Am new here but decided it couldnt hurt to try as i am running out of ideas.
Back in November 2010 I started noticing i had trouble swallowing, especially noticed it at night. Not that it hurt to swallow, just that I wasnt able to, like it felt like my body didnt want to. Also felt like my tongue was out of place in my mouth, in the way of me swallowing. Once i woke up and felt like i couldnt breathe, like i was choking, so i went to the ER, they did nothing.
Also noticed was having what seemed like excess saliva or mucus in my mouth, along with (as crazy as it sounds) extreme dry mouth). It would be so much sometimes that I had to spit. It would gag and choke me, almost feeling like i was going to vomit once in awhile but didnt.
Made an appointment with my General Practicioner, he gave me Alprazolam for anxiety, said maybe it was acid reflux, and sent me for a Video Swallow Test. Test came back fine, mentioned maybe acid reflux.
Back to the GP, he sent me to a Gastroenteterologist. Gastro dr did an EGD (scope down the throat), he found a small hiatal hernia that he said was nothing to worry about, also found a small amount of esophagul erosion, treated it with meds (Dexilant, Carafate). And he stretched my esophagus. Said it might be acid reflux. Said to stay on a very bland diet.
Back to GP, he gave me Reglan (to reset my GI tract), this med made me somewhat better but the side effects were horrific so we stopped it.
Back to Gastro, told me to take prevacid over the counter once a day, that did nothing, so he changed it to twice a day. Then eventually writting a prescription for stronger Prevacid. (All in all, prevacid for 2 months and no better).
So this goes on for about 2 months, nothings better, still having symptoms. Gastro dr sends me to Ear, Nose & Throat dr, he finds nothing wrong. ENT & Gastro both decide i should take Robinol (for excess saliva), tried this but it made the dry mouth too much to bare so stopped. ENT recommended I go to the dentist to make sure there was nothing wrong orally, Dentist found nothing, only recommended i use Biotine paste & wash for the dry mouth.
I find my old GP (who i love) & go to him. He changes me from prevacid to Generic Prilosec (Omeprazole) once a day & generic zantac (Ranitidine 300mg) twice a day.
Now it's April, I am no better, in fact I feel worse. Ive lost 40+ lbs, i barely eat (still eating the bland diet because im afraid), ony drinking water & an occassional Boost, still having choking/gagging episodes because of the mucus/saliva, spitting alot. It doesnt burn, i have no heartburn or pain, can sleep flat without problem. It doesnt hurt to swallow, just feel unable to sometimes.
Went back to Gastro 4/4/11, now they say they dont think its acid reflux but have no idea what it could be! (ive never thought it was acid reflux). They mentioned maybe Neurological? (this scares me because im not sure what that means).
I am so miserable, im hungry, i spend most days scared im going to choke. Still taking the Omeprazole & Ranitidine per doctor, and Alprazolam as needed (which seems to be more & more). Im so worried and am desperate for a diagnosis. Also, I've kept a daily journal of what i eat, drink, episodes, etc. There is no pattern or triggers that I can find.
Anyone else experience this, any suggestions? :confused: Please help!
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