Discussions By Condition: I cannot get a diagnosis.

Dizzy and balance problem

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: lmaestro
  • March 30, 2008
  • 03:14 AM

I had this painful headache a year ago which only subsided after a few weeks.During that time I had this strange sensations on my legs and my hands feel numb most of the time although the pain is gone.Now I have trouble concentrating and I feel extremely tired most of the time.Whenever I walk I feel giddy although there is no pain whatsoever.I have done a nerve test and an MRI and the outcome showed everything is normal.The specialist diagnosis was that I have migraine.Does migraine come in different forms?Because the problem now is that I dont have headaches,its just that I feel I cant balance myself when walking or running constantly.This problem is driving me insane because it has affected my work and my profession requires me to do a lot of physical activities and driving as well.Can someone help?Could this be something to do with inner ear problems?

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12 Replies:

  • The first thing I think when someone mentions dizziness or imbalance is problems with the inner ear. It is hard to say if your headache was migraine related.....have you had a 'migraine' since that episode? It may have been sinus related which more often than not involves the ears thus leading to ear infections.Giddiness, loss of concentration, tiredness, balance issues all point to lack of oxygen and you notice this more when exerting/exercising. I am presuming you have seen your doctor which is why you have had a nerve test and an MRI. Did he/she rule out sinus/ear infections? Personally I would see an ear nose throat specialist....just my opinion.
    Anonymous 42789 Replies Flag this Response
  • Anyone?any help will be greatly appreaciated.thanks
    lmaestro 17 Replies Flag this Response
  • Check out vitamin b12 deficiency! I had many of my symptoms start following a month long migraine and when I went to neurologist for the headache she treated that only to have it be replaced with constant dizziness, balance problems, numbness/tingling in arms and legs, electric shock sensations when I bent my head forward. She always tests vit. b12 level since it is very important in nervous system health and mine came back low which explained the symptoms I was having. There is an extremely informative (and very long) thread on this forum called "b12 is commonly misdiagnosed" started by Sally Pacholok and now mostly moderated by Fredd. Definitely worth checking to see if you think it might fit and then having your doctor check your levels BEFORE starting any treatments. Just a word of warning though, my levels (313) were within the lab norms (211-911) but my neurologist said MANY people have symptoms at anything lower than 450 or even 500. If you do get the test find out the specific number and then insist on appropriate treatment if it's low. good luck and i hope you feel better soon! if it is b12 then the sooner the better as it is very treatable/reversable when diagnosed early!
    Anonymous 42789 Replies Flag this Response
  • Check out vitamin b12 deficiency! I had many of my symptoms start following a month long migraine and when I went to neurologist for the headache she treated that only to have it be replaced with constant dizziness, balance problems, numbness/tingling in arms and legs, electric shock sensations when I bent my head forward. She always tests vit. b12 level since it is very important in nervous system health and mine came back low which explained the symptoms I was having. There is an extremely informative (and very long) thread on this forum called "b12 is commonly misdiagnosed" started by Sally Pacholok and now mostly moderated by Fredd. Definitely worth checking to see if you think it might fit and then having your doctor check your levels BEFORE starting any treatments. Just a word of warning though, my levels (313) were within the lab norms (211-911) but my neurologist said MANY people have symptoms at anything lower than 450 or even 500. If you do get the test find out the specific number and then insist on appropriate treatment if it's low. good luck and i hope you feel better soon! if it is b12 then the sooner the better as it is very treatable/reversable when diagnosed early!Thank you very much esl.When u said u had tingling sensations are they painful or painless?The problem is my doctor keeps telling me Im fine and my symptoms do not match up and he only recently diagnosis it as migraine,which i doubt.
    lmaestro 17 Replies Flag this Response
  • My tingling sensations were actually more like a painless burning sensation rather than typical pins/needles. The best I could describe it was a cold burning almost like icy/hot or ben-gay gives you but inside instead of on the surface of my arms. I also experienced a buzzing or vibration sensation at times but just in random spots on my body. I did have painful sensations like electric shocks but not as constant as the tingling. The dizziness was everyday, all day but was more like a drunk feeling than a spinning feeling. I also had extreme fatigue and weakness (couldn't carry my 32# 3yr old more than a couple feet or climb stairs w/out my muscles burning/shaking) and shortness of breath. There were other symptoms too at various times and different people can have different ones and to varying degrees also. I don't really know that the migraines were a part of the b12 deficiency but because I had one for so long my regular doctor referred me to a neurologist. The neuro said she routinely tests for b12 along with alot of other bloodwork (I wasn't yet having b12 symptoms, just the migraine) and I think she just happened to find the deficiency. It wasn't until I went back for my 2 mo. follow-up that I told her I had been having the new symptoms and she said it correlated w/what she saw w/my blood work. It seems that doctors (including many neurologists) are not always up on b12 deficiencies but they are very easy to test for and treat. The important thing to know is that it is a demylinating disease like multiple sclerosis but unlike MS it is treatable (but only if caught in time!!!!). I have had migraines for years and they can sometimes cause dizziness (I've heard) but I think you should challenge your doctor to look beyond that, especially since you have new symptoms. If you don't get answers then switch doctors or ask to see a neurologist! I have found that you really have to take charge of your own health because some doctors just want to go for the easy answer when it may in fact be something more.
    Anonymous 42789 Replies Flag this Response
  • Also just wanted to let you know that my brain MRI was also normal as was my basic neurological exam in the office. Of course both of these were done because of the headache before I developed the other symptoms (though I can't imagine there would have been a huge change since they developed soon after). I did just have a cervical MRI but I don't know the results yet. I think she was looking for something called subacute combined degeneration which results from b12 deficiency. If your MRI was of brain only then ask for a cervical MRI too. Good Luck
    Anonymous 42789 Replies Flag this Response
  • I'm thinking spinal, like maybe something pinched in your neck.
    Beth56 272 Replies Flag this Response
  • I had migraines and the sort of neuro symptoms you are describing, especially the fatigue. It took 8 neurologists to diagnose me with Hashimoto's Encephalopathy, a rare complication of autoimmune thyroiditis. It is detectd by testing thyroid antibodies, even if your thryoid hormones are normal (and most patients with HE have normal hormone levels).According to one journal article that looked at 18 patients with HE, all of them had fatigue, and 90% had migraine-like headaches. Othere neuro symptoms vary from person to person and can range from numbness to balance problems to cognitive issues.There are other things that can cause headaches, fatigue, and neuro symptoms: other forms of encephalopathy (besides HE) and encephalitis, such as viral from herpes or west nile.I hope you get some kind of an answer soon.Best Wishes.
    Anonymous 42789 Replies Flag this Response
  • its kind of frustrating for me and to make it worse i cant explain to my specialist clearly what my problems are.thanks guys.will update u guys on my checkups soon
    lmaestro 17 Replies Flag this Response
  • hey tht sounds like me at first i thought i mightve written this post.. i've been feeling like this for 6 months now.. i recently remembered that i hit my head.. i had to go thru receipts n transactions tht gave me a clue lol.. i also used to lie down on my neck most of the time since i had just moved to a new room n i didnt have my desk yet.. i've been to 2 ent's and i had a cat scan and an mri for the head but the cudnt find anything.. now wenever i walk and my left foot touchs the ground i feel pressure in my throat and against the my skull and the left part of my neck feels tighter... so i'm thinking it cud be from my neck? i'm rally sick of this it feels lik im gonna be lik this forever! and i'm only 21 ( 20 wen this happened) also when i chew it pains in the back left part of my head not my jaw.. what happened with you ?? are you still alive? and were u diagnosed with anything yet??
    rmk_1987 20 Replies Flag this Response
  • hey tht sounds like me at first i thought i mightve written this post.. i've been feeling like this for 6 months now.. i recently remembered that i hit my head.. i had to go thru receipts n transactions tht gave me a clue lol.. i also used to lie down on my neck most of the time since i had just moved to a new room n i didnt have my desk yet.. i've been to 2 ent's and i had a cat scan and an mri for the head but the cudnt find anything.. now wenever i walk and my left foot touchs the ground i feel pressure in my throat and against the my skull and the left part of my neck feels tighter... so i'm thinking it cud be from my neck? i'm rally sick of this it feels lik im gonna be lik this forever! and i'm only 21 ( 20 wen this happened) also when i chew it pains in the back left part of my head not my jaw.. what happened with you ?? are you still alive? and were u diagnosed with anything yet??pretty much alive..still nothing yet...i think it could be my jaw or something...been to a lot of specialists and still nothing yet...i know how u feel..im 20 also.just remembered i posted on here a few months back just checking out the thread for any new updates
    lmaestro 17 Replies
    • January 6, 2010
    • 05:27 AM
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  • i was finally diagnosed with myasthenia gravis u shud get it checked its a very underdiagnosed condition and its symptoms can mimic scary diseases like MS or can be confused with fibro..
    rmk_1987 20 Replies
    • January 7, 2010
    • 00:04 PM
    • 0
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