Discussions By Condition: I cannot get a diagnosis.

doc can't tell me-rash-not itchy or raised doesn't blanch, swelling in joints&eyes

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: bonnieeureka
  • July 21, 2007
  • 04:30 AM

:confused:Please help. The doctor's can't figure out what is wrong with me. I have a rash on my feet, legs and underside of my arm that is also lighter on my abdomen. It is not on my face, chest, back, butt or top of arms. It does not itch. It is not raised. It does not blanch. It is giraffe like. I am lethargic and have symptoms that seem to move about and vary -from feeling like I have been beaten up or went down niagra falls in a barrell on one day then not being able to use my hands on the next. I have a swollen feeling in my eyes.

The rash started around the third week of april. I noticed it first on my upper inside arm. It looked like finger bruises, yellowish. That same night I notice a rash on my lower abdomen that looked like light red pin dots. Over the next couple of days the rash became all over my inside arms and redder, web like or giraffe like.

On May 2nd I showed a coworker the rash that now had spread all over my legs, ankles and arm. She worked for a rheumatoligist and said the rash looked like petechiae and I should go to doctor.

I went to urgent care and they laughed at me and said is was viral exanthem and it would go away by itself.

on June 6th the rash was now very red and spreading. I also started having symptoms of pain in my hands and feet. It was like in my bones ached inside. I went to the doctor who didn't know what it was. I had tests that all came out negative except for an elevated RA factor of 23. I am a Courtroom Clerk so the doctor said the pain in the fingers was probably carpo-tunnel. I knew I was in trouble then, I did not suddenly get carpo and a wierd rash, besides I don't type with my feet.

Over the next week the symptoms worsened. I could not move my hands. I had to put ice packs on my eyes, I felt like I had been beet up. This lasted about two weeks. One night my wrists were paralyzed for a while and very painful the rest of the evening.

I went back to the doctor who did a biopsy of the rash. It took 10 days to get the results and during that 10 days the symptoms of not being able to move my hands and feeling beat up were lessening instead of worsening. When I am having the symptoms the rash is more prominent. My eyes are still bothering me and I am lethargic and the rash is still there.

Today the doctor called me and said the result of the biopsy came in and he said that he thinks I have Pityriasis Lichenoides Chronica and referred me to a dermatologist. I looked it up and my rash is nothing like the symptom of that disease, plus it does not have any symptoms but the rash that is raised and crusty!! My rash is more like under my skin. I still have moderate swelling in my fingers and eyes and am mild to moderately sore in my muscles and joints.

Help. I live in a rural semi-rural area with limited physicians.

Reply Flag this Discussion

7 Replies:

  • Rheumatoid arthritis can cause some of the symptoms you are presenting. Also, the pictures on the dermatology web sites are usually the WORST cases they can find. I never would have recognized my pityriasis rosea by those pix. I went by the description. Also look up any disease associated with the rash. Tinea versicolor sounds like the giraffe skin you are experiencing. Are the patches lighter than your skin tone? or darker?
    rad-skw 1605 Replies Flag this Response
  • Or Parvo-virus B-19. Have you been around any kids that have had Roseola?
    rad-skw 1605 Replies Flag this Response
  • How about a mosquito (West Nile?) or tics? Have him do blood work for both.
    Monsterlove 2921 Replies Flag this Response
  • at first,how old are you ?RA is an autoimmune disease ,get serological test for RF factor,c-reactive protein,ana to confirm rheumatoid arthritis, then treat for it. if symptoms of rashes persist.then consult dermatology for detail.
    Anonymous 42789 Replies Flag this Response
  • Rheumatoid arthritis can cause some of the symptoms you are presenting. Also, the pictures on the dermatology web sites are usually the WORST cases they can find. I never would have recognized my pityriasis rosea by those pix. I went by the description. Also look up any disease associated with the rash. Tinea versicolor sounds like the giraffe skin you are experiencing. Are the patches lighter than your skin tone? or darker? Thank you for your response. The patches are darker. I have very fair skin and the rash is purplish red, but not super dark. As to the roseola I may have been exposed. My rash looks like when a really white person gets cold and get purple like vein lines in their legs, all the rash seems to be connected and not seperated. I am hoping that the dermatologist will be able to tell me something, for as it stands I have been give no type of medications or relief for my symptons of the swelling in my joints and eyes. Thank you again for your response.
    bonnieeureka 1 Replies Flag this Response
  • Bring the list of suggestions to the derm's office.
    rad-skw 1605 Replies Flag this Response
  • I don't know how long this thread has been up, but you should definitely get checked for Lyme's!!!!!! You live in a rural area, where there are tics, I'm sure! We have what might be considered an epidemic up here in B.C. I know several people who have gone through a harrowing journey with it. It can mimic alot of other things. One of the symptoms that several people I know who have had it is SEVERE JOINT PAIN! The tics that cary lyme's are so small, you may never have noticed a bite. The people I know who have lyme's went through ***l getting diagnosed, so be prepared. They were laughed out of doctor's offices and it was even suggested that they might be depressed. If you are in the states you might have better luck as there is more acceptance of lyme's in the medical community. However, the test for lyme's sometimes has a false negative. So, you have to find someone who is ultimately willing to treat you for it with high doses of anti-biotics based on your own experience with the symptoms. Good luck!!!
    Anonymous 42789 Replies
    • January 5, 2011
    • 05:52 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.