Discussions By Condition: I cannot get a diagnosis.

Digestive Problems, Weight Loss and Low Energy and no Diagnosis

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: HelpPlease
  • February 1, 2007
  • 05:37 AM

Hi I desperately need to get a diagnosis. I have seen countless doctors and Gastroenterologists...no one has been able to pinpoint my problem. My first severe symptoms were early satiety and weight loss. I still battle with early satiety every day. After one or two bites of food I immediately feel full and satisfied. I always continue to eat more food even though I start to feel full early. I also drink boost plus (a high calorie nutritional drink) and make sure that I eat a lot of high calorie foods/snacks. I weigh 134lbs and I am a 6ft 1 inch male. Family and friends tell me I look very thin and I agree, I wish I weighed my usual 145....I dont know what to do I have low energy every day. I wish I could sleep longer and not get out of bed but I have to work. I have had an HIV test, a year after having any sexual activity, which came back negative, I have had barium x-ray which showed a slow emptying of the stomach. Then I had a stomach emptying test which was fine. I have had a colonoscopy, 2 endoscopies which came back fine. I had a biopsy for H-pylori infection also negative. Does anyone, a doctor or patient who reads this know what I could have? At one time my symptoms included feeling sick after eating a few bites of food, nausea, you could call it. But my pre-dominant symptom is early satiety and low energy, not feeling like my normal self! I need my life back and doctors even ones in the family dont know what I have They tell me that I should be happy that no one has been able to find anything wrong with me! The problem is that I do feel dis-eased......Any advice or help would be greatly appreciated.

Thank you

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14 Replies:

  • I used to be just like you - I was 5'5 and 94 pounds. Even my brother was 6'1 and 120 lbs! Look up celiac disease. My daughter was 4'10 and 58 pounds. Try a gluten free diet and see if you start gaining weight. We all did!
    Anonymous 42789 Replies
    • February 1, 2007
    • 07:45 AM
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  • I agree with previous post I have celiac disease as well, same problems. I found a pill at the health food store called gluten ease, it has helped me gain some weight back. Cause I now can consumme SOME gluten. Check out the celiac web site. dont rember the right off try a google search. hope it helps.
    Anonymous 42789 Replies
    • February 1, 2007
    • 01:02 PM
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  • Thanks for the responses. I was tested for sensitivity to wheat. My Gastroenterologist gave me a blood test to see if I have an alergic reaction to wheat products. The test came back negative but based on your responses I feel I may have celiac disease. Has anyone been tested for Celiac and had a "false negative" test? Please let me know...Thanks
    Anonymous 42789 Replies
    • February 2, 2007
    • 03:00 AM
    • 0
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  • I used to be just like you - I was 5'5 and 94 pounds. Even my brother was 6'1 and 120 lbs! Look up celiac disease. My daughter was 4'10 and 58 pounds. Try a gluten free diet and see if you start gaining weight. We all did!I am curious were you ever tested for Celiac's disease by a doctor? and did it come back negative. I ask because I was tested for sensitivity to wheat before I had my colonoscopy and the bloodwork came back negative. Based on your response I feel I may have Celiac's but knowing that my GI doctor gave me the test and it was negative, makes me second guesss....
    HelpPlease 2 Replies
    • February 2, 2007
    • 03:03 AM
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  • My blood work came back neative, but my doctor said that because dietary changes have helped me alot she would have to say I had that ailment, and to keep up with the diet....good luck:)
    Anonymous 42789 Replies
    • February 2, 2007
    • 11:35 AM
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  • My blood work came back neative, but my doctor said that because dietary changes have helped me alot she would have to say I had that ailment, and to keep up with the diet....good luck:)Thanks for the info...I have another question! You said that you had the same problems as me...did you specifically have the problem of getting full quickly after begining to eat a meal before you started the gluten free diet? This is my biggest symptom and I am searching for answers. I am curious if this is a sign for celiac. Please let me know thanks...
    HelpPlease 2 Replies
    • February 2, 2007
    • 07:17 PM
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  • yes i always got a full feeling after eating a few bites of food, but there may be other symtoms, like bloating, and loose stools.. good luck
    Anonymous 42789 Replies
    • February 4, 2007
    • 11:30 AM
    • 0
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  • yes, my daughter tested negative. Since she had developed jejunitis, a known risk for celiacs, had the positive family history, and positive DNA markers (only a fraction of people with the dna go on to develop celiac), along with a positive response to diet, we just accept that she has it too. I have heard that there are many false negatives and some people take years before they test positive.
    Anonymous 42789 Replies
    • February 4, 2007
    • 04:04 PM
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  • A good supplement to help with the fullness and bloating are pancreatic enzymes. If you have celiac you would benefit from this too. Look for gluten free ones at www.vitacost.com and they even make a vegetarian one. Taking 1-2 tablets at meals can help your digestion tremendously. Fresh ginger grated and made into tea is helpful as well. Hope this helps.DOM
    acuann 3080 Replies
    • February 4, 2007
    • 06:42 PM
    • 0
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  • There's even an enzyme called Glutenease made by enzymedica that is supposed to help celiacs though I dont yet have experience with it (just ordered it today off of amazon) Enzymedica also has a product called Digest that sounds very good. For all around information on enzymes, this is a very good site:http://www.enzymestuff.com/dietsgfcf.htm
    Anonymous 42789 Replies
    • February 4, 2007
    • 09:56 PM
    • 0
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  • This is an interesting article on Non Celiac Gluten Intolerance. One of the interesting things in it is that it states that 15% of the population may have this while only 1% actually test positive for celiac!http://www.foodreactions.org/gluten/testing_negative.html
    Anonymous 42789 Replies
    • February 4, 2007
    • 10:12 PM
    • 0
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  • Have you had your Thyroid or Liver tested? I also have similar problems, and have had the colonoscopy, a barrage of blood tests, biopsies etc and found nothing! They also were quite sure up until the colonoscopy that i had Celiac's but then they changed their mind and said it wasn't that at all.However they did find that i had a high TSH (underactive thyroid) and commenced me on Oroxine 50mcg per day, which was later upped to 100mcg per day. I weigh 48kg (105.5lb) and am 165cm tall (5'4") and my TSH is now around 1.6 which is about right. Having a LOW TSH (overactive thyroid) can cause alot of symptoms - feeling tired, weight loss despite eating more, insomnia and a host of other things. Different symptoms appear in different people.Another thing to check is LFT (liver function). This will definitely give you a feeling of being full, tiredness, nausea etc if your liver is not functioning properly. This was also the case with myself and was also detected when doing the tests with the specialist. The only way to fix this one was to abstain from alcohol, paracetamol, and some other things also.If these have not been checked it might pay to do so, they are all simple blood tests and will soon rule them out if all is OK.
    Anonymous 42789 Replies
    • February 5, 2007
    • 08:13 AM
    • 0
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  • I have had simular symptoms as well as other symptoms for the past 3+ years. The feeling of fullness is now accompanied by vomitting. this feeling is spontanious and not related to eating at all now. Most often symptoms worse in early AM but continue through out the day. There are others discussing same symptoms on more threads here.A real Dr House?Severe abdominal PainHelp for my 5 yr old daughterand more. Please read them for further info.
    Anonymous 42789 Replies
    • February 7, 2007
    • 08:15 PM
    • 0
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  • try cutting down on all milk products ,spices for a month.Discipline ur meal times.Get enough sleep and keep urself stress free.Exercise till u sweat and keep out of all medicines.
    Anonymous 42789 Replies
    • October 6, 2008
    • 06:59 AM
    • 0
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