation I diagnosed myself as Addisons owing to the high potassium, and I got licorice which was an old time remedy, but when I get the attack with the pounding heart I take that, and it stops it, and the not being able to swallow. There is a thing called hypo aldosteronism which is sort of half Addisons, but it seems to be very rare, and it can lead to something else called hyperkelemia, which is not so rare - it's a shot in the dark, if only I could get some help I would be very grateful. Good luck to you all, hang in there.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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