Approx. 3 years ago I started experiencing RUQ abdominal pain along with nausea, fatigue, and fever. I had my gallbladder removed. The doctor told me within 48 hours I should notice a significant decrease in abdomoinal pain (aside from the actual pain of the surgery and incision sites). The only thing I noticed was the pain getting worse. Several months later I had a sphincter of oddi manometry and ended up being admitted into the hospital and on a morphine drip for a week due to disabling pain.
I have had every test you can think of: colonoscopy, laporoscopy, blood tests, x-rays, CT scans, etc. etc. etc. and everything comes back normal.
Since this has started, my symptoms have continued to get worse. The pain is worse, the fevers are more frequent, I am exhausted all the time. I hardly sleep or eat. There is blood and mucous in the stool. The pain is no longer strictly RUQ pain, it seems to now be RLQ and occasionaly over my entire lower abdomen. I feel like I spend my life in the bathroom as I am constantly running to it, even awakening at night to go. I get sick with colds and anything else that is going around very quickly and it takes a long time to get rid of them. This is not only taking a toll on my personal well-being, it is also starting to take a toll on my professional life.
I have always believed that this is some sort of IBD. I'm curious if its possible that the disease was not advanced enough to be deteced and now that the symptoms have gotten worse if its worth going through all these tests again? My doctor is very disappointing and has pretty much written me off regarding this as "chronic pain" that I will just "have to live with." I'm sorry, but to me, thats the wrong answer. I am currently in search of a new doctor. Regardless, has anyone experienced this? I know that there is something wrong - I believe a person knows their body better than anyone else and knows when something is not right. I do not, however, believe that there is not an answer to what is happening. I cannot continue to live this way. Does anyone have any suggestions? I'd appreciate any feedback anyone may have.