My doctors tell me I'm a freak case. Can anyone suggest ANYTHING?
I have LOW ACTH plasma (-5) and normal cortisol levels around 14.
Pain in left side under ribcage
Reynauds syndrome (cold hands/feet)
Frequent, Intermittent fevers of 99.4-100 degrees (daily basis)
Excessive sweating (even just walking to the mailbox!)
Chest tightness (kind of feels like when I had pneumonia but comes & goes)
I have had numerous tests done and all are fine! The doctors have ruled out MS, lupus, lymphoma, leukemia, rheumatoid Arthritis and cushings.
I thought about Addisons but I have LOW ACTH, not high!
Here are the tests that I have had:
Full body CT scan -found enlarged chest lymph nodes but docs say okay
Heart cath-said heart is super
Numerous blood tests-docs say all ok except for ACTH is low
Head MRI-all okay
Pelvic ultrasound-all okay
Hormone count and CBC-all okay
Was told I have high epstein barr levels...from a "previous" infection
I do have asthma, allergies and mitral valve prolapse.
I have been misdiagnosed previously with Fibroymyalgia and depression but anti-depressants did nothing so they took me off of them. I am not generally depresssed except when I am feeling bad physically.
All the doctors tell me I am absolutely fine..but I feel like I'm dead already. Anybody have suggestions at all? Could it be a lung problem?