Discussions By Condition: I cannot get a diagnosis.

Desperate to know what's wrong with me.

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Vivvie
  • March 12, 2007
  • 09:26 PM

I feel so utterly lousy, I'm crying as I type this. And I rarely cry. I'm a pretty easygoing, cheerful person. My doctor says my symptoms are "all over the place"

I'm a former smoker, 57 year old female, always very thin, suddenly went from 108 lbs to 146 lbs. Doctor says a lot of the weight is not fat -- Something is going on in my abdomen.

No history of any cancer in my very large family.

Symptoms are: sharply increased blood pressure. All my life was so low, health care professionals would routinely take it twice thinking the first reading was wrong. Now it's suddenly jumped from 80 or 90 over something to 169 over something.




Intermittent breathlessness

sensation of squeezing on lungs

occasional dry cough

bloated abdomen (no pain, but very bloated)

Intermittent heartburn (several times a day. Normally, I feel heartburn once every 3 or 4 years at the most.)

Appetite good, but feel full after a couple of bites

Feel like my "innards" are crowded

Overwhelming and increasing sense of impending doom

Dr. ordered blood tests, urine test, chest x-ray, 3-day occult test for blood in stool, and three CT scans - chest, abdomen and pelvis.

Blood and urine tests were done 3/3/07 and Nurse called 3/6/07 to say they look "okay." Chest x-ray shows a nodule in lower right lung, about 3/4" x 1/2". Doctor wants to see me 3/21/07 to discuss the x-ray, but nurse says it may be nothing to worry about and he probably wants to do some more views on it first. Scheduling the appt two weeks away seems like an awfully long time. I feel like I'm getting worse by the day.

The CT scans were cancelled when the insurance company said I have to come up with $5000. It may as well be $50 million for all the chance I have of getting my hands on it any time soon.

I know this cloud of depression, this overwhelming sense that I'm dying, is a symptom of illness, not some inner wisdom regarding my condition. But I can't shake it. Now, with no possibility of having the CT scans and no other tests scheduled, I feel like I just have to live with it - or die with it - never knowing what is wrong with me.

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2 Replies:

  • Dear Vivvie,The set of symptoms you've written below sound like a scary bunch, indeed. I hope you have friends and family who are supporting you through this time.My advice on how to proceed with your medical treatment, is to go see an oncologist as soon as you can. This week. If you need a referral, get one from your doctor, but take your symptom list to an oncologist right away.Sure, it may be something like some strange virus. But if it is cancer, it seems like it is something that wants immediate attention. Even without a CT scan, an oncologist ought to be able to connect the dots of your symptoms, and tell you if it is a possibility that it is cancer. From there you'll have a better idea how to proceed.All that pressure you feel inside, and the weight gain, and your blood pressure being high, but also being anemic, add up to my agreeing with you that something really seems wrong. And I also agree with you that feeling so lousy is adding to your dread. You do need to do something right away, even if that is just to help you feel like you are acting in your own interest.Get an appointment with an oncologist this week. And write back here, with updates. I am worried about you, truly.Best,Shula
    Anonymous 42789 Replies Flag this Response
  • You need to appeal the insurance company's decision. You obviously need the CAT scan. Get started on the appeal today!
    hsmom24boys 4 Replies Flag this Response
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