Discussions By Condition: I cannot get a diagnosis.

Deteriorating condition--please help!

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • February 4, 2009
  • 11:06 PM

Hi, I am 34 years old & have been fighting increasing health issues that have severely impacted my life. I used to be a collegiate volleyball player, and now I am unable to do most things. I have progressively been getting worse, with more symptoms. Here is the LONG list of symptoms, conditions, etc. I have been tested for RA, Lupus, and a few other autoimmune disorders that were negative. Here goes:

low back pain, extremely sore tail bone
chronic, widespread pain
uveitis & conjuctivitis
blurred vision, sensitive eyes
chronic fatigue--debillitating at times
"kidney" pain
IBS
GERD
PUD
TMJ
fibromyalgia
arthritis
generalized edema (+1-+4)-I take a diuretic for this
chest pain, palpitations, murmur
insomnia
"restless" legs & arms at times
widespread, uncontrollable muscle spasms/cramps, especially with exertion
decreased tolerance to activity
weakness in hands--sometimes they will spasm & contort if I use them too much, or overexert them
tremors in hands at times
chronic migraines (4-5/week)
frequent nausea
weight gain/appetite problems
taste changes & mouth sensitivity at times
extremely dry skin
increased facial hair growth
breast tenderness, armpit tenderness
sensitive skin
occasional labial "sores"
inability to orgasm, zero libido
flushed cheeks/neck almost always
cold fingers/feet--sensitive to cold
lichen simplex/sclerosis

If someone could please help me, or give me a direction to go in. Sometimes I am afraid that it could be multiple sclerosis, or something with my endocrine system. I KNOW something is wrong, I just don't know what. Any ideas?

:confused:

Reply Flag this Discussion

5 Replies:

  • Hello, im sorry i cant offer advice but just wanted to say that i too have most of your symptoms and am desperate for help. I have been vaguely diagnosed with chronic fatigue syndrome. but there is no help. and tbh i am convinced there is something else going on. I hope that knowing your not alone helps in some way, it did for me when i saw your post, Sarah
    Anonymous 42789 Replies
    • February 4, 2009
    • 11:13 PM
    • 0
    Flag this Response
  • Your list sounds a lot like mine. You didn't say if you'd had been tested for infections or viruses. Check out www.lymenet.org. You can find lots of help there. Best wishes~~JerseyLymie
    Anonymous 42789 Replies
    • February 5, 2009
    • 10:24 AM
    • 0
    Flag this Response
  • THANK YOU sooo much for replying. I am trying to find a Lyme literate doctor in my area. I will research the EMF issue, and talk about it with my doctor. You don't know how good it feels to have people believe me & "listen" to me. I'll keep you updated!!:):):):)
    Anonymous 42789 Replies
    • February 5, 2009
    • 04:26 PM
    • 0
    Flag this Response
  • Hello, im sorry i cant offer advice but just wanted to say that i too have most of your symptoms and am desperate for help. I have been vaguely diagnosed with chronic fatigue syndrome. but there is no help. and tbh i am convinced there is something else going on. I hope that knowing your not alone helps in some way, it did for me when i saw your post, SarahHi Sarah!Some of the other threads suggested finding a Lyme literate doctor & seeing if you have Lyme disease. Another thread also suggested EMF exposure & problems with that. You could look into that & see if it's a possibility. Thank you for replying to my post--and yes, it does feel good to know that I am not alone. I hope this helps! :)
    Anonymous 42789 Replies
    • February 5, 2009
    • 04:29 PM
    • 0
    Flag this Response
  • Hi, I am 34 years old & have been fighting increasing health issues that have severely impacted my life. I used to be a collegiate volleyball player, and now I am unable to do most things. I have progressively been getting worse, with more symptoms. Here is the LONG list of symptoms, conditions, etc. I have been tested for RA, Lupus, and a few other autoimmune disorders that were negative. Here goes: low back pain, extremely sore tail bonechronic, widespread painuveitis & conjuctivitisblurred vision, sensitive eyeschronic fatigue--debillitating at times"kidney" painIBSGERDPUDTMJfibromyalgiaarthritisgeneralized edema (+1-+4)-I take a diuretic for thischest pain, palpitations, murmurinsomnia"restless" legs & arms at timeswidespread, uncontrollable muscle spasms/cramps, especially with exertiondecreased tolerance to activityweakness in hands--sometimes they will spasm & contort if I use them too much, or overexert themtremors in hands at timeschronic migraines (4-5/week)frequent nauseaweight gain/appetite problemstaste changes & mouth sensitivity at timesextremely dry skinincreased facial hair growthbreast tenderness, armpit tendernesssensitive skinoccasional labial "sores"inability to orgasm, zero libidoflushed cheeks/neck almost alwayscold fingers/feet--sensitive to coldlichen simplex/sclerosis If someone could please help me, or give me a direction to go in. Sometimes I am afraid that it could be multiple sclerosis, or something with my endocrine system. I KNOW something is wrong, I just don't know what. Any ideas? :confused: Hi Lors, Come on over to the b12 deficiency forum and check out our list of symptoms etc. You have a lot of them. The only way to know for sure is a suitable b12 trial with the right brands of active b12s and a few cofacgtors. http://forums.wrongdiagnosis.com/showthread.php?p=143413&posted=1#post143413 I would hope that you would get a pleasant surprise if you were to do a trial. Many folks with a lot of your symptoms find this to be a bingo. It is quickly testable by a short trial, and if positive then improving from there.
    Freddd 3576 Replies
    • February 6, 2009
    • 00:23 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.