Discussions By Condition: I cannot get a diagnosis.

Doc must think I'm crazy

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: papermoon
  • August 4, 2009
  • 05:56 AM

I tell my doctor my symptoms and she looks at me like I'm a nut case. I have hypothyroidism and take meds for it. Also fibromyalgia. It doesn't help that I'm also treated- different doctor- for mild- bipolar (which is why I think she doesn't take me seriously). My doctor retired, she replaced him. He use to give me iron and B12 shots weekly based on iron absorbtion test results. She doesn't. She says my iron count is ok. Don't know if she checks the absorbtion. My thyroid test came back 4.0 and she said it should be closer to 1.0 She is increasing my thyroid med gradually. Here's my symptoms - I am sleeping more. About 3 hours after I wake up I can't hold my eyes open. I'm sleeping about 14 hours a day. Sometimes more. It's not depression - I know what that is like. I have things I want and need to do but am too weak and tired. I never feel rested, even after sleep. I have blurry vision that gets worse at times. I forget things, appointments, names, words, things on stove. Concentration is poor. Sometimes but not often, my lips tingle and feel numb. No appetite - I weigh 105 which is good for my height but I've lost 8 pounds since January. One blood sugar test was 400 but the doctor decided it must have been a fluke or lab error. I feel like pooh! Now, this may or may not be related... Forearm muscle on inside of arm close to the bend in my arm and running down arm hurts for no reason. Sometimes I can't lift my coffee cup. It comes and goes and its in the exact same place in both arms but sometimes its just one that hurts. No swelling. At times my hands and fingers burn and feel fat but aren't red or swollen. I think I must sound like a nut or a hypocondriac to my doctor. She just listens and nods. What are some possible causes?

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5 Replies:

  • Yeah, I read the lyme disease symptoms. It seems to me that the following ailments all have the same symptoms: LYME, FIBROMYALGIA, CFS, LUPUS, HYPOTHYROIDISM, and maybe some other autoimmune diseases. So, how does a doctor tell them apart? If they all have no real treatment, or if they all have the same treatment then I guess it doesn't matter if its misdiagnosed. And obviously if you have a doctor who only treats symptoms and not diseases and conditions, the treatments are going to be the same. Its all so tiring. Look how many of us are trying to self diagnose and asking for help. Why? Because there are doctors who don't listen and don't care. How do I get diagnosed properly?
    papermoon 5 Replies Flag this Response
  • I would definitely look into lyme. They'll put you on antibiotics which is a start.
    Anonymous 42789 Replies Flag this Response
  • Your symptoms can be due to a number of causes: -Your thyroid medication is being adjusted. Incompletely controlled hypothyroidism can cause your symptoms. As your medication reaches suitable levels, these symptoms may start to abate. -Fibromyalgia is commonly associated with symptoms such as yours. -The symptoms may represent the depressive component of your bipolar disorder. (If you are on Li, levels need to be monitored regularly. Li can have various side effects). Your psychiatrist may want to re-evaluate effectiveness of therapy and possibly consider alternative medication, if necessary. -Of concern, is your random blood sugar of 400 mg/dl. While one blood sugar reading does not make a diagnosis of diabetes, a fasting blood sugar level is warranted. Your symptoms may possibly be related to onset of diabetes. Of particular concern are weight loss, blurred vision, and pain and paresthesias in the upper extremities. -Perioral paresthesias are classically associated with hypocalcemia as is distal extremity numbness and tingling. Evaluation in this direction may be warranted. -On a general level, proper exercise and nutrition may help with your symptoms, too. Psychosocial support from family and friends can be helpful. In conclusion, there are many factors to be considered with symptoms such as yours, and evaluation is hardly simple (and, needless to say, not possible over the internet). Asking your doctor to address your concerns and working in conjunction with your psychiatrist may be helpful. That is all the advice I can offer. All the best.
    m3dh31p 69 Replies Flag this Response
  • Thank you. Your reply is very helpful. Knowing myself and my own history I can rule out a couple of things. But what you've told me I feel comfortable now saying to my doctor "My symptoms still exist and these are my concerns. May we rule out such and such..." The last thing I want to do is convey to her that I'm some know-it-all that knows more than her because of a quick trip around the internet. At the same time I want her to know these are real concerns for me and I want to be taken seriously. Again, thank you.
    papermoon 5 Replies Flag this Response
  • I tell my doctor my symptoms and she looks at me like I'm a nut case. I have hypothyroidism and take meds for it. Also fibromyalgia. It doesn't help that I'm also treated- different doctor- for mild- bipolar (which is why I think she doesn't take me seriously). My doctor retired, she replaced him. He use to give me iron and B12 shots weekly based on iron absorbtion test results. She doesn't. She says my iron count is ok. Don't know if she checks the absorbtion. My thyroid test came back 4.0 and she said it should be closer to 1.0 She is increasing my thyroid med gradually. Here's my symptoms - I am sleeping more. About 3 hours after I wake up I can't hold my eyes open. I'm sleeping about 14 hours a day. Sometimes more. It's not depression - I know what that is like. I have things I want and need to do but am too weak and tired. I never feel rested, even after sleep. I have blurry vision that gets worse at times. I forget things, appointments, names, words, things on stove. Concentration is poor. Sometimes but not often, my lips tingle and feel numb. No appetite - I weigh 105 which is good for my height but I've lost 8 pounds since January. One blood sugar test was 400 but the doctor decided it must have been a fluke or lab error. I feel like pooh! Now, this may or may not be related... Forearm muscle on inside of arm close to the bend in my arm and running down arm hurts for no reason. Sometimes I can't lift my coffee cup. It comes and goes and its in the exact same place in both arms but sometimes its just one that hurts. No swelling. At times my hands and fingers burn and feel fat but aren't red or swollen. I think I must sound like a nut or a hypocondriac to my doctor. She just listens and nods. What are some possible causes?Well you're not nuts! Your symptoms are those of hypothyroidism. When you get on the correct dose and your TSH is around 1.0, you should start to feel better after about four to six weeks. All your symptoms may not abate for over a year. It takes being on the correct dose for over 1 year to be considered stable.Because your doctor increased your thyroid hormone, I'd say she's listening to you. She just may have poor doctor/patient relations. Not every doctor is perfect. Some are worse, some are better.You can find more info about hypothyroidism and one of the most supportive boards I've been on here:http://www.freewebs.com/thyroidLithium interferes with L-T4 absorption. It will take a very diligent and intelligent doctor to keep your TSH where it should be.
    Anonymous 42789 Replies Flag this Response
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