I am going to try and make this as brief as possible. I am 32 years ald and up until about a year and a half ago I started feeling fatigue and minor joint pain. The joint pain was most notable in the morning when I first woke up. Since then my symptoms have become increasingly worse. I experience the following:
Lower back pain
Pain/pressure in my ears
Stomach PainI think that I may have covered many of my major symptoms. I have had quite a few tests done and have tried to list them and the results below.
Lyme disease - Negative (Been tested 5 times)
Elevated White Blood Count (Consistently for 6 months)
Elevated Neutrophil Count (Consistently for 6 months)
Gastroscopy - Found Stomach Inflammation
Diagnosed with Nephritis
T3, T4 Abnormally High - Hematologist monitoring - they say it may develop into Hashimoto's Thryoidism (Inflammation of the Thyroid Gland)
Blood in Urine
High Blood Calcium
High Total Cholesterol
Elevated Blood Pressure (144/90)
Abnormal Sleep Deprived EEG
I have been out of work on short term disability and I want my life back. I was not happy with the care I was receiving from my primary care. I was feeling that he was not following up or answering my questions. The following up or not carefully revieiwing my test results was confirmed when he sent the short term disability company a statement that said all I had was a stomache and was on Prevacid and the last time he was me was in October. I was almost denied short term disability because of this but I requested a copy of my medical records which directly conflicted with his statement. I am on Vicodin, Skelaxin, Lidocaine patches, Amitryptiline, Zoloft, Prilosex, and Midrin.
So, I have been seeing a Hematologist, Cardiologist, and a gastroenterologist, and a neurologist. I have yet to meet the neurologist which is frustrating because I made the appointment in October and the earliest they could get me in was January. They then call and had to reschedule my appointment which is now not until April 16! Which means that this has taken 8 months to get in :mad:. I have found a new primary care office but I feel like I have to start all over again. Since, my case is complicated does anyone have any idea about what I should do to prepare for a doctors visit with my new doctor. I do not want to go in with my list of issues and have her focus on one or two of them. I want them to be looked at as a whole because I think they are related. By the way my old primary care diagnosed my with Fibromyalgia which I am not sure of because I have been reading about it and the only thing I could find that fit my symptoms was the pain. Any feedback appreciated and I apologize for the length of this post.