Discussions By Condition: I cannot get a diagnosis.

Desperately seeking answers - please help!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Sammy164
  • June 24, 2009
  • 10:15 AM

I have been a frequent visitor to this site in hopes of finding answers but so far I have had no luck. I have multiple undiagnosed symptoms and some diagnoses.
I am 28 years old (female) and in 1998 when I was just 17 I had severe back pain. At first it would flare up every few months and then disappear. By 2002 however it was almost constant so I went to doctor after doctor in search of answers. Because of my age, no doctor believed I was really in pain and I guess thought I was just seeking attention. Finally last year one doctor took me seriously, ordered an MRI and it turns out I have 6 'slipped discs' - 3 in neck, 3 in the back - dehydration of the discs and degeneration of the spine (more than expected for my age). I did physiotherapy for 6 months and I must say the pain is considerably less than previously. However, during the course of physiotherapy I developed carpal tunnel syndrome in my left wrist and trigger finger in the ring finger of my right hand - I do not hold a job which requires a lot of work on the computer/typing/repetitive work etc. I cannot help but think that there must be a reason that brings together all these symptoms, especially given my age.
As for the rest of my health problems I was diagnosed two years ago with non-genital lichen sclerosis et atrophicus (confirmed through a biopsy) which is a rare incurable autoimmune skin disorder. About 9 months ago, after being misdiagnosed with irritable bowel syndrome, an endoscopy revealed a stomach ulcer. Despite 13 different medications in the course of 6 months (Zantac, Controloc and Ompranyt among others) another endoscopy revealed that though the ulcer had healed I now have multiple ulcerations in the stomach.
My latest symptom is extreme fatigue despite more than adequate rest. Psychologically I am well, the only thing that gets me down is my health as it interferes with my work with children with special needs as well as preventing me from having a social life and dealing with simple housework chores etc. (I have been having B12 injections - I am a vegetarian - for two weeks now but they havent helped)
Please respond with any advice or comments.
Thank you!

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1 Replies:

  • Dear Sammy164,I have just posted a reply to an 18 year old girl with condition that can be treated. You need to e mail me. After reading my reply, you can decide your next course of action. Please get your love ones, parents and those who cares for you to read my email as well to satisfy yourself that this is genuine help. poodlesamy at live dot com
    poodlesamy 26 Replies Flag this Response
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