Discussions By Condition: I cannot get a diagnosis.

Dizzy,unbalanced unexplained-Help

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: lmaestro
  • August 5, 2010
  • 11:42 AM

I had a painful headache 4 years ago at the sides of my head which was happening quite often.Since then I had CONSTANT feeling of "unbalancedness" feeling like swaying and falling(not room spinning)and fatigue.Other symptoms include cant concentrate,poor memory and finding hard to speak properly at times.The most weird part of the symptoms is that I experience twitching/throbbing/spasm feeling all over my body although they are painless.Went to a neurologist a few months after that headache and after many blood test,and an MRI done,EMG(i think) he diagnosed it as migraine.However the feeling of dizzy and feeling like falling over stil persist 24/7.Its somehow i feel there is no activity in my brain and i feel that there is no "sensation" at the sides of my forehead where the pain was.I also find that my legs and hands are weak most of the time and cant really exert myself.When im walking down the stairs i feel like falling over forwards and even when i take the lift and step out of it i feel really dizzy.Same with after going out of a moving vehicle.Legs feel like jelly now and hands feel a bit numb.

Could it be a thyroid problem?I would assume the doctor did some thyroid test when he took the blood.Sometimes i feel the urge to cough but not because of phlegm but some discomfort in my throat.Or could it be that my inner ears have problem?But I dont have problems with my hearing.
I dont buy that i have anxiety problem.I know everyone has that at times but i dont have panic attacts where my heard will race or I will begin to sweat.And could u really have anxiety 24/7?

I went to an optometrist the other day and found out that i have a cataract on my left eye and my cupping for both eyes are larger than normal.The cataract i believe was due to an injury when i was young.I do see eye floaters most of the time.Not to sure if this is related to my dizziness.

Should i go to the ENT specialist?Im quite sick of going to doctors and cant get a proper diagnosis
Problem is there is no specific pain and i dont even know if there is a more sinister underlying problem.But it has ben affecting me for the last 4 years and now at 21 i dont know if im suppose to live with this forever.

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9 Replies:

  • anyone?bumps
    lmaestro 17 Replies Flag this Response
  • Can you better describe the headache?At the time of the day begins, how long does it take ....?
    Anonymous 42789 Replies Flag this Response
  • It may be a parasite such as toxoplasmosis....How look your eosinophils?
    Anonymous 42789 Replies Flag this Response
  • It may be a parasite such as toxoplasmosis....How look your eosinophils?whats that?anyone?
    lmaestro 17 Replies
    • August 13, 2010
    • 07:58 AM
    • 0
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  • bumps.........................
    lmaestro 17 Replies
    • August 29, 2010
    • 04:14 AM
    • 0
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  • I had a painful headache 4 years ago at the sides of my head which was happening quite often.Since then I had CONSTANT feeling of "unbalancedness" feeling like swaying and falling(not room spinning)and fatigue.Other symptoms include cant concentrate,poor memory and finding hard to speak properly at times.The most weird part of the symptoms is that I experience twitching/throbbing/spasm feeling all over my body although they are painless.Went to a neurologist a few months after that headache and after many blood test,and an MRI done,EMG(i think) he diagnosed it as migraine.However the feeling of dizzy and feeling like falling over stil persist 24/7.Its somehow i feel there is no activity in my brain and i feel that there is no "sensation" at the sides of my forehead where the pain was.I also find that my legs and hands are weak most of the time and cant really exert myself.When im walking down the stairs i feel like falling over forwards and even when i take the lift and step out of it i feel really dizzy.Same with after going out of a moving vehicle.Legs feel like jelly now and hands feel a bit numb.Could it be a thyroid problem?I would assume the doctor did some thyroid test when he took the blood.Sometimes i feel the urge to cough but not because of phlegm but some discomfort in my throat.Or could it be that my inner ears have problem?But I dont have problems with my hearing.I dont buy that i have anxiety problem.I know everyone has that at times but i dont have panic attacts where my heard will race or I will begin to sweat.And could u really have anxiety 24/7?I went to an optometrist the other day and found out that i have a cataract on my left eye and my cupping for both eyes are larger than normal.The cataract i believe was due to an injury when i was young.I do see eye floaters most of the time.Not to sure if this is related to my dizziness.Should i go to the ENT specialist?Im quite sick of going to doctors and cant get a proper diagnosisProblem is there is no specific pain and i dont even know if there is a more sinister underlying problem.But it has ben affecting me for the last 4 years and now at 21 i dont know if im suppose to live with this forever.i have exactly same symptoms,after 3 yrs best docs have come up with is a b12 defiency,now have injections of b12 every 3 months,this has not helped,did u get any further with your docs?
    Anonymous 42789 Replies
    • September 23, 2010
    • 00:48 AM
    • 0
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  • i have exactly same symptoms,after 3 yrs best docs have come up with is a b12 defiency,now have injections of b12 every 3 months,this has not helped,did u get any further with your docs?Nope.not yet anyway.ya ive heard about the lack of b12 could cause dizzy problems.Im seeign an eye specialist soon but i doubt thats the main source of the problem.but then i could be wrong.lately its getting worse for me,my hands and legs feel very weak.do u experience that twitching/vibration over your body?where do u live and how old are u?im getting sick of this.before that it wasnt that bad now i couldnt excercise and the weird throbbing thing came back again.im contemplating seeing an ENT doctor since the neurologist is useless and seems uninterested and infact he said im "discharged" an doesnt need to see him again until i get another referal letter.im only 21 and feel like a 100 years old.hope u get better as well.take care
    lmaestro 17 Replies
    • September 25, 2010
    • 10:58 AM
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  • I suffered from a really bad headache where by eyeballs hurt and then not long afterward I had a dizzy spell that lasted days and days. I went to an ENT who said I had suspected labrynthitis (which people can get from being in an explostion from the percussion). I had no hearing loss, only experienced a rapid and faint clicking sound when I would urinate. The acute dizziness lasted 5 years. I got used to it and didn't bend over, washed dishes keeping my head straight up, took laundry out of the washer by just using my arm/hand to feel around etc. Anyway, 15 yrs later I suddenly had a loud sound in my ear (the one with the clicking) like a conch shell was being held up to my ear. I went to the ENT again and went through a battery of tests and was told I had suspected Meniere's Disease. Then that sound was replaced by a loud tv test pattern 24/7 - I couldn't hear, I was dizzy, I was sick, I had to go on sedatives. I was in bed for 1 1/2 yrs rarely going anywhere. When I was still I was OK but moving around made me feel worse. I kept going back to that ENT because my symptoms were not typical of Meniere's (attacks lasting about a day and then going away). Then one day my crown broke off and within 30 minutes all my symptoms greatly diminished. I had a root canal in a back upper molar that had become reinfected and the crown on top of the tooth kept the infection inside. I couldn't feel pain from it because the tooth was dead. I had the tooth redone and an all porcelain crown put on. Later, I decided to have the tooth pulled altogether to see if my hearing improved but it didn't. Now I can't tell where sounds are coming from (a person can say my name and I can't tell if they are in the adjoining room or down the hall in another room). Bottom line is that inner ear problems can definitely cause dizziness and I think that headache played a role in this too. Now I have dizziness and pulsatile tinnitus in that ear but I find that the drug for herpes simplex I (acyclovir) is useful in helping with the dizziness and imbalance. A Japanese study demonstrated this. You need a contrast MRI to rule out an acoustic neuroma as well. My hearing was not affected until many years after my dizziness started. There should be a medical discipline that studies the role of teeth, nerves, and the ear but there isn't one. It's hard to say what I really have since I don't fit the bill for anything that has been discovered yet. You need to see an ENT and maybe more than one if you are not helped.
    Anonymous 42789 Replies
    • September 25, 2010
    • 05:20 PM
    • 0
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  • I had a painful headache 4 years ago at the sides of my head which was happening quite often.Since then I had CONSTANT feeling of "unbalancedness" feeling like swaying and falling(not room spinning)and fatigue.Other symptoms include cant concentrate,poor memory and finding hard to speak properly at times.The most weird part of the symptoms is that I experience twitching/throbbing/spasm feeling all over my body although they are painless.Went to a neurologist a few months after that headache and after many blood test,and an MRI done,EMG(i think) he diagnosed it as migraine.However the feeling of dizzy and feeling like falling over stil persist 24/7.Its somehow i feel there is no activity in my brain and i feel that there is no "sensation" at the sides of my forehead where the pain was.I also find that my legs and hands are weak most of the time and cant really exert myself.When im walking down the stairs i feel like falling over forwards and even when i take the lift and step out of it i feel really dizzy.Same with after going out of a moving vehicle.Legs feel like jelly now and hands feel a bit numb.Could it be a thyroid problem?I would assume the doctor did some thyroid test when he took the blood.Sometimes i feel the urge to cough but not because of phlegm but some discomfort in my throat.Or could it be that my inner ears have problem?But I dont have problems with my hearing.I dont buy that i have anxiety problem.I know everyone has that at times but i dont have panic attacts where my heard will race or I will begin to sweat.And could u really have anxiety 24/7?I went to an optometrist the other day and found out that i have a cataract on my left eye and my cupping for both eyes are larger than normal.The cataract i believe was due to an injury when i was young.I do see eye floaters most of the time.Not to sure if this is related to my dizziness.Should i go to the ENT specialist?Im quite sick of going to doctors and cant get a proper diagnosisProblem is there is no specific pain and i dont even know if there is a more sinister underlying problem.But it has ben affecting me for the last 4 years and now at 21 i dont know if im suppose to live with this forever.Have all of your vitamin / mineral levels checked. I had the same symptoms. I had several very low levels which mean I do not absorb them normally for some reason? I was FALLING APART. Neurological tics in my head, tachycardia, numbness, tingling, burning, headaches, earaches, brain fog big time, loss of muscle, loss of strength. The list goes on & on... I was most severe in Magnesium, B12, and B1. It can cause heart failure, dementia, and neuropathy. I was well into all three catagories. I just found out about the B1 deficiency, and now need to get tested for the rest of the vitamin as well. It is a domino effect for some. When you are low in one, the other can't be absorbed etc...Good luck. I thought I was dying?Susan
    Anonymous 42789 Replies
    • September 25, 2010
    • 08:03 PM
    • 0
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