I have been suffering episodic dizziness and generalized muscle weakness since the middle of January. I have also had a red rash on my chest. I've had extreme fatigue for weeks on end and then suddenly feel better for a day. I occasionally slow down mentally. I feel like I am slurring and have trouble with small motor skills like buttons. Sometimes if I am very weak I sidle from side to side reaching a bit farther with my left leg than my right. I have stabbing headaches that feel like someone stuck a chefs knife in my head and left it there. It comes on suddenly and leaves just as suddenly. Nothing works to make it go away- not aspirin, not sinus tylenol, not headache medication, not NSAIDs. The location changes too but will repeat randomly. Sometimes in the back right, sometimes on the left top, sometimes over my left eye, sometimes along the "headband line" on the right side. I also get pinching in my breasts and a dull pain on the right between my breast and my underarm. I have an annoying floater. I also seem to take a lot longer to heal injuries than usual. I sprained my thumb about 2 months ago and it still hurts. I have been gaining weight steadily in spite of eating well and being as active as possible.
I have had 2 major sinus infections this year. Several others the year before. I also had an episode in August where I got incrementally weaker and weaker but never developed other symptoms. I was treated with 2 rounds of antibiotics and it seemed to go away.
So far I have had 3 urinalyses, about 12 rounds of blood tests, a non-contrasting MRI of the brain and the cervical spine, a contrasting MRI of the brain, a sleep deprived EEG, a non-contrasting MRI of the lumbar and thoracic spine, ear and balance tests, eye exams, and an EKG. So far ruled out are: MS, RA, Lupus, Fibromyalgia, myositis, Lyme Disease, Hepatitis, Endometriosis, thyroid disease, vitamin deficiency, electrolyte imbalance, stress, psychological factors, tumors, schwannomas and Mono. The only abnormal test results have been: opacified right sinus(treated with antibiotics 2xs), uneven sinus sizes, 2 herniated discs in cervical spine C4-5 & C5-6 (treated with PT and better now), inner ear inflammation in left ear (take antihistamines when needed for dizziness), slightly raised Rheumatiod Factor (26), positive EBV (one strain only). The dentist told me over the weekend that I have "a touch of tonsillitis". All doctors are either baffled or vague. The vague ones tell me it's very complicated but nobody will tell me what they think might be wrong. I'd rather know what the possibilities are than be kept in the dark. Then at least I'll be prepared for the worst in case and will be relieved if it's something better.