Our 13yr. old daughter has been sick for over two months. She has been hospitalized since Feb. 20. She started getting headaches daily about seven months ago. Then in early February she started getting a sore throat. Her doctor put her on amoxacillan. She took that for five days but she just seemed to be getting sicker. She finaly stopped eating because of the pain in her throat. She was addmitted to the hospital for dehydration. She had a very sore throat and they discovered that she had multiple ulcers in the back of her throat. She also had terrible headaches, nausea, stomach pain, vomitting, diarehia and she complained of aching all over and joint pain. After five days in our local hospital she was shipped to the Childrens Hospital in Dayton. We found out after two weeks that she has psuedotumor Cerebri. They also found out through a scope that she had multiple ulcers in her esophegis and stomach. Her pain was very hard to control and for the last two weeks they have had her on everything from morphine, demerol, nubain and fentnyl. Currently they have her on oxycontin and fentnyl patches. But after two and a half weeks she is not getting better like she should be. I mean she had been hospitalized for a total of a month and one week and by now she shoud be home and on the mend. But she is not. She is'nt eating and she has been taken off of the I. V. fluids even though she has'nt eat and has stopped drinking. They stopped giving her the feedings through her pick line on Monday. So she hasnt been able to get any nutrition in her system for the past four days. I have a full list of her symptoms below and a list of her current meds as well. Any suggestion you have will be greatly appriated. :(
3. acheing all over
4. joint pain
5. stomach pain
6. abdominal pain
Conditions she has been found to have so far
1. psuedotumor cerebri
2. unkown viral infection that caused ulcers in mounth and stomach.
Current medications list
1.metoclopramide (reglan) 40mg. 3xday
2.ambien 10mg. at bedtime
3.nexium 40mg. 2xday
4.neurontin 300mg. 3xday
5.fentnyl patch 50mg.
6.Topamax 100mg. at bedtime
7.bisacodyl 20mg. once a day
8.acetazolamid 250mg. 2xday
9.acetaminophen/codeine #3 30mg. every 4hr.
11.oxycontin 20mg. 2xday
12.elavil (they are giving her the maintence dose for pain control)
13.zantac 150mg. 2xday
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