Hello I am writing to ask for help.
My dad unforfunately is in hospital for an acute form of Miller Fisher syndrome.(All started February 27th.Within 24 hrs he became completely paralyzed with severe respiratory failure.) He was placed a trach that's why he is in the intensive care unit. He was performed two cycles of intravenous immunoglobulin and after that two cycles of plasmapheresis (they needed to try everything to help him).
Unluckly after these treatments there are not any impressive improvements apart from small movements of his head, the lower part of the jawbone and fingers. Doctors say that dad needs a long time to recover from it stressing that he is 67 with diabetes, cardiocirculatory and kidney problems. We are also worried of the thousand infections he can get in that hospital unit.
I asked them if they are repeating any further cycle of intravenous immunoglobulin or doing something else but they replied everything has been done. We just need to wait. What do you think? I wonder if there is any treatment to re-form myelina quickly. What about Benfotiamine? Do you think that a steady neurologist check can be helpful?