Hello and thanks for having a look at me “story.” Be forewarned, this is going to be a long post.
Some Background: About 9 years ago I started consuming large quantities of caffeine in the form of Vivarin, Excederin, and energy drinks. The lasted about 8 1/2 years. There was also a period of time where I consumed large quantities of tylenol. Additionally, I am very overweight and have high blood pressure (controlled with medication).
About 7 months ago, I woke up one morning feeling very foggy. Like I had chugged down a bunch of cold medicine. I did my best to ignore it. I hoped it would fade on its own. The next morning I woke up and the feeling was still there. I got to work and took my standard 2 Excederin and washed it down with a red bull. At this point, the foggy feeling got worse. I figured that it was somehow attributed to to my caffeine use. I immediately decided I would cut it cold turkey.
That evening, I was sitting at home watching TV and having dinner with my wife when the room started spinning, my heart started racing and skipping beats. I had the strong urge to to use the restroom. I couldn't sit. I had to stand and pace around. I thought I was having a heart attack. I didn't have insurance, so I decided to tough it out. However, it lasted all night.
The next day I went to the doctor and had an EKG. They said it was a panic attack and gave me some Xanaex. I took the Xanex and slept off the caffeine withdrawals. I felt better 2 days later. Then I woke up on day three feeling lightheaded. I went back to the doctor and they said it was because of the Xanex. I stopped taking it. The lightheaded feeling continued 24/7. Additionally, I felt nervous all the time. Like I had a major interview to go to. The lightheaded was almost like I was looking through a fish bowl. I also felt faint at times. For the next 3 weeks these feeling remained. The doctors kept saying it was anxiety. I didn't understand this because I never in my 32 years had any signs of anxiety.
Ok, this is becoming a ramble. Let me try to highlight the rest.
Symptoms I have been experiencing since this all began:
Lightheaded/dizzy: 24/7. Gets worse with laughing, exercise, any exertion.
Anxious feeling, especially when I focus on dizziness.
High blood pressure.
Tired and fatigued not matter how much sleep I get.
Neck soreness and constant need to crack neck to relieve pain.
Headaches every morning.
Occasional cold chills even when hot.
Flushed face periodically.
Pressure in chest.
Depressed feelings, like what’s the point of all this.
My foot hurts so bad that i cant put weight on it (comes out of nowhere and lasts like 4 days and then goes away) - This has happened 3 times in the past 2 years.
Periods of time where I get up multiple times at night to urinate.
Cant lose weight no matter how hard I try.
Intense pressure in my eyes.
Swollen ankles in the evenings when I get home from work (at least that is when I notice it.
I will wake up on occasion with my hand asleep. It will remain numb for hours. Like it only wakes up partially.
Concentration and memory problems. I will be talking to someone and completely forget what we were talking about. Overall trouble thinking.
Occasional vision problems. Every now and then my vision becomes foggy, like I have Vaseline in it.
Irritable and short tempered.
Very painful to take deep breaths in the morning before I rise. Pain is on both sides of lower back and radiates in. Goes away after getting out of bed.
Occasional unexplained fever with achy bones.
Constant need to “sigh.”I have also developed a new type of dizziness. Last month I started having issues with motion. When I stop at a stoplight, it feels like I am still moving. When I ride an elevator, me knees buckle when I move.
The dizziness sensation is intensified if I turn sideways to talk to the person sitting next to me. Walking in to large stores like Walmart also intensifies the dizziness. Working on the computer at work under the florescent lights also makes things worse.
Many of these things come and go. My main concern is the constant dizziness, foamy urine, neck pain and headaches. These are the symptoms that are persistent.
The foamy urine freaked me out the first time I saw it. It is almost like I am peeing soap. The doctors response was “hmmm, interesting.” It made me wonder if my kidneys were somehow messed up from the long term Excederin and tylenol use.
I have had blood work for a physical and was told all was fine. I saw a cardiologist who did chest x-ray, stress test, and echo. Was told all was ok, except the heart was slightly enlarged.
I had a CT scan and was told it was normal. I had an ultrasound of kidneys, and again, was told all looked fine.
I had an eye exam and all was normal.
I have tried acupuncture and no results.
I was referred to a psychiatrist and psychologist. Both agreed there was anxiety, but both said something else must be going on. They gave me all kinds of meds and nothing changed anything.
I went back to the doctor and they said there is nothing more they can do for me?!?!?! I do have an appointment with an ENT this week, but after that, I do not know what to do.
I know this is a big mess and may not all fit together, but can anyone provide any guidance?
Thank you in advance.
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