Discussions By Condition: I cannot get a diagnosis.

Diet not helping Reactive Hypoglycemia help!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: siobhan13
  • March 8, 2008
  • 04:51 AM

I have had reactive hypoglycemia for a couple of years and cut out sugar completely which helped ...then i went to mexico and got some virus got checked out and a diagnosis of post infectious IBS ...that could be totally unrelated but in order to help that my diet became even more strict.. i no longer eat wheat, dairy, or nuts and still do not eat any sugar ...no juice, no sweets no cereal nothing..even limiting fruit ...but even though my diet is the best its ever been my reactive hypoglycemic attacks have gotten worse and cant seem to be controlled ..its put me in hospital a couple of times and now its happening eveyday.. i get shaky, dizzy, nauseous, blurry vission, i urinate frequently, i have rapid heart beat and palpitations, loss of concentration, almost feels like being on weird bad drugs and my hands shake and usually takes a couple of hours to come out of it and sometimes i can do nothing but go somehwere and fall asleep..sometimes wakes me up at night..this is becoming debilitating as i cant go out becuase i feel un well i have missed a lot of school and work and i have been through sooo many tests i dont know what to do....i am 20 years old not overweight and do not have history of diabetes in my family and take no medication....i have been checked for diabetes and nothing came up but why isnt my diet working for reactive hypoglycemia?? i make sure to eat lots of protien and veggies ...could my hypoglycemia be turning into diabetes??? can they miss it on a test??

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3 Replies:

  • You may need to eat some more complex carbs. You get a rapid rise in blood sugar, then it falls and you crash perhaps. A moderate amount of fiber may help but add it slooooowly, otherwise you get gas. Some digestive enzymes may be needed also. Many of your symtoms could be from eletrolyte imbalances. http://www.healthatoz.com/healthatoz/Atoz/common/standard/transform.jsp?requestURI=/healthatoz/Atoz/ency/electrolyte_disorders.jsp Look into porphyria http://www.porphyriafoundation.com/about_por/overview/index.htmlas I think it is possible you could have it (if you have porphyria, your diet could be a problem) .... I have had attacks of it triggered by infections. I also have reactive hypoglycemia. I have to be careful to eat enough carbs, but not overdo them either and getting them to climb to high or stay high too long. Frequent meals 2-4 hrs apart helps me. I have to be careful to eat enough protein but not too much. Fat is difficult to handle so minimum on the fat; fat helps to slow down the transit time though and if you can handle it do eat some as good fats can be good for you. The list of signs and symptoms mentioned in various sources for Porphyria includes the 46 symptoms listed below: Urine color changes Darkened urine Nerve complication symptomsChest painAbdominal painMuscle crampsMuscle weaknessHallucinationsSeizuresDepressionAnxietyParanoiaHigh blood pressureRapid pulseFeverSkin complication symptomsSkin blistersSkin itchingSkin swellingSun sensitivityPhotosensitivityParesthesiasHair growth abnormalitiesSkin pigment changesGastrointestinal upsetAbdominal painVomitingNauseaConstipationSkin symptomsNeurological symptomsBlistersItchy skinSkin swelling on exposure to lightChest painAbdominal painLimb painBack painMuscle numbnessVomitingConstipationPersonality changesMental disordersTinglingParalysisCrampingNote that Porphyria symptoms usually refers to various symptoms known to a patient, but the phrase Porphyria signs may refer to those signs only noticable by a doctor. More ways to research these symptoms: To research other symptoms use the symptom center, or to research causes of more than one symptom in combination, try our multi-symptom search. TopResearch More About PorphyriaDo I have Porphyria? Porphyria: IntroductionPorphyria: Diagnostic Testing to confirm diagnosis I have had reactive hypoglycemia for a couple of years and cut out sugar completely which helped ...then i went to mexico and got some virus got checked out and a diagnosis of post infectious IBS ...that could be totally unrelated but in order to help that my diet became even more strict.. i no longer eat wheat, dairy, or nuts and still do not eat any sugar ...no juice, no sweets no cereal nothing..even limiting fruit ...but even though my diet is the best its ever been my reactive hypoglycemic attacks have gotten worse and cant seem to be controlled ..its put me in hospital a couple of times and now its happening eveyday.. i get shaky, dizzy, nauseous, blurry vission, i urinate frequently, i have rapid heart beat and palpitations, loss of concentration, almost feels like being on weird bad drugs and my hands shake and usually takes a couple of hours to come out of it and sometimes i can do nothing but go somehwere and fall asleep..sometimes wakes me up at night..this is becoming debilitating as i cant go out becuase i feel un well i have missed a lot of school and work and i have been through sooo many tests i dont know what to do....i am 20 years old not overweight and do not have history of diabetes in my family and take no medication....i have been checked for diabetes and nothing came up but why isnt my diet working for reactive hypoglycemia?? i make sure to eat lots of protien and veggies ...could my hypoglycemia be turning into diabetes??? can they miss it on a test??
    TaylorDeelwithit 382 Replies Flag this Response
  • I also have reactive hypoglycemia and none of the diet changes made a difference. I limit all white rice and pasta. My main problem was waking up at night and shaking and sweating so bad. The only thing that helps me at night is I eat a tablespoon full of local organic raw (unfiltered) honey. I started doing this 6 months ago on the advice of my acupuncturist and it works 90% of the time. During my period my sugar issues act up more so I include some small protein at night with the local honey. I feel so much better now and actually sleep (before I would wake up every 2 hours with thurst).
    Anonymous 42789 Replies Flag this Response
  • Hello, although this is long ago, did you get help? :( Have the same condition, no help. Do you have insulinoma maybe? TY very much
    Anonymous 1 Replies
    • December 3, 2014
    • 02:40 PM
    • 0
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