Discussions By Condition: I cannot get a diagnosis.

Doctors guess the same wrong thing everytime

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: irishwolf1189
  • March 17, 2010
  • 04:22 PM

For awhile now I have been extremely tired for no reason. When I go to the doctor, they always think it's mono but after the tests come back, they're always wrong. That's happened three times now and the doctors don't seem to care after that. Anyone else have any ideas?

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8 Replies:

  • So tell me what is wrong with you?
    Anonymous 42789 Replies Flag this Response
  • So tell me what is wrong with you?I'm extremely tired all the time even though I get a full nights sleep. I have no energy to do anything because of it. It's bad enough at times that it affects my everyday life. I've tried vitamins, eating right, exercising but none of it helps.
    Anonymous 42789 Replies Flag this Response
  • Even after getting a full nights sleep I'm still extremely tired. I have no energy to do anything and it's affecting my everyday life.
    irishwolf1189 2 Replies Flag this Response
  • There are many causes ... Can you tell me what exactly is wrong in your test? It could be sleep apnea syndrome
    Anonymous 42789 Replies Flag this Response
  • The only thing that has ever been slightly off on my test were my iron levels which were slightly low but the doctors never seemed to think much about it. I never thought about sleep apnea.
    irishwolf1189 2 Replies Flag this Response
  • I just found out that my B-12 levels are low and I have similar symptoms of being sleepy, tired, lack of energy. They are giving me B-12 shots 4 times a week for 2 weeks and then I'll be getting them only once a month. Maybe you can ask your doctor to check your B-12??? Just a guess.
    Anonymous 42789 Replies Flag this Response
  • For awhile now I have been extremely tired for no reason. When I go to the doctor, they always think it's mono but after the tests come back, they're always wrong. That's happened three times now and the doctors don't seem to care after that. Anyone else have any ideas?i went through this and had numerous thyroid tests and mono tests. the doctors were determined it was mono and tested 4 times and all we negative. turns out I had CMV - a virus that has most of the same symptoms as mono but only a small percentage of people who have this virus actually get affected by it. have they tested you for this yet?
    Anonymous 42789 Replies
    • January 24, 2011
    • 09:03 PM
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  • i went through this and had numerous thyroid tests and mono tests. the doctors were determined it was mono and tested 4 times and all we negative. turns out I had CMV - a virus that has most of the same symptoms as mono but only a small percentage of people who have this virus actually get affected by it. have they tested you for this yet?I have pain in my lower left region also. Yes it burns. I don't have blood in my stools either...but I do have mucus...and foul smelling. I know that I have Entamoeba histolytica. It is very difficult to diagnose. If you've had it for a long time, taking any digestive remedies, herbs, drugs, over the counter such as Pepto Bismol, charcoal etc will simply obfuscate any diagnosis. Also often labs confuse E. histolytica with E. dispar thinking that E. dispar is commensal. And then trying to eradicate this organism is impossible. I have tried all the drugs...temporary relief...herbs etc. Then in 2004 I was given a CT scan with contrast dye. I lost 20lbs in 3 weeks evidently due to the contrast chemical. I have not been able to regain my weight. The CT contrast dye seems to have made the organism unresponsive to the drugs as they no longer have any effect...after having used them for years with some limited results. But better than nothing.I am exasperated at doctors attitudes and response and denial of what I have because it does not show in the stool test. Even in leiu of the fact that there was a diagnosis done by a parasitologist Dr. Louis Parish (who is now deceased). He developed a test called a rectal swab with a Dr. Bueno. He used a very experienced lab tech in parasitic diseases right in his office before the parasite disappears. It must be checked within 20 minutes of a warm stool. And also I have tested positive for E. histolytica antigens using a saliva test . This test is only done by one lab in the state that I know of in Washington. (Do the research) But this was dismissed by doctors contending that I once had the disease but that does not mean that I still have it. Well how then do they explain that I still have all the same symptoms and that I am only 92lbs and still very very ill? I have spent many years researching and finding evidence only to be summarily dismissed by doctors!Recently a doctor was concerned about my being hypothyroid. This is not new. I spoke with an endocrinologist years ago who agreed that there is nothing wrong with my throid...that it is caused by the parasite. No one in my family has any thyroid disease..ever. I have done the research and sure enough E. histolytica will effect the thyroid by interfering with absortion of iodine thereby causing hypothyroidism and anemia. Both of which all my blood tests show. This in addition to horrible inflammed bowel, excruciating pain after bowel movement, anorexia, delayed stool transit time (as was shown by CT scan and X-rays) extensive food allergies, fibromyalgia, night sweats and so on...which are all symptoms of Entamoeba histolytica infection ....to add to this...empirical evidence due to the relief from antiparasitc drugs...where no other types of drugs had any effect....the doctors remain in denial! I attribute most of this to ignorance(or laziness) and I am astounded at how many professionals are so uninformed.Many doctors seem to believe that the antiparasitic drugs eradicate the infection. If this is the case...why are there so many articles on drug resistance? Why are there researchers still trying to develop drugs for this disease if there is already a cure? Dr. Parish told me after I felt well with my first round of antiparasitic drugs( after many years of illness)....that he did not believe that anyone ever got cured. He contended that the best that could be done was that the drugs would change the organism so that one could live with it and it would not harm you. For me that has not been the case. I did not want to believe Dr. Parish....now I see he was right. He became a parasitologist because after suffering for many years and having the same problem with the medical community of being dismissed....he delved into it himself and tried to help others. Too bad he is gone now. I haven't found anyone to replace him...and I am near NYC. It seems that the doctors want to keep to their dogma and not look outside the box. I hope somewhere someone is out there...I have not found them yet. And with all of the research easily available...why would doctors deny people that they have parasitic disease...even when they are loaded with symptoms and have some diagnosos and drug empirical evidence?If you do not believe me....all you have to do is research the things that I have mentioned and see for yourself.I have been suffering for many years and I am now holding on by a thread. I am sure I am not the Lone Ranger.The following is excerpted from: Parasitic diarrhea: It is what it is http://www.entrepreneur.com/tradejournals/article/237234115.html "Times are changing. New technology replaces old methods, so why do we continue to offer the routine ova and parasite examination for the diagnosis of parasitic diarrhea? In the United States, or anywhere in the Northern Hemisphere for that matter, two parasites commonly cause diarrheal illness: Giardia lamblia and Cryptosporidium parvum, and two uncommonly: Entamoeba histolytica and Dientamoeba fragilis." "Note: E histolytica--Doing the routine iron hematoxylin or trichrome stain may confuse things because the pathogen E histolytica looks just like the commensal Entamoeba dispar, whereas the antigen-detection method selects out for E histolytica (so they say). "I don't know if any of this helps you ...but it's a starting point. If enough people will do the research...easily done with the internet today....then maybe we can hold these doctors feet to the fire...hold them accountable. Maybe a mulitude of sufferers will be able to get help.Good luck to you.yarma
    Anonymous 42789 Replies
    • January 25, 2011
    • 02:44 AM
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