Discussions By Condition: I cannot get a diagnosis.

Dizziness, headaches, and loss of consciousness x 14 years

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: SyncopalGal
  • March 8, 2008
  • 09:36 PM

Since age 11 I have been having syncopal and near-syncopal episodes, along with constant headaches and lightheadedness. During each episode, there is a feeling of throbbing throughout my whole head, everything spins sideways, and sometimes I lose consciousness completely.

I have had a full cardiac workup which revealed nothing. In November of 2007 I had an MRI and a CT scan which revealed two soft-tissue masses on the petrous portion of my temporal bone consistent with cholesterol granulomas, left greater than right.

I was sent to a surgeon who, upon my arrival (after 5 hours of driving, mind you) told me that the masses in my brain WERE NOT causing my symptoms!!!!

So here I am with a young son and constant dizzy spells and headaches. I'm afraid I will lose consciousness again while I'm holding my son (he is 8 months old) or fall down the stairs while I'm alone with him. I'm afraid and tired of 14 years of feeling dizzy every time I change position!

My question is HOW IS IT NOT the masses in my brain causing the symptoms??? Also, has anyone ever heard of anything like this?

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  • Thank you to everyone who chipped in in my threads! I have finally been diagnosed. A neurologists told me my headaches were a combination of migraines and analgesic rebound headaches. I was prescribed Axert and that usually cuts them off at the get-go. For the rest of the symptoms, I saw doctor after doctor.... finally a cardiologist recommended I have a tilt table test (something that was done 12 years ago). The difference was, this time they had me stand on the table for 23 minutes.... well that did the trick. My blood pressure plummeted, I lost my vision, my hearing, and was in some of the worst pain I've ever felt in my head and throat. My blood pressure had gone to 55/30 during this episode and they diagnosed me with Neurocardiogenic Syncope (or Vasodepressor Syncope). I've been prescribed a new medication that's made just for my type of syncope. I'm very excited and appreciative! Thanks guys!
    SyncopalGal 10 Replies Flag this Response
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