Since age 11 I have been having syncopal and near-syncopal episodes, along with constant headaches and lightheadedness. During each episode, there is a feeling of throbbing throughout my whole head, everything spins sideways, and sometimes I lose consciousness completely.
I have had a full cardiac workup which revealed nothing. In November of 2007 I had an MRI and a CT scan which revealed two soft-tissue masses on the petrous portion of my temporal bone consistent with cholesterol granulomas, left greater than right.
I was sent to a surgeon who, upon my arrival (after 5 hours of driving, mind you) told me that the masses in my brain WERE NOT causing my symptoms!!!!
So here I am with a young son and constant dizzy spells and headaches. I'm afraid I will lose consciousness again while I'm holding my son (he is 8 months old) or fall down the stairs while I'm alone with him. I'm afraid and tired of 14 years of feeling dizzy every time I change position!
My question is HOW IS IT NOT the masses in my brain causing the symptoms??? Also, has anyone ever heard of anything like this?
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