Discussions By Condition: I cannot get a diagnosis.

Do you ever get tired of trying?

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Jean Marie
  • May 3, 2007
  • 04:57 AM

All day I tried to make myself call yet one more specialist for an appointment. No matter how hard I tried, I couldn’t do it. I’m tired –
of all the sleepless nights and nonstop pain
of endless tests and waiting for the phone to ring
of being sent home with countless prescriptions and no answers
of feeling like a failure because surely I must not be trying hard enough
of the concern in my family’s eyes when I can’t conceal my misery
of the strain in my marriage because of things I can no longer do
of patronizing doctors who treat you like you’re crazy and think you don’t notice
of diagnoses that make no sense and treatments that bring no relief
of tears and missed moments
of being afraid that there might never be an answer

Welcome to my pity party! Sorry to sound so defeated, but I thought writing it all down might be cathartic. So tomorrow I will regroup and make that phone call. Maybe this doctor will finally be “THE ONE”.

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3 Replies:

  • Jean Marie...do yourself and your family a favor...go to www.ahummingbirdsguide.com if the site is too confusing, google symptoms of Myalgic Encephalomyelitis...I'm not sure exactly what your sx are but there are hundreds on this site with ME sx...I will be contacting my local health dept this am after contacting CDC early this am...that's what they told me to do...I am a nurse, not a hypochondriac or a conspiracy theorist...PLEASE take heed and look it up, it's worth your time...keep in mind it's viral, neurological, and affects several different body systems...It's also contagious but I'm not sure yet how long you remain contagious...So far I've heard from people in Australia, WA, CA, PA, MD, OH, and several in NY including Albany which is near where I live...May God bless you and your family for I feel your pain...mommy cat
    mommy cat 1654 Replies Flag this Response
  • oh how well put lets see anxiety,depression,and then your family gives you the look and you just lose it yes I truly know how you feel 3months of test and pain cant figure it out I feel like walmarts pharmacy the money, and the change in your life and the distrust in physicians and an dont forget we may never no what is causing this.The fustration is un real. All I can say is may God bless you and pray I m sorry you to are going thru this.
    Anonymous 42789 Replies Flag this Response
  • Thank you, thank you, thank you! It was nice to see someone else expressing my thoughts. Sometimes I feel like just giving up and living with the pain. Then I worry that there could be something seriously wrong that won't be caught in time.
    Anonymous 42789 Replies Flag this Response
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