To start off I'm 21 years old, male, 6'3, and somewhat underweight (140 pounds).About three years ago I started to develop a 24/7 headache and jaw pain (TMJ?), as well as a bunch of other symptoms associated with eating many different types of foods. The digestive problems and head/jaw pain may not be related, but they started at pretty much the same time.
Basically whenever I eat wheat, oats, dairy, and many different fruits and vegetables, I'll get bloated and a really crappy "brain fog" feeling within 15 minutes, and sometimes sharp pains in my chest (can be on either side, but it's never both at the same time) Generally diarrhea follows, or at best very irregular bowel movements. I normally have some mild acne, but often times after eating the foods I react badly too(which is practically everything), I'll also get what I think is cystic acne (hard and painful under the skin), as well as really dry skin. Honestly it seems like I can get sick from pretty much anything with carbs/sugar in it, but somethings I can tolerate much better than others, like rice or potato products compared to wheat or oats, and green vegetables compared to tomatoes, red peppers, or onions. I get sick even from eating some stuff in very small amounts.
When I first started getting these symptoms I had no idea they were food related, and I was very sick until I thought I might have celiac disease and took wheat/oats out of my diet. I got somewhat better, but the symptoms didn't entirely go away, and multiple tests for celiacs were negative. I didn't really feel better until I started eating a really low carb diet, but I still feel fatigued all the time either from the poor diet or whatever problem I have. Even if I don't get diarrhea from some carbs like say a gluten-free product made out of rice, I'll still feel crappy after eating it, so I try to only eat stuff like that at night.
I've been to a bunch of different doctors and all bloodwork always comes back normal. I recently had a glucose test for small bacterial overgrowth and that was negative. I have a lot of diabetes in my family, and aside from normal bloodwork all the doctors give me, I've also tested my blood sugar at home before and after eating, and it's always within normal range.
I've had a colonscopy + endoscopy, and everything was normal except minor inflammation, "scattered reactive nodules and moderate erythema in terminal ileum"(I have no idea what that means), and "thin gastric mucosa with poor motility" in stomach. I'm seeing the gaestro again tommarow, but I don't even know what else to ask to test me for.
The headache and jaw pain has not gone away at all since this started. I've seen a few TMJ dentists, but none of the splints or pain meds I've tried have helped at all. I really have no idea what to do about this, or if it's even related to my digestive problems, but they started at the same time.
About six weeks ago I started to get clicking/cracking in my wrists and knuckles all the time. I didn't hurt, it just felt uncomfortable, like my bones were hitting each other or something. But now my hands (wrists especially) are really starting to hurt. It sounds like arthritis, but could I really have that at 21? Could it be related to my jaw pain or digestive problems?
A couple other things that probably aren't related but I'll mention anyway. When I was a kid up until about 15-16 I was a little overweight, at which point I lost a lot of weight and have been very thin since. At around 13-15 I also had daily stomach pains that would last a few minutes, usually a few hours after waking up, everyone dismissed this as "growing pains". Also about a month before the jaw pain and other symptoms started, I had a raised spot in the middle of my chest, slightly to the right side. It didn't hurt or anything, and my campus doctors and general practitioner said it was probably a pulled muscle or something. It's actually still sort of there, but very feint.
I was also on antibiotics for acne a few months before the symptoms started, and got bad stomach pains actually while taking them. I've eating lots of yogurt (which actually makes me sick, even pure plain yogurt), soy yogurt, and probiotics in case it was some kind of "gut flora" issue, but none of this helped.
It would be amazing if anyone could help or had any ideas on any of this. In case anyone asks I take a daily multi-vitiman. And sorry for the poorly formatted run on post.