Hi there.. I can not get an answer to what is going on with me. This has been going on now for 19 months. I have been in and out of the hospital, seen many doctors including gastro drs and every test you can think of twice. And it scares me cause my Aunt died from complications of a colonoscopy and I have had 2. Every dr has given me a different answer and doesn't agree with the doctor before. I'm ready to go to the mayo clinic but I haven't been able to work cause of this and my parent's can't afford it. I hope to find someone that has the same symptoms and maybe cause give me some advice on what to do.
Here are all my symptoms. Diarrhea (mostly every day from 2-15 times) been constapidated for a day or two but believe it's from pain meds. Nausea all the time. Throwing up (at least 1 a week), Can't stand smells (food, baking, my guinea pig), Really bad pain my upper right stomach, It's always there and once in awhile my whole stomach will hurt and I get shooting pains to my belly button. I feel blah and crappy, I don't do anything. I'm always tired and crabby. I can't tell you how many times I have not been able to hold my bowel movements and it's embarrassing.I feel worse after every bowel movement. And sweating daytime nighttime whenever. I feel like there's a bump on my right side of stomach but no one can see it but me. But I'm also looking down and it's easier to see, I swear something is swollen.
I had my gallbladder removed in 2009 and all the symptoms seem the same. I was fine until around Feb 2011. Now with my gallbladder I had every test and nothing showed up that it was my gallbladder until I had it removed and they found huge stones. Which I have talked with all the doctors and every one says it has nothing to do with my gallbladder removed cause I know a lot of people have problems.
I have had 2 endoscopes, 2 colonoscopy, Mri's, unltrasounds, catscans, blood work, stool work up, urine work up. Xrays. I mean everything you can think of and nothing.
Back in June2011 I was hospitalized and that's when I had the first colonoscopy and endoscope. They came out after and told my mom I had colitis (which makes sense cause my grandma had it.) But no one food bothers me and sends me to the bathroom. Then I went to that Doctors associate cause I saw him for my gallbladder. He told me that the doctor was wrong and it's not colitis and that it is IBS. Well that's bs cause talking to a bunch of people that have ibs it does not seem like ALL the same. Yes some symptoms are but not all. Then I went to another doctor and at first she said it sounded like colitis, but after doing another colonscopy and endoscope, she didn't agree, which they couldn't get me asleep so I kept waking up. How painful. But she said it was Inflammatory bowel disease. (Which is either colitis or chron's disease.) I don't understand that but ok. I saw her last week and now she has no clue what is and taking her words back. And I saw another gi doctor but since I have so many answer's he doesn't wanna diagnosis me which is very frustrating cause I went to see him cause no one else can find an answer.
Now my mom and I were talking that with any of my health problems (gallbladder, broken wrist, strep, herniated disc's in back, broken foot) has ever shown up right away on any mri's, ultrasound etc. So now we wonder that if is something kind of serious and they can't find anything. All they do is keep putting me on medication which does not help. And it's very expensive having to depend on my parents.
Now I'm off my dad's insurance come Feb and I'm freaking out cause this needs to be solved. Plus I want my life back, I don't go out with friends, I don't date. Nothing
Sorry for soo long. I hope someone has some similarities and can help me a little. Thank you for taking your time to read all of this.