Discussions By Condition: I cannot get a diagnosis.

Desperate for Help...

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • October 9, 2008
  • 05:01 PM

After already 52 days in the hospital this summer my 16 month old daughter is diagnosed with epilepsy. Since her first seizure she has lost how to eat, hold her head up, sit up....etc....She has a feeding tube also. She has had a focal seizure (jerking of right arm) for 13 days now....the doctors at Childrens cant stop it and doesnt know whats causing it. If you have had some of same expierence please help me.

Desperate MOM

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  • Hi Ashley, I have a question, how is your health? There are some disease which can be passed to a child during pregnancy. She may have been protected by your immunity for many months, and then her immune system would be on its own to fight this. If you have been exposed to anything, make sure your daughter's doctors know. Where do you live? By the way, I am not a doctor (there is someone on this forum who doesn't like my posts, so I say that to make sure no one mistakes my input for that of a doctor) Another question, did your daughter need forceps while being delivered? I was a doula and actually one of my grandsons had to be pulled out with forceps and did end up with seizures. They still aren't sure what caused the seizures and he has been on anti-seizure medications for years now. He is checked regularly. Lyme Disease can cause seizures as well as other things, but if it is Lyme they would need to test her blood at a specialty lab. No doubt the hospital has tested her for Lyme at a local lab. Most all of those tests come back negative. If you want more information, just ask. I hope your daughter is doing much better now.
    Anonymous 42789 Replies
    • October 10, 2008
    • 03:26 PM
    • 0
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