Discussions By Condition: I cannot get a diagnosis.

Desperately need help, please read!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: gomom32
  • March 5, 2008
  • 07:18 PM

Over the past decade my husband (age 38) has experienced increasingly acute attacks of bilateral knee pain. The pain is so severe that I would put it on par with kidney stones and unmedicated labor. I have experienced both of those and yes his pain is that acute.

When the attacks hit he cannot move, eat, or sleep due to the intensity of the pain. He breaks into a sweat from the pain, and is reduced to fighting back tears and gasping for breath when it hits. The attacks can last 3-5 days. The time between the attacks can be several weeks right now. When he was younger, the time between attacks was longer.

We have consulted at least ten doctors. ONLY ONE took this seriously enough to run extensive tests. Dh had an x ray of both knees, an MRI of his lower spine (not sure why they didn't do an MRI of the knees), and a number of blood tests. He tested negative for everything.

There is something very wrong, and we do not know what else to do! His pain is so severe today I think we should go to the ER. *It is that bad*.

A few more points that need to be included:

**Dh experiences what he describes as "tingling, pins and needles, popcorn sensations" during attacks, below the knee, in both legs. When he is not experiencing an acute attack, he often says his lower legs feel like they are "vibrating and tingling". The latter is not painful but it is uncomfortable and fairly constant.

There is no joint swelling or warmth of the knees. However, he does seem warm to me in general when he has an attack.

During an attack he gets some relief from warmth on the knees and heavy even pressure atop both knees. Cold is intolerable during attacks. He often wants to pile blankets over his legs.

The last point is odd but should be included: he will almost always suffer an attack when a front of heavy weather is moving into our area. I know that sounds odd, but I have noticed this pattern. Over-exertion will trigger attacks too.

Dh is 38, average weight, non smoker, non drinker, no drugs. He has no past injury to explain the bilateral knee pain.

If you have *ANY* suggestions as to what this may be we are desperate. Dh cannot move, eat, work, or really function during these attacks. Something is *wrong*; this is not normal! Any advice you can give is appreciated. Thank you.

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4 Replies:

  • Over the past decade my husband (age 38) has experienced increasingly acute attacks of bilateral knee pain. The pain is so severe that I would put it on par with kidney stones and unmedicated labor. I have experienced both of those and yes his pain is that acute. When the attacks hit he cannot move, eat, or sleep due to the intensity of the pain. He breaks into a sweat from the pain, and is reduced to fighting back tears and gasping for breath when it hits. The attacks can last 3-5 days. The time between the attacks can be several weeks right now. When he was younger, the time between attacks was longer. We have consulted at least ten doctors. ONLY ONE took this seriously enough to run extensive tests. Dh had an x ray of both knees, an MRI of his lower spine (not sure why they didn't do an MRI of the knees), and a number of blood tests. He tested negative for everything. There is something very wrong, and we do not know what else to do! His pain is so severe today I think we should go to the ER. *It is that bad*. A few more points that need to be included: **Dh experiences what he describes as "tingling, pins and needles, popcorn sensations" during attacks, below the knee, in both legs. When he is not experiencing an acute attack, he often says his lower legs feel like they are "vibrating and tingling". The latter is not painful but it is uncomfortable and fairly constant. There is no joint swelling or warmth of the knees. However, he does seem warm to me in general when he has an attack. During an attack he gets some relief from warmth on the knees and heavy even pressure atop both knees. Cold is intolerable during attacks. He often wants to pile blankets over his legs. The last point is odd but should be included: he will almost always suffer an attack when a front of heavy weather is moving into our area. I know that sounds odd, but I have noticed this pattern. Over-exertion will trigger attacks too. Dh is 38, average weight, non smoker, non drinker, no drugs. He has no past injury to explain the bilateral knee pain. If you have *ANY* suggestions as to what this may be we are desperate. Dh cannot move, eat, work, or really function during these attacks. Something is *wrong*; this is not normal! Any advice you can give is appreciated. Thank you. Hi, it sounds like some kind of nerve pain, i suffer trigeminal nuralaga which is nerve pain in the face. nerve pain is the worst & really really difficult to treat. But i know nothing about knees, maybe bone pain it can be real bad from what ive heard. If i was u i would call an ambulance or take him to ER when he's at his worst, dont suffer it let them see what is happening. Wish i could help you more. dont wait on doctors helping you through normal channels, force them or u will wait forever Good luck to you both !:)
    Tootsie 628 Replies Flag this Response
  • PLEASE, try acupuncture - it is very helpful for this!! The biggest study to date on acupuncture done in this country was for knee pain - it works! Acupuncture promotes healing of the tissues and joints, it is much more than pain management. He should notice a huge difference after just one or two treatments. Please have him try this! www.acufinder.com to find a practitioner near you. On another note, and I am sure you will get a post from Blaze, but it is possible he has undiagnosed Lyme disease - this can affect the knee and cause terrible pain. Do you live in a Lyme infested area? If so, get tested through Bowen or Igenex labs and find a Lyme Literate Doc to help him. Either way, acupuncture will help. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I totaly agree with accuan. Especialy this kind of disease, natural alternative treatment such as acupunture and footreflexology is the perfect treatment without causing any side effect.Your husband's leg pain probably is caused from sciatic nerve damages. Many tears ago my co worker's dad had the exact same leg pain problem . He can barely walk and sleep at night, it's very painful ... 'I suggested him to go for both acupunture and footreflexology treatment . The pain obviously subside after 2 treatments. Over all he took a week to fully recovered. However , the length of healing period depends on idividual.More more information you can also visite http://www.footreflexology.blogspot.com good luck and god bless you and your family.
    Anonymous 42789 Replies Flag this Response
  • It could also possibly be a genetic disorder such as Fabry's Disease. I think a consultation with a geneticist couldn't hurt.
    Anonymous 42789 Replies Flag this Response
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